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Anya Mae's Story

Wednesday, December 4, 2013. So I need to catch you all up. I can’t believe it has been six months since I posted anything! Anya had a great summer. It was a milestone summer for the whole family, really; Anya was a year old and off oxygen, Arwen was getting ready for kindergarten, and Adam and I have been married for ten years. Add to that the general feeling that we should make up for lost time from the previous summer! Yay for no oxygen! I had never realized how quiet Anya is until she started babblin...

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Anya Mae's Story | anyamaesstory.blogspot.com Reviews
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Wednesday, December 4, 2013. So I need to catch you all up. I can’t believe it has been six months since I posted anything! Anya had a great summer. It was a milestone summer for the whole family, really; Anya was a year old and off oxygen, Arwen was getting ready for kindergarten, and Adam and I have been married for ten years. Add to that the general feeling that we should make up for lost time from the previous summer! Yay for no oxygen! I had never realized how quiet Anya is until she started babblin...
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Anya Mae's Story | anyamaesstory.blogspot.com Reviews

https://anyamaesstory.blogspot.com

Wednesday, December 4, 2013. So I need to catch you all up. I can’t believe it has been six months since I posted anything! Anya had a great summer. It was a milestone summer for the whole family, really; Anya was a year old and off oxygen, Arwen was getting ready for kindergarten, and Adam and I have been married for ten years. Add to that the general feeling that we should make up for lost time from the previous summer! Yay for no oxygen! I had never realized how quiet Anya is until she started babblin...

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anyamaesstory.blogspot.com anyamaesstory.blogspot.com
1

Anya Mae's Story: So I need to catch you all up...

http://anyamaesstory.blogspot.com/2013/12/so-i-need-to-catch-you-all-up.html

Wednesday, December 4, 2013. So I need to catch you all up. I can’t believe it has been six months since I posted anything! Anya had a great summer. It was a milestone summer for the whole family, really; Anya was a year old and off oxygen, Arwen was getting ready for kindergarten, and Adam and I have been married for ten years. Add to that the general feeling that we should make up for lost time from the previous summer! Yay for no oxygen! I had never realized how quiet Anya is until she started babblin...

2

Anya Mae's Story: Wow, so it really has been two months since I posted?

http://anyamaesstory.blogspot.com/2013/04/wow-so-it-really-has-been-two-months.html

Thursday, April 18, 2013. Wow, so it really has been two months since I posted? I sincerely apologize that it has been a while since I have posted. I have heard from several people that they want an update and have been meaning to for quite some time. Have no fear though, I have found that I only feel like writing/posting when I am stressed out. The last two months have been going really well. Little stress= no posting. Going back to better news. Her breathing is much better; dare I say we have been ...

3

Anya Mae's Story: A dream come true

http://anyamaesstory.blogspot.com/2013/08/a-dream-come-true.html

Sunday, August 11, 2013. A dream come true. The moment I have been praying for since we found out about Anya's CDH. August 14, 2013 at 3:55 PM. Is she off of o2? August 27, 2013 at 8:27 PM. Gorgeous picture, Kelly! Glad to see the O2 gone! Subscribe to: Post Comments (Atom). Summary of Anya's story. Anya was on ECMO for 30 days; during this run she had a bleed in her chest and needed a thoracatomy to remove it. She improved after the thoracotomy and was able to come off of ECMO. Weaning Anya off the vent...

4

Anya Mae's Story: Follow up visit in Gainesville

http://anyamaesstory.blogspot.com/2013/06/follow-up-visit-in-gainesville.html

Thursday, June 27, 2013. Follow up visit in Gainesville. Sunday we started our trek down to Gainesville for Anya’s first follow up appointment with Dr. Kays. We had arranged to have a portable concentrator that pulls oxygen from the air for the trip. The other option was to bring enough oxygen in tanks for six days, and that is a lot of tanks! We did bring a few tanks just as a backup, which ended up being a good idea. So to the appointment, what everyone has been asking me about! I have been hearing a l...

5

Anya Mae's Story: Birthday Surprises

http://anyamaesstory.blogspot.com/2013/06/birthday-surprises.html

Tuesday, June 18, 2013. Pastor Schade and our family. Adam, Christine, and Valerie, Anya's Godparents. Anya has grown so much recently, and her health has improved. I was watching a video of her from in the fall, and I was alarmed at how quickly she was breathing, I am not used to that anymore! She is off all meds except a nebulized steroid and a reflux medicine. Her oxygen is down to 0.2-0.3 L, every two weeks we drop another tenth of a liter. It came back completely normal! Summary of Anya's story.

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Baby Bee's Journey: Another February 2nd

http://babybeehelms.blogspot.com/2014/02/another-february-2nd.html

On February 2, 2012, our unborn baby girl Bee was diagnosed with a congenital diaphragmatic hernia (CDH). This is going to be a journey. Sunday, February 2, 2014. February 2nd has been an important day to me for two years now. It's the day in 2012 that Bonnie was diagnosed with CDH. When she looked something like this:. She's been through a thing or two since then, and has now become my crazy post-nap hair, cracker-eating sofa companion. These are from today. Here are a few more recent photos. February 4...

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Baby Bee's Journey: August 2012

http://babybeehelms.blogspot.com/2012_08_01_archive.html

On February 2, 2012, our unborn baby girl Bee was diagnosed with a congenital diaphragmatic hernia (CDH). This is going to be a journey. Sunday, August 26, 2012. Time to eat, baby. Or, "We don't want her to gag because then she can't eat, but *first* we're going to take away one of her reflux medicines that was keeping her from gagging! And the ever popular, "She needs to be hungry to eat, but we're going to keep her on continuous feeds for awhile so that her belly's never empty! For why that is) today!

