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The MacDonald Family

Thursday, September 5, 2013. Quest for a Cure 2013! We're walking again to CURE Rett Syndrome! Come on out and join Annie's A-Team on Sunday, Oct. 6 , 10am at the beautiful Inglenook Park in Southfield! It's a great morning and don't worry it won't take up your entire Sunday, just a couple hours to show your support for our little hero Annie! If you can't make it, you can always support Annie's A-Team by donating online HERE. 156,000 is needed by December 2013 to fund this project. Ben Philpot’s la...

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The MacDonald Family | annamarymacdonald.blogspot.com Reviews

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Thursday, September 5, 2013. Quest for a Cure 2013! We're walking again to CURE Rett Syndrome! Come on out and join Annie's A-Team on Sunday, Oct. 6 , 10am at the beautiful Inglenook Park in Southfield! It's a great morning and don't worry it won't take up your entire Sunday, just a couple hours to show your support for our little hero Annie! If you can't make it, you can always support Annie's A-Team by donating online HERE. 156,000 is needed by December 2013 to fund this project. Ben Philpot’s la...

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The MacDonald Family | annamarymacdonald.blogspot.com Reviews

https://annamarymacdonald.blogspot.com

Thursday, September 5, 2013. Quest for a Cure 2013! We're walking again to CURE Rett Syndrome! Come on out and join Annie's A-Team on Sunday, Oct. 6 , 10am at the beautiful Inglenook Park in Southfield! It's a great morning and don't worry it won't take up your entire Sunday, just a couple hours to show your support for our little hero Annie! If you can't make it, you can always support Annie's A-Team by donating online HERE. 156,000 is needed by December 2013 to fund this project. Ben Philpot’s la...

INTERNAL PAGES

annamarymacdonald.blogspot.com

1

The MacDonald Family: Whats keeping me up at night these days....

http://annamarymacdonald.blogspot.com/2011/08/whats-keeping-me-up-at-night-these-days.html

Tuesday, August 9, 2011. Whats keeping me up at night these days. Any special parent knows that there is a huge, enormous, never ending list of things that we have to worry about with our very special little ones. And I'm not talking the everyday, every parent kind of worry like "Will my son go to college? Will my daughter stay away from drugs? Will my kids stay safe while they are out with friends? We have worries that are much more immediate like "Is my daughter being educated in school"? Annie has bee...

2

The MacDonald Family: I'm Worn

http://annamarymacdonald.blogspot.com/2013/03/im-worn.html

Monday, March 25, 2013. Most of the people reading this blog are momma's. Some to typical kiddos and some to special ones but regardless we can all relate to the feeling of being worn. Just so physically and mentally spent that you can't even think straight. I have been hearing this song on the radio lately, Worn by Tenth Avenue North, but it wasn't until all of this that I took these words to heart:. The family of mannchester estate. March 25, 2013 at 11:31 AM. April 27, 2013 at 7:52 AM. It turns out I ...

3

The MacDonald Family: Annie's Story

http://annamarymacdonald.blogspot.com/p/annies-story-2.html

Thank you for stopping by to hear about Annie's story and our life with Rett Syndrome. This has been quite a journey, but let me start from the beginning. Scott and I had been married for almost 2 years when we welcomed home the love of our life, James. What a blessing this little boy was and is. When James was about 7 months old we found out that we were pregnant again and were absolutely elated! I looked at Scott in horror and said "she's not crying, please tell me she's OK, she's not crying! Obviously...

4

The MacDonald Family: Rett Syndrome Pain

http://annamarymacdonald.blogspot.com/2011/01/rett-syndrome-pain.html

Thursday, January 13, 2011. Last night Annie actually did really well, she slept from 9 until 5am with only 1 dose of each of her sleep meds! I woke up with her at 5am and thought "all right! What if she's just so exhausted and rett syndrome is preventing her from naping, could this all possibly be due to sleep? Did I push her foot into her boot to hard? Could I have broken her ankle? I drove past the peds office 30 minutes ago, it's so hard to think when she's screaming like this! The three wise menn.

5

The MacDonald Family: The CURE

http://annamarymacdonald.blogspot.com/2011/02/cure.html

Thursday, February 24, 2011. We thought, what could possibly be taken away? Stupid question, the months that followed brought our answer and we realized all the awesome accomplishments a physically delayed 15 month old baby girl had. Lesson learned - never take ANYTHING for granted). So we regressed, we got breathing problems, our immune system dropped, our weight dropped, our swallowing and hydration became difficult, and all of our awesome hand function slowly diminished. Why isn't she sleeping? Do we ...

