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Baby Allison

Well, we have known that Allison has had some trouble holding her head up straight, but over time it has gotten more severe. She will be starting some more intensive physical therapy this coming Monday to help her gain the strength to overcome this condition that they call torticollis. Hopefully she does well. She has also been moving in ways that are a bit concerning to the doctors. She is scheduled for an EEG ( Electroencephalography). On the Thursday that follows to rule out possible seizures. Posted ...

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Baby Allison | babyallisonsstory.blogspot.com Reviews

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Well, we have known that Allison has had some trouble holding her head up straight, but over time it has gotten more severe. She will be starting some more intensive physical therapy this coming Monday to help her gain the strength to overcome this condition that they call torticollis. Hopefully she does well. She has also been moving in ways that are a bit concerning to the doctors. She is scheduled for an EEG ( Electroencephalography). On the Thursday that follows to rule out possible seizures. Posted ...

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1 baby allison

2 torticollis and eeg

3 no comments

4 upswing

5 failure to thrive

6 amazing girl

7 1 comment

8 breathing issue update

9 quite a scare

10 keeping alli safe

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Baby Allison | babyallisonsstory.blogspot.com Reviews

https://babyallisonsstory.blogspot.com

Well, we have known that Allison has had some trouble holding her head up straight, but over time it has gotten more severe. She will be starting some more intensive physical therapy this coming Monday to help her gain the strength to overcome this condition that they call torticollis. Hopefully she does well. She has also been moving in ways that are a bit concerning to the doctors. She is scheduled for an EEG ( Electroencephalography). On the Thursday that follows to rule out possible seizures. Posted ...

INTERNAL PAGES

babyallisonsstory.blogspot.com

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Baby Allison: April 2011

http://babyallisonsstory.blogspot.com/2011_04_01_archive.html

Posted by Alexis and Steve. They have bumped her up to 10mL of breast milk every three hours! Posted by Alexis and Steve. Posted by Alexis and Steve. The Next Big Hurdle. They have been trying to get her weened off all of that. And she is as cute as can be :) It is has been really nice to be able to hold her all the time now and she continues to look better and better everyday. Posted by Alexis and Steve. I got to hold her today. Twice! Posted by Alexis and Steve. We are still waiting to be able to hold ...

2

Baby Allison: June 2011

http://babyallisonsstory.blogspot.com/2011_06_01_archive.html

Thank goodness the insurance covers it. Posted by Alexis and Steve. Subscribe to: Posts (Atom). University of California, San Francisco. Picture Window template. Template images by -ASI-.

3

Baby Allison: March 2011

http://babyallisonsstory.blogspot.com/2011_03_01_archive.html

Fluid levels look to have stabilized at the 26cm after the jump last week. No jump this week, we are still at 26 - Woo Hoo! Posted by Alexis and Steve. All other testing they did today was great. Allison is doing a great job growing and moving. Her heart rate is where it belongs and so is mine. No visible signs of preterm labor thus far. Posted by Alexis and Steve. Another good check up today! So, the only bad news we have is that the bills are now starting to file in. Yikes! Posted by Alexis and Steve.

4

Baby Allison: Amazing Girl!

http://babyallisonsstory.blogspot.com/2011/09/amazing-girl.html

Had our follow up appointment with Dr. G (Alli's Surgeon) today. He looked at her chest x-ray and told me that she is perfect! I can hardly believe it, but he said that we no longer need to follow up with him unless we have concerns. Her lungs have properly filled her chest cavity, her heart has perfectly moved into the correct position, and her diaphragm has just the right symmetry. She hardly vomits at all anymore, and is growing great! Allison is the most amazing girl! Posted by Alexis and Steve.

5

Baby Allison: February 2011

http://babyallisonsstory.blogspot.com/2011_02_01_archive.html

Measurements are still great! She is now 2lbs 12oz with an LHR of 3.6 and liver still down where it belongs. Mommy looks good too - perfect blood sugar and blood pressure levels. One more stretch to a regular check up on the 16th, then we start having appointments twice a week for fetal monitoring and weekly ultrasounds. Posted by Alexis and Steve. Posted by Alexis and Steve. Meeting the Surgeon 2/2/11. Next we headed over to Fetal Medicine for the routine check-up. First they checked on me - weight,...