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Baby Bee's Journey: 16 months old!

http://babybeehelms.blogspot.com/2013/10/16-months-old.html

On February 2, 2012, our unborn baby girl Bee was diagnosed with a congenital diaphragmatic hernia (CDH). This is going to be a journey. Tuesday, October 8, 2013. Bonnie turned 16 months old yesterday! My non-eater is eating! Poor Zander had to wear a cone for awhile. He was further tormented by the baby. Enjoying a nice breeze. Or trying to fly. Unlocked the cage all by herself, climbed in, and had a chat with the dog. Playing in the water! October 10, 2013 at 1:35 PM. Happy sixteen months, Bonnie!

ourcdhherolittlea.wordpress.com ourcdhherolittlea.wordpress.com

April | 2013 | Our CDH fighter Little A

https://ourcdhherolittlea.wordpress.com/2013/04

Just another WordPress.com site. Our CDH fighter Little A. You are browsing the site archives by date. Maybe more regular from now on? April 12, 2013. The last two months of our life has been consumed by work, some sickness and managing logistics. That explains the lack of post. Since this is Atiksh’s blog, I will keep it to that. A bit of update on him- – He started crawling very close to 7 months and has been going great guns. […]. Happy Third Birthday my handsome little Ati! Happy New Year my love!

ourcdhherolittlea.wordpress.com ourcdhherolittlea.wordpress.com

Follow ups and such… | Our CDH fighter Little A

https://ourcdhherolittlea.wordpress.com/2013/02/08/follow-ups-and-such

Just another WordPress.com site. Our CDH fighter Little A. Follow ups and such…. Follow ups and such…. February 8, 2013. Time sure does fly, in about 10 days Mr. Atiksh is going to be a 6 month bundle of pure joy. Let me recap, what we have been up to. Here are the boys with Dr. Boyle:. Here is the pic with the man:. Baby girl B…. Maybe more regular from now on? 4 comments on “ Follow ups and such…. February 8, 2013 at 9:45 pm. Thanks for the update! Atiksh will be six months old in ten days? I am missin...

ourcdhherolittlea.wordpress.com ourcdhherolittlea.wordpress.com

May | 2013 | Our CDH fighter Little A

https://ourcdhherolittlea.wordpress.com/2013/05

Just another WordPress.com site. Our CDH fighter Little A. You are browsing the site archives by date. Big day for Little A. May 20, 2013. Today is a very big. big. big day for our Littlest A. He is starting daycare. We are going to start slow, he is gone for 2 hours today. It is all very overwhelming. This was a hard decision for us, but a much needed one. I have been on a break from work for […]. May 10, 2013. Happy Third Birthday my handsome little Ati! Happy New Year my love! Just a year ago….

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February | 2013 | Our CDH fighter Little A

https://ourcdhherolittlea.wordpress.com/2013/02

Just another WordPress.com site. Our CDH fighter Little A. You are browsing the site archives by date. Follow ups and such…. February 8, 2013. Wow it has been a while since I posted, you can say life in crazy. My in laws left three weeks ago and I am trying to balance working from home, taking care of the little one who is getting more and more mobile everyday and balance handling two kids and one husband. It more […]. Happy Third Birthday my handsome little Ati! Happy New Year my love!

ourcdhherolittlea.wordpress.com ourcdhherolittlea.wordpress.com

September | 2012 | Our CDH fighter Little A

https://ourcdhherolittlea.wordpress.com/2012/09

Just another WordPress.com site. Our CDH fighter Little A. You are browsing the site archives by date. September 28, 2012. After a surprise turn of events we are home! Will post details soon! Day 40 – Changes. September 26, 2012. So Atiksh did what is considered a big no-no in the NICU when we are trying to go home. He lost weight two days in a row! Not sure why the high calorie milk and the ad-lib feeding did not work. However, I do have a theory. To me ad-lib meant feed him anytime he […]. I carefully ...

ourcdhherolittlea.wordpress.com ourcdhherolittlea.wordpress.com

October | 2012 | Our CDH fighter Little A

https://ourcdhherolittlea.wordpress.com/2012/10

Just another WordPress.com site. Our CDH fighter Little A. You are browsing the site archives by date. October 28, 2012. Happy one month at home dear Atiksh. It has been nothing but wonderful. Just this week has been stressful with Avy being sick- cold, cough, ear infection…but nevertheless, just what I wanted with all my boys under one roof. I am not sure if I have mentioned before but about 5-10% of children with CDH […]. Saying bye is hard! October 20, 2012. A special two month birthday! I have been m...

ourcdhherolittlea.wordpress.com ourcdhherolittlea.wordpress.com

avymom | Our CDH fighter Little A

https://ourcdhherolittlea.wordpress.com/author/avymom

Just another WordPress.com site. Our CDH fighter Little A. Happy Third Birthday my handsome little Ati! August 18, 2015. Dear Atiksh, Wish you a wonderful birthday. You are three today. Can you believe how fast time has gone by? I still feel like it was yesterday that I was dreaming of you and trying to fill my heart with hope that you will come and make our lives complete and today you make our […]. Happy New Year my love! January 2, 2014. Just a year ago…. August 2, 2013. Big day for Little A. Today is...

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Anya Mae's Story

Wednesday, December 4, 2013. So I need to catch you all up. I can’t believe it has been six months since I posted anything! Anya had a great summer. It was a milestone summer for the whole family, really; Anya was a year old and off oxygen, Arwen was getting ready for kindergarten, and Adam and I have been married for ten years. Add to that the general feeling that we should make up for lost time from the previous summer! Yay for no oxygen! I had never realized how quiet Anya is until she started babblin...

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