anthonyscvidblog.blogspot.com anthonyscvidblog.blogspot.com

anthonyscvidblog.blogspot.com

My CVID Blog

Wednesday, 15 February 2012. Has It Been so Long. Firstly a belated Happy New Year to you all. I have been meaning to post on here for ages, but for various reasons, I just havent been able to find the time. I cant believe though that I havent been posting on here since August! Thursday, 18 August 2011. I cant believe its been so long since I was last on here. I wish it could be due to time flying while having fun! Following on my lung CT scan some time ago, my immunologist has diagnosed CVID with Granul...

http://anthonyscvidblog.blogspot.com/

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My CVID Blog | anthonyscvidblog.blogspot.com Reviews
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Wednesday, 15 February 2012. Has It Been so Long. Firstly a belated Happy New Year to you all. I have been meaning to post on here for ages, but for various reasons, I just havent been able to find the time. I cant believe though that I havent been posting on here since August! Thursday, 18 August 2011. I cant believe its been so long since I was last on here. I wish it could be due to time flying while having fun! Following on my lung CT scan some time ago, my immunologist has diagnosed CVID with Granul...
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My CVID Blog | anthonyscvidblog.blogspot.com Reviews

https://anthonyscvidblog.blogspot.com

Wednesday, 15 February 2012. Has It Been so Long. Firstly a belated Happy New Year to you all. I have been meaning to post on here for ages, but for various reasons, I just havent been able to find the time. I cant believe though that I havent been posting on here since August! Thursday, 18 August 2011. I cant believe its been so long since I was last on here. I wish it could be due to time flying while having fun! Following on my lung CT scan some time ago, my immunologist has diagnosed CVID with Granul...

INTERNAL PAGES

anthonyscvidblog.blogspot.com anthonyscvidblog.blogspot.com
1

My CVID Blog: July 2010

http://anthonyscvidblog.blogspot.com/2010_07_01_archive.html

Thursday, 15 July 2010. So what is it really like. Part 1. According to Wikkipedia, the prelevance of CVID worldwide is 1 in 50,000. Well I guess that I have always wanted to feel unique! As such people around do often want to know what its like to have something like CVID and what effects it has. I guess the best way to look at it is before treatment and how I am finding this now that I am being treated. Subscribe to: Posts (Atom). So what is it really like. Part 1. Manchester, United Kingdom.

2

My CVID Blog: One Step Forwards..........

http://anthonyscvidblog.blogspot.com/2011/08/one-step-forwards.html

Thursday, 18 August 2011. I cant believe its been so long since I was last on here. I wish it could be due to time flying while having fun! Unfortunately after the positivity of a month or two ago things have taken a step or two back. After starting to feel tired and lethargic, which was originally put down to me having B12 deficiency, I also found that I was becoming tight chested while sat down and that my lung function tests showed that my lung capacity and efficiency had decreased.

3

My CVID Blog: June 2010

http://anthonyscvidblog.blogspot.com/2010_06_01_archive.html

Wednesday, 30 June 2010. I can still remember my first time. Everybody who knows me well enough, will know that I am (negatively) superstitious about the number 13. As such, you can imagine that I was less than impressed when I was told that I would be starting IVIG on Tuesday April 13th. After agreeing to go for the seemingly more flexible three weekly infusion option, and following a check that my veins were easily accessible, I was pretty much ready to go. As my counts were so low, I wasn't being give...

4

My CVID Blog: August 2011

http://anthonyscvidblog.blogspot.com/2011_08_01_archive.html

Thursday, 18 August 2011. I cant believe its been so long since I was last on here. I wish it could be due to time flying while having fun! Unfortunately after the positivity of a month or two ago things have taken a step or two back. After starting to feel tired and lethargic, which was originally put down to me having B12 deficiency, I also found that I was becoming tight chested while sat down and that my lung function tests showed that my lung capacity and efficiency had decreased.

5

My CVID Blog: February 2011

http://anthonyscvidblog.blogspot.com/2011_02_01_archive.html

Tuesday, 8 February 2011. Its been a while. It seems like ages since I was last here and I really guess that it has been! I hope that everyone has had a great christmas and start to the new year? Subscribe to: Posts (Atom). Its been a while. Manchester, United Kingdom. Im 29 years old and from Manchester uk. I was diagnosed with CVID in March 2010 and had my first replacement therapy in April 2010. View my complete profile.

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cvid.blogspot.com cvid.blogspot.com

Immundefekter og andet: Sandt eller Falskt? 7-9-13

http://cvid.blogspot.com/2013/09/sandt-eller-falskt-7-9-13.html

Cvid = almindelig variabel immundefekt For alle med interesse i at følge mig - gøre sygdommen mere kendt - så vi kan få nogle flere til at forske i det og hjælpe os - desuden dækker cvid flere undergrupper af immmundefekter. SYGDOMMEN LÆGERNE IKKE OPDAGER! Lørdag den 7. september 2013. Det er første gang jeg læser at andre med immundefekt har ledsmerter. Jeg faldt tilfældigvis over disse indlæg i en debat. Jeg tror det er sandt at ledsmerter har sammenhæng med immundefekt. Øhm, nej tak!

cvid.blogspot.com cvid.blogspot.com

Immundefekter og andet

http://cvid.blogspot.com/2013/09/d.html

Cvid = almindelig variabel immundefekt For alle med interesse i at følge mig - gøre sygdommen mere kendt - så vi kan få nogle flere til at forske i det og hjælpe os - desuden dækker cvid flere undergrupper af immmundefekter. SYGDOMMEN LÆGERNE IKKE OPDAGER! Fredag den 6. september 2013. D 6 september 2013. Det gør mig frustreret, men man ved jo også godt at man bare skal være taknemmelig for at de kan behandle en og at man kan komme ud og hjem derfra. Boligforeningen vil ikke betale for stikket til strømm...

