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CONTACTS AT APERTOWL.ORG

Taryn Skees

13411 ●●●●●●ew Rd.

Pro●●●ect , Kentucky, 40059

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1.50●●●●3496
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Taryn Skees

13411 ●●●●●●ew Rd.

Pro●●●ect , Kentucky, 40059

US

1.50●●●●3496
ta●●●●●●●●@gmail.com

View this contact

Taryn Skees

13411 ●●●●●●ew Rd.

Pro●●●ect , Kentucky, 40059

US

1.50●●●●3496
ta●●●●●●●●@gmail.com

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apertowl

http://www.apertowl.org/what-is-apert-syndrome

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http://www.apertowl.org/about-apertowl/skees-family

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apertowl

http://www.apertowl.org/whooo-we-help/for-parents-and-siblings/owl-in-the-family

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moreskeesplease.com moreskeesplease.com

November 2014

http://www.moreskeesplease.com/2014_11_01_archive.html

A Very "Minted" Christmas. I have made it my goal to take time out to update my blog more frequently. I have a long list (and I'm checking it twice! Of posts that I have swirling around in my head. But with all the craziness that is the holiday season, I am going to be honest, the deep, thoughtful writing will probably have to wait until the new year. Business cards from Minted last year, and in all honesty, had kind of forgotten to check them out for holiday cards but I'm glad I did! While they are kind...

moreskeesplease.com moreskeesplease.com

December 2014

http://www.moreskeesplease.com/2014_12_01_archive.html

More Skees Please in 2015. People said going from 3 kids to 4 was going to be a breeze. Having Nolan in February was no doubt a huge blessing. After our trouble getting pregnant. With Hudson, I truly didn't think #4 was even a possibility. Last fall, convincing Ricky to buy a house in Louisville sight unseen (attempted to show him via FaceTime but kept losing signal), and finally moving in to said house in the middle of winter just 2 weeks after having a baby. Just writing all of that gives me anxiet...

lovealonecreates.com lovealonecreates.com

Apert Syndrome - Relevant Links

http://lovealonecreates.com/apert-syndrome-relevant-links

Ben & Jeannie’s Top 10 Books. LENTils: Meatless Meals for Lent. For further reading on our family’s journey. This is an article that appeared in the Goshen News on September 18, 2013 that was written about our family’s journey with Sarah:. Here is our family Facebook page. For recent updates and networking. Helpful websites related to craniofacial conditions. Here is a non-profit organization called Children’s Craniofacial Association. Here is Riley Hospital’s Craniofacial Department Website. Meet Beth H...

ourbabyphoenix.org ourbabyphoenix.org

Our Baby Phoenix » Our Story

http://ourbabyphoenix.org/our-story

Just another WordPress site. Phoenix Roanne was born on October 6, 2012. We quickly discovered that something wasn’t completely right. Even though her head was misshapen and her fingers and toes were fused she did not end up in the NICU. She amazed and confused the doctors by breathing and eating on her own. When she was one month old she was diagnosed with Apert Syndrome. Luke and I are determined to spread awareness of this syndrome and give Phoenix the best life we can possibly give her. We are le...

ccakidsblog.org ccakidsblog.org

CCA Kids Blog: March 2015

http://www.ccakidsblog.org/2015_03_01_archive.html

Tuesday, March 31, 2015. This week, we're featuring stories about surgery on the blog . with a twist! Check back all week for tips, insights, and personal stories about surgery. Today's post is from Rachel Lance, offering her perspective as Shierry's mom. When you're stuck on a liquid diet and bound to an IV drip, it's difficult to get what you want. But not impossible. After a day in which she consumed no calories and rejected a therapy dog, right around shift change, Shierry decided to put on a show.

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