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alexandraoranotherrett.blogspot.com

Alexandra or another Rett: Gloves and face rash

http://alexandraoranotherrett.blogspot.com/2012/01/gloves-and-face-rash.html

Please excuse all spelling and grammatical mistakes, my mom first language is French, but she loves to express herself in English. Wednesday, January 11, 2012. Gloves and face rash. Alexandra with both hands in the mouth, typical of her manifestations. I was hoping that it will change, but it still there. Sometime more then others time. The mittens allow her to be more present and open. She does not mind them , at the opposite it bring her centering and calmness. 2 Some food allergies? Rett Syndrome Rese...

penniesforerett.blogspot.com

Pennies for Rett: April 2011

http://penniesforerett.blogspot.com/2011_04_01_archive.html

Pennies for Rett January 2011. Look at all of the pennies I have collected so far! Wednesday, April 6, 2011. My Pennies for Rett Video. Monday, April 4, 2011. I got lots of coins this week at school doing Pennies for Rett! Subscribe to: Posts (Atom). Rett Syndrome on The View 1/28/11. Girl Power 2 Cure. Girl Power 2 Cure. Runner Spotlight: Molly Barker. Quest for a Cure 2013! My Pennies for Rett Video. There was an error in this gadget. Simple theme. Powered by Blogger.

penniesforerett.blogspot.com

Pennies for Rett: March 2011

http://penniesforerett.blogspot.com/2011_03_01_archive.html

Pennies for Rett January 2011. Look at all of the pennies I have collected so far! Monday, March 7, 2011. Rockin for Rett 2011. I know this is early but I cannot wait for rockin for Rett. My cousin Rachel and I are having a cupcake stand. We are going to even make cupcakes for dogs. pupcakes ha ha. mom is going to e mail Gorge Town cupcakes the DC cupcakes show to see if they will donate something for the auction. I am going to burst. We will definitely get close to curing Rett. Subscribe to: Posts (Atom).

specialmommyx2.com

Girl Power 2 Cure

http://specialmommyx2.com/category/girl-power-2-cure

Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. Girl Power 2 Cure. Girl Power 2 Cure. October 12, 2015. Let that sink in for a second. How much hope does this statement give you? For me it is overwhelming! Click to share on Facebook (Opens in new window). Click to share on Twitter (Opens in new window). Click to share on Google (Opens in new window). Click to email this to a friend (Opens in new window). Girl Power 2 Cure. And ei...

specialmommyx2.com

Uncategorized

http://specialmommyx2.com/category/uncategorized

Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. A Day Off (no, out – well off too! October 11, 2015. I apologize for not posting yesterday but I had a day Off I mean out….well I was “off” too. Kristin and I took off for Southbend. Unfortunately our game tickets fell through but Notre Dame on game day is always a fun place to be. It is a HUGE bonus that our aunt lives there […]. Click to share on Facebook (Opens in new window).

specialmommyx2.com

Prom and an attempt at normalcy

http://specialmommyx2.com/2015/04/16/prom-and-an-attempt-at-normalcy

Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. Prom and an attempt at normalcy. Prom and an attempt at normalcy. April 16, 2015. Suddenly turning ten and thinking about eight years with Rett Syndrome seems insignificant. Prom Ugh. Prom. I can’t bring myself to think that far ahead. To be honest because I can’t – it hurts WAY TO MUCH. Here is what she wrote:. A letter to the mom in the dressing room next to me,. I love you so muc...

specialmommyx2.com

Life with Our Tubie – Changes

http://specialmommyx2.com/2015/06/06/life-with-tubie-changes

Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. Life with Our Tubie – Changes. Life with Our Tubie – Changes. June 6, 2015. And so the change begins…. Webpage is the official place to keep up with all of the changes as well as a timeline for these changes. I also love the Feeding Tube Awareness Foundation. Website for helpful information. For now the only “new” part I have is the bag – I use the adapter that com...Click to share ...

specialmommyx2.com

feeding

http://specialmommyx2.com/category/feeding

Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. Life with Our Tubie – Changes. June 6, 2015. And so the change begins…. We received the “new” feeding pump bags this month. Those of you who have a kiddo with a feeding tube you know EXACTLY what I am talking about. For those of you who don’t, it seems that quite a few changes are coming down the road in terms of feeding […]. Click to share on Facebook (Opens in new window). Click t...

specialmommyx2.com

Autism Awareness Month

http://specialmommyx2.com/2015/04/06/autism-awareness-month

Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. April 6, 2015. We are six days into Autism Awareness Month and I have not blogged. (I know – you are not shocked – I have been quite the blog slacker the past few months) Anyway, this is a tough one. I feel like I just “celebrated” World Down Syndrome Day – oh…because we did…just last month! 8221; I would not hesitate for even a second. Yes. Yes please. This might sound harsh. Ahhhh...

specialmommyx2.com

8 years ago

http://specialmommyx2.com/2015/05/21/8-years-ago

Special Mommy x 2. Living life with Rett Syndrome, Down Syndrome, Autism and LOTS of love, laughter, and learning to adapt. May 21, 2015. 2007: year of diagnosis. I wonder if our diagnosis day was not so close to her birthday if I would still remember it each year? Early on….sure, of course – 1st year, second year, 5th year maybe. But now eight years later – should it still come to mind? Should my heart still hurt? And eight years…how can that even be possible? Cry the entire year but it was tough. Most ...

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The MacDonald Family

Thursday, September 5, 2013. Quest for a Cure 2013! We're walking again to CURE Rett Syndrome! Come on out and join Annie's A-Team on Sunday, Oct. 6 , 10am at the beautiful Inglenook Park in Southfield! It's a great morning and don't worry it won't take up your entire Sunday, just a couple hours to show your support for our little hero Annie! If you can't make it, you can always support Annie's A-Team by donating online HERE. 156,000 is needed by December 2013 to fund this project. Ben Philpot’s la...

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