audentespatientadvocacy.com

Audentes Patient Advocacy

Sign Up for Updates. Be included in our updates. Subscribe for updates, including new stories. The courage of our patients inspires us to bold efforts every day. Be included in our updates. Subscribe for updates, including new stories. Barbara H. Wuebbels, RN, MS. Vice President of Patient Advocacy. Stay updated on recent news from Audentes, which may be found below. For more information about the study and participating sites. If you have previously enrolled your child in the XLMTM chart study from Dr&#...

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Sign Up for Updates. Be included in our updates. Subscribe for updates, including new stories. The courage of our patients inspires us to bold efforts every day. Be included in our updates. Subscribe for updates, including new stories. Barbara H. Wuebbels, RN, MS. Vice President of Patient Advocacy. Stay updated on recent news from Audentes, which may be found below. For more information about the study and participating sites. If you have previously enrolled your child in the XLMTM chart study from Dr&#...

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Audentes Patient Advocacy | audentespatientadvocacy.com Reviews

https://audentespatientadvocacy.com

Sign Up for Updates. Be included in our updates. Subscribe for updates, including new stories. The courage of our patients inspires us to bold efforts every day. Be included in our updates. Subscribe for updates, including new stories. Barbara H. Wuebbels, RN, MS. Vice President of Patient Advocacy. Stay updated on recent news from Audentes, which may be found below. For more information about the study and participating sites. If you have previously enrolled your child in the XLMTM chart study from Dr&#...

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audentespatientadvocacy.com

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Milosz - Audentes Advocacy

http://audentespatientadvocacy.com/narrative/milosz

Sign Up for Updates. Be included in our updates. Subscribe for updates, including new stories. Because of Milosz and his interests, we too are getting out more, traveling when we can just to explore. We go to classical car shows and listen to more music. Not only is Milosz growing, but he is helping us grow too.". Full narrative coming soon. 600 California Street, 17th Floor I San Francisco, CA I.

2

Emi - Audentes Advocacy

http://audentespatientadvocacy.com/narrative/emi

Sign Up for Updates. Be included in our updates. Subscribe for updates, including new stories. Our path is to cherish every moment because you just never know. That is why Emi is in this world, to teach us.". Full narrative coming soon. 600 California Street, 17th Floor I San Francisco, CA I.

3

Will - Audentes Advocacy

http://audentespatientadvocacy.com/narrative/william

Sign Up for Updates. Be included in our updates. Subscribe for updates, including new stories. Hours after the birth of his son, Daniel was in an elevator with the treating NICU (Neonatal Intensive Care Unit) doctor when the doctor said, ‘You might want to give him a name' It wasn’t the words but the urgency in his voice that was troubling. It was then that I realized we weren’t just dealing with undeveloped lungs we were moving into the rare. You're breaking down inside," says Daniel. "Then somebody...

4

Audentes - Audentes Advocacy

http://audentespatientadvocacy.com/about/audentes

Sign Up for Updates. Be included in our updates. Subscribe for updates, including new stories. Courageous Patients. Bold Effort. Audentes Therapeutics is a biotechnology company committed to the development and commercialization of innovative new treatments for people with serious, rare diseases through the application of gene therapy technology. The company consists of a focused, experienced, and passionate team driven by the goal of improving the lives of patients.

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XLMTM - Audentes Advocacy

http://audentespatientadvocacy.com/about/xlmtm

Sign Up for Updates. Be included in our updates. Subscribe for updates, including new stories. X-Linked Myotubular Myopathy (XLMTM) is a rare, inherited, life-threatening neuromuscular disease. It is estimated to occur in approximately 1 of every 50,000 live male births worldwide (1). A very small number of females have also been reported with symptoms of the disease (1, 2). Symptoms Detectable Prenatally and at Birth. Symptoms Detectable Prenatally and at Birth. XLMTM is an inherited, X-linked disease, ...

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audentestx.com

Patient Advocacy at Audentes

http://audentestx.com/content/patients/index.htm

Investors & News. The role of Patient Advocacy at Audentes is to bring the voices of the patient community to Audentes and the voice of Audentes to the patient community. Our commitment to patient advocacy is one of our core corporate values. The individuals and families affected by the rare and devastating diseases we serve are our partners, collaborators and teachers. We welcome any feedback you may have. Please contact us directly at patientadvocacy@audentestx.com. Symptoms of Pompe Disease.

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Sign Up for Updates. Be included in our updates. Subscribe for updates, including new stories. The courage of our patients inspires us to bold efforts every day. Be included in our updates. Subscribe for updates, including new stories. Barbara H. Wuebbels, RN, MS. Vice President of Patient Advocacy. Stay updated on recent news from Audentes, which may be found below. For more information about the study and participating sites. If you have previously enrolled your child in the XLMTM chart study from Dr&#...

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