Autonomy preferences, risk knowledge and decision-making performance in multiple sclerosis patients: the first international collaborative project evaluating preferences of MS patients regarding participation in medical decision-making
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AutoMS Project | automsproject.org Reviews
https://automsproject.org
Autonomy preferences, risk knowledge and decision-making performance in multiple sclerosis patients: the first international collaborative project evaluating preferences of MS patients regarding participation in medical decision-making
automsproject.org
AutoMS Project Events
http://www.automsproject.org/events.html
Autonomy preferences, risk knowledge and decision-making performance in multiple sclerosis patients. 1st International Conference on Patient education in MS and RIMS special interest group meeting Patient Information (22-23 jan 2010, Hamburg). Brochure, Photos, Presentations. 1st AutoMS Investigators' Meeting at ECTRIMS (15 October 2010 Göteborg-SWE). 2nd AutoMS Investigators' Meeting at RIMS, Saturday 14 May 2011 (Turku, FIN). 3rd AutoMS Investigators' Meeting in Lucignano (IT) 7-8 October 2011.
AutoMS Project Publications
http://www.automsproject.org/publications.html
Autonomy preferences, risk knowledge and decision-making performance in multiple sclerosis patients. Publications on behalf of the AutoMS group. Heesen C, Solari A, Giordano A, Kasper J, Köpke S. Decisions on multiple sclerosis immunotherapy: New treatment complexities urge patient engagement. J Neurol Sci 2011;306:192-7. Heesen C, Köpke S, Kasper J, Drulovic J, van Nunen A, Vahter L, Viala F, Fulcher G, Giordano A, Solari A on behalf of the AutoMS project. Multi-language translation and cross-cultur...
AutoMS Project Threelines
http://www.automsproject.org/threelines.html
Autonomy preferences, risk knowledge and decision-making performance in multiple sclerosis patients. Starting point: The Control Preference Scale. ECPS devised with new cartoons, for patient self-administration in six languages. Starting point: MS knowledge and risk knowledge instruments. Immunotherapy risk knowledge questionnaire produced with direct participation of patients and health professionals. Starting point: The Observing Patient Involvement (OPTION) scale.
AutoMS Project Bibliography
http://www.automsproject.org/bibliography.html
Autonomy preferences, risk knowledge and decision-making performance in multiple sclerosis patients. Ajzen I. Constructing a TpB Questionnaire: conceptual and methodological considerations. Retrieved from http:/ www.people.umass.edu/aizen/pdf/ tpb.measurement.pdf. Bekker H, Thornton JG, Airey CM et al. Informed decision making: an annotated bibliography and systematic review. Health Technol Assess 1999;3:1-156. Kasper J, Scheibler F, Légaré F, et al. Turning signals into meaning 'Shared decision maki...
AutoMS Project Links
http://www.automsproject.org/links.html
Autonomy preferences, risk knowledge and decision-making performance in multiple sclerosis patients. Http:/ www.ghst.de/en/index.php. Foundation IRCCS Neurological Institute C. Besta, Milan. Http:/ www.istituto-besta.it/. Institute for Neuroimmunology and Clinical MS Research (inims). Http:/ www.inims.de/. Http:/ www.cochrane.org/. Http:/ www.aism.it/. SIG Patient Education in MS. Http:/ www.eurims.org/index.php?
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AutoMS Project
Autonomy preferences, risk knowledge and decision-making performance in multiple sclerosis patients. Why the AutoMS project? We will linguistically validate. By consensus on relevant risk knowledge for relapsing-remitting (RR) MS patients and based on previous tools, we will produce and validate a risk knowledge questionnaire for RRMS patients (RRMS-IRKQ). Basic work will be performed in Hamburg and Milan, while instruments will be prospectively validated in six languages: German, Italian, Dutch, French,...
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