avacamille.org

Ava Camille

Spring 2012 and Yard Sale Fundraiser! Luckily, Ava does not suffer from the allergies that Mommy and Daddy do. :(. The 5th birthday bash went out off without a hitch. Ava saved and received enough birthday cash to buy her only wish, an ipod touch. She is 5 going on 15. :). Been medicated, we wanted to give her a break and see how she responds. We will visit Utah again in June to evaluate this change, but overall, feel that if she remains active, we hope to not see too much of a change in muscle mass.

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Ava Camille | avacamille.org Reviews

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Spring 2012 and Yard Sale Fundraiser! Luckily, Ava does not suffer from the allergies that Mommy and Daddy do. :(. The 5th birthday bash went out off without a hitch. Ava saved and received enough birthday cash to buy her only wish, an ipod touch. She is 5 going on 15. :). Been medicated, we wanted to give her a break and see how she responds. We will visit Utah again in June to evaluate this change, but overall, feel that if she remains active, we hope to not see too much of a change in muscle mass.

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1 ava camille

2 happy spring

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4 xxoo

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6 2 comments

7 knock on wood

8 unbelievable

9 love to all

10 3 comments

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Ava Camille | avacamille.org Reviews

https://avacamille.org

Spring 2012 and Yard Sale Fundraiser! Luckily, Ava does not suffer from the allergies that Mommy and Daddy do. :(. The 5th birthday bash went out off without a hitch. Ava saved and received enough birthday cash to buy her only wish, an ipod touch. She is 5 going on 15. :). Been medicated, we wanted to give her a break and see how she responds. We will visit Utah again in June to evaluate this change, but overall, feel that if she remains active, we hope to not see too much of a change in muscle mass.

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ringosrattales.blogspot.com

Ringo's Rat Tales: February 2012

http://ringosrattales.blogspot.com/2012_02_01_archive.html

An adventure with some rambunctious little rodents. Because our lives have been overwhelmingly impacted by such a rare disease, I've decided to try and raise awareness and ask people to be advocates for patients with rare diseases. There are several ways to do this:. 1) Support research and vote accordingly. Stem cell research and similar issues are a hot topic, I know.but until you've had a loved with life threatening illness, you can't begin to imagine the lengths you'd go to to save their lives. Also,...

ringosrattales.blogspot.com

Ringo's Rat Tales: Rare Disease Day

http://ringosrattales.blogspot.com/2012/02/rare-disease-day.html

An adventure with some rambunctious little rodents. Because our lives have been overwhelmingly impacted by such a rare disease, I've decided to try and raise awareness and ask people to be advocates for patients with rare diseases. There are several ways to do this:. 1) Support research and vote accordingly. Stem cell research and similar issues are a hot topic, I know.but until you've had a loved with life threatening illness, you can't begin to imagine the lengths you'd go to to save their lives. Also,...

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Spring 2012 and Yard Sale Fundraiser! Luckily, Ava does not suffer from the allergies that Mommy and Daddy do. :(. The 5th birthday bash went out off without a hitch. Ava saved and received enough birthday cash to buy her only wish, an ipod touch. She is 5 going on 15. :). Been medicated, we wanted to give her a break and see how she responds. We will visit Utah again in June to evaluate this change, but overall, feel that if she remains active, we hope to not see too much of a change in muscle mass.

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