cvid.blogspot.com cvid.blogspot.com

Immundefekter og andet: gruppe på facebook

http://cvid.blogspot.com/2014/12/gruppe-pa-facebook.html

Cvid = almindelig variabel immundefekt For alle med interesse i at følge mig - gøre sygdommen mere kendt - så vi kan få nogle flere til at forske i det og hjælpe os - desuden dækker cvid flere undergrupper af immmundefekter. SYGDOMMEN LÆGERNE IKKE OPDAGER! Lørdag den 27. december 2014. Jeg har oprettet e n gruppe på facebook for folk med cvid, pårørende og venner. Det er en lukket brugergruppe. gruppens navn er : CVID Danmark. Og du kan skrive til mig på email adressen : cviddk@groups.facebook.com.

cvid.blogspot.com cvid.blogspot.com

Immundefekter og andet: september 2013

http://cvid.blogspot.com/2013_09_01_archive.html

Cvid = almindelig variabel immundefekt For alle med interesse i at følge mig - gøre sygdommen mere kendt - så vi kan få nogle flere til at forske i det og hjælpe os - desuden dækker cvid flere undergrupper af immmundefekter. SYGDOMMEN LÆGERNE IKKE OPDAGER! Onsdag den 25. september 2013. F ørst kom subcuvia så kom privigen og til sidst dukkede kiovig op. De var alle nogle ivrige soldater men de bombede mig helt i bund. Privigen dukkede op i kølvandet. Det var ikke ret langtid om at ske. Igår kom Kiovig så...

cvid.blogspot.com cvid.blogspot.com

Immundefekter og andet: juli 2013

http://cvid.blogspot.com/2013_07_01_archive.html

Cvid = almindelig variabel immundefekt For alle med interesse i at følge mig - gøre sygdommen mere kendt - så vi kan få nogle flere til at forske i det og hjælpe os - desuden dækker cvid flere undergrupper af immmundefekter. SYGDOMMEN LÆGERNE IKKE OPDAGER! Tirsdag den 16. juli 2013. Nu gider jeg bare ikke det her mere. Har haft feber lige lidt over 1 uge og klamsveder. Et familiemedlem var syg og efter jeg havde krammet. Og sagt pænt goddag, da sagde jeg vidst - goddag - til en gang bakterier.

cvid.blogspot.com cvid.blogspot.com

Immundefekter og andet: Medicin

http://cvid.blogspot.com/2013/12/medicin.html

Cvid = almindelig variabel immundefekt For alle med interesse i at følge mig - gøre sygdommen mere kendt - så vi kan få nogle flere til at forske i det og hjælpe os - desuden dækker cvid flere undergrupper af immmundefekter. SYGDOMMEN LÆGERNE IKKE OPDAGER! Søndag den 29. december 2013. Det er et meget ensomt forløb man har, når man møder op skal man først hen og have taget blodprøver, derefter går man til sin stue (uden tv), med samme maleri på væggen.lidt ensformigt og kedeligt i længden.

cvid.blogspot.com cvid.blogspot.com

Immundefekter og andet: august 2014

http://cvid.blogspot.com/2014_08_01_archive.html

Cvid = almindelig variabel immundefekt For alle med interesse i at følge mig - gøre sygdommen mere kendt - så vi kan få nogle flere til at forske i det og hjælpe os - desuden dækker cvid flere undergrupper af immmundefekter. SYGDOMMEN LÆGERNE IKKE OPDAGER! Tirsdag den 26. august 2014. Email kommunikation imellem ptu og mig). Hej jeg er gående rygmarvsskadet og har lige opdagede at PTU .eksisterer. Jeg vil gerne komme med et opråb til alle inden for sundhedsområdet. Jeg kom op af det sorte hul. med hj...

cvid.blogspot.com cvid.blogspot.com

Immundefekter og andet: januar 2014

http://cvid.blogspot.com/2014_01_01_archive.html

Cvid = almindelig variabel immundefekt For alle med interesse i at følge mig - gøre sygdommen mere kendt - så vi kan få nogle flere til at forske i det og hjælpe os - desuden dækker cvid flere undergrupper af immmundefekter. SYGDOMMEN LÆGERNE IKKE OPDAGER! Tirsdag den 21. januar 2014. Så træt som et alderdomshjem, men kan ikke falde i søvn alligevel, jo pludselig falder jeg i en dyb og kortvarig søvn på sofaen for at vågne op med et spjæt! Når jeg går i seng så begynder alle mine negative tanker, de over...

cvid.blogspot.com cvid.blogspot.com

Immundefekter og andet: december 2013

http://cvid.blogspot.com/2013_12_01_archive.html

Cvid = almindelig variabel immundefekt For alle med interesse i at følge mig - gøre sygdommen mere kendt - så vi kan få nogle flere til at forske i det og hjælpe os - desuden dækker cvid flere undergrupper af immmundefekter. SYGDOMMEN LÆGERNE IKKE OPDAGER! Søndag den 29. december 2013. Det er et meget ensomt forløb man har, når man møder op skal man først hen og have taget blodprøver, derefter går man til sin stue (uden tv), med samme maleri på væggen.lidt ensformigt og kedeligt i længden.

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My CVID Blog

Wednesday, 15 February 2012. Has It Been so Long. Firstly a belated Happy New Year to you all. I have been meaning to post on here for ages, but for various reasons, I just havent been able to find the time. I cant believe though that I havent been posting on here since August! Thursday, 18 August 2011. I cant believe its been so long since I was last on here. I wish it could be due to time flying while having fun! Following on my lung CT scan some time ago, my immunologist has diagnosed CVID with Granul...

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