caitlynsfamily.blogspot.com
Caitlyn's Family: March 2011
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Monday, March 14, 2011. Fight of a Lifetime. Five years ago, I never knew I was in for the fight of a lifetime. Not my lifetime, but Caitlyn's. The fight for quality and fairness, and all because of something she was born with! I volunteer on the state level to help advocate for the rights of people with disabilities. I was asked to write our story on services and what they mean to us. So, I am sharing it here. Thank you for your time. Subscribe to: Posts (Atom). View my complete profile.
lifelesstypical.com
The Robertson Family: June 2014
http://www.lifelesstypical.com/2014_06_01_archive.html
Thursday, June 19, 2014. We had every intention of being there for the welcome back portion as we had been last year. but we got a late start saturday morning and then hit traffic and then my flip flop broke and then we got there and it was over. but there were still hugs all around-some playing in the sand, visiting, chip eating and laughs were had. Colleen and jared were there with claire and chloe. they make me smile-for so many reasons. It is comfortable. it is easier. it is normal. Oops, missed May.
lifelesstypical.com
The Robertson Family: January 2014
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Sunday, January 26, 2014. I ran 10 miles today. definitely procrastinated getting out there but finally did. it was a gorgeous day and under 50 degrees, just like i like it. this time i drove to the gym and started there-the iron horse trail goes right by the parking lot so it is very convenient. and im so so tired of the trail from home to there-ive run it too many times to count now. Hope you're having a great run! Which made me smile. then a co worker texted me "you are pretty f*#! And that she runs p...
lifelesstypical.com
The Robertson Family: September 2014
http://www.lifelesstypical.com/2014_09_01_archive.html
Tuesday, September 30, 2014. What would you give? And then a fleeting thought goes to my daughter. my avery-because she isnt doing what i did when i was her age. not even close. and even if she were, she cant tell me. she cannot speak. imagine that. really think about it. So how does this not speaking thing work? We will wear a sticker that says ¨im not speaking for rett syndrome, ask me why! Wanna have your mind blown? Tuesday, September 2, 2014. Ive been known to utter the phrase ¨i hate people...
lifelesstypical.com
The Robertson Family: April 2014
http://www.lifelesstypical.com/2014_04_01_archive.html
Wednesday, April 23, 2014. An email in my inbox today broke it down. Congratulations on finishing the 2014 Boston Marathon! In Gender 13846/14356 (Female). In Division 6729/6979 (F18-39 Age Group). It made me laugh. I knew the 6:02:09 and I knew there werent that many runners coming in behind me-but less than 1000! In a field of nearly 32,000! Too funny. and it is so not fair that im up against 18 year olds! There are a lot of reasons for my lack of speed-. I wanted to really take it all in-again-and foc...
lifelesstypical.com
The Robertson Family: January 2015
http://www.lifelesstypical.com/2015_01_01_archive.html
Tuesday, January 13, 2015. It is hard to believe it has been nearly 6 weeks since I last posted here. i have thought a lot about why.no time, the crazy of the holidays, that i dont feel like i need this place as much as i once did. it is probably all of those things equally with a little bit of "things are kind of normal and good right now". I have started calling her "sweet sweet". i dont know when that started, but i know its because im seeing more of my sweet, smiley girl. there are more momen...Calm ...
lifelesstypical.com
The Robertson Family: thanksgiving and the blues
http://www.lifelesstypical.com/2014/11/thanksgiving-and-blues.html
Saturday, November 29, 2014. Thanksgiving and the blues. We had another fabulous thanksgiving. food for days, great wine and our fabulous family. we hosted reds grandmother (Franny), his parents, his two brothers plus their wives and two nieces. we were just missing his sister and her family, and Barb of course. Our dinner was awesome, even though i totally butchered the potatoes (turns out you have to mash them when they are piping hot! And listening to holiday music. i was full of holiday spirit. Olive...
lifelesstypical.com
The Robertson Family: July 2015
http://www.lifelesstypical.com/2015_07_01_archive.html
Tuesday, July 7, 2015. Isn't it funny that we don't count the day of our birth as our first birth day? That we wait one whole year before we really celebrate? Shouldn't the actual birth day count? I remember so well the night before-as much as the day of. i have written about it almost every year. the food I ate, the forced contractions on the couch (that we still own and is still hanging in there) and trying to sleep that night knowing my life would change forever the next day. It is so much better.
penniesforerett.blogspot.com
Pennies for Rett: April 2011
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Pennies for Rett January 2011. Look at all of the pennies I have collected so far! Wednesday, April 6, 2011. My Pennies for Rett Video. Monday, April 4, 2011. I got lots of coins this week at school doing Pennies for Rett! Subscribe to: Posts (Atom). Rett Syndrome on The View 1/28/11. Girl Power 2 Cure. Girl Power 2 Cure. Runner Spotlight: Molly Barker. Quest for a Cure 2013! My Pennies for Rett Video. There was an error in this gadget. Simple theme. Powered by Blogger.
penniesforerett.blogspot.com
Pennies for Rett: March 2011
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Pennies for Rett January 2011. Look at all of the pennies I have collected so far! Monday, March 7, 2011. Rockin for Rett 2011. I know this is early but I cannot wait for rockin for Rett. My cousin Rachel and I are having a cupcake stand. We are going to even make cupcakes for dogs. pupcakes ha ha. mom is going to e mail Gorge Town cupcakes the DC cupcakes show to see if they will donate something for the auction. I am going to burst. We will definitely get close to curing Rett. Subscribe to: Posts (Atom).