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Confirmation | Finley Anabelle's Blog

https://finleyanabelle.wordpress.com/2014/06/20/confirmation

For Expecting CDH parents. Finley Anabelle's Blog. Confirmation June 20, 2014. 8212; lizdooley @ 10:55 am. We got the call this morning. The second sample confirmed the findings that Finley has this genetic mutation on the WT1 gene (I believe she said something about Xon10 – will see when she sends me the email). Part of me had been hoping it would come back different. So here we are. A bunch of tests and follow up Doctor appointments, but I must remind myself nothing really has changed. Notify me of new...

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https://searchourhearts.wordpress.com/survivor-blogs

Skip to primary content. Submit or Remove a Blog. Born May 18, 2012 – Atlanta, GA. Born May 2, 2012 Seattle, WA. Born March 31, 2012. Born February 10, 2012 United Kingdom This child is the second CDH baby in this family. Born January 2, 2012. Born December 6, 2011 Medical University of South Carolina. Born October 25, 2011 St. Alphonsus, Boise, ID. Born October 25, 2011 Seattle Children’s Hospital. October 24, 2011 Kentucky Children’s Hospital. August 19, 2011 Children’s Hospital Birmingham. July 8, 2010.

finleyanabelle.wordpress.com

April | 2014 | Finley Anabelle's Blog

https://finleyanabelle.wordpress.com/2014/04

For Expecting CDH parents. Finley Anabelle's Blog. Processing new information: WT1? April 26, 2014. Filed under: Choledochal Cyst. 8212; lizdooley @ 7:47 am. What hurts my heart the most is the news that Finley now has a 50% chance of having a baby with CDH herself. Now before I return to a place of, yes, remember what I just write about God being bigger? About giving my worry? About him having answered so many prayers for her already? Rejoice in the Lord always. I will say it again: Rejoice! Please join...

finleyanabelle.wordpress.com

July | 2014 | Finley Anabelle's Blog

https://finleyanabelle.wordpress.com/2014/07

For Expecting CDH parents. Finley Anabelle's Blog. July 23, 2014. 8212; lizdooley @ 6:17 pm. 8220;All we need is just a little patience”. You are welcome for getting GNR stuck in your heads now. Finley woke up with a stomach virus, so we had to reschedule. Again, I felt the prayers today because I was really, really unhappy about the timing of this and having to push her appointment out further. This has been hanging out over our heads for too long. What can I do? Prayer requests for Thursday. 4 Healthy ...

finleyanabelle.wordpress.com

February | 2014 | Finley Anabelle's Blog

https://finleyanabelle.wordpress.com/2014/02

For Expecting CDH parents. Finley Anabelle's Blog. Where God leads you. February 21, 2014. Filed under: cdh awareness. 8212; lizdooley @ 11:31 am. Tags: 20 week ultrasound. When we were given this diagnosis I never gave much thought to why me. Why not me? So many sad, tragic things happen to much better people in this life. Why not me? But more often, since it all happened and I have seen so many babies not make it – I do ask myself – why did Finley make it? Why are we so blessed? 4 years later…. Well, t...

finleyanabelle.wordpress.com

March | 2014 | Finley Anabelle's Blog

https://finleyanabelle.wordpress.com/2014/03

For Expecting CDH parents. Finley Anabelle's Blog. My CDH Awareness Day. March 31, 2014. 8212; lizdooley @ 9:31 am. I penned this as a Facebook note, but wanted to share on my blog too…. 4 years ago today I heard the words congenital diaphragmatic hernia for the first time. But it wasn’t. A few years earlier I had a wonderful PT who mentioned to me that she had had a baby that died. Since I first learned who to say the words congenital diaphragmatic hernia correctly, I have learned so many things. Whatev...

finleyanabelle.wordpress.com

Results…and relief. | Finley Anabelle's Blog

https://finleyanabelle.wordpress.com/2014/08/15/resultsand-relief

For Expecting CDH parents. Finley Anabelle's Blog. Resultsand relief. August 15, 2014. 8212; lizdooley @ 2:05 pm. After a long wait and tortuous ultrasound (the man kept telling Finley it shouldn’t hurt. But it did. Her whimpering and cries of pain just about broke my heart for the millionth time for her.) We went to clinic and met with Nurse Julie. She had to run back down to get the results – but she said it’s ok. Everything in the bowels looks. 2 Responses to “Resultsand relief.”. God is so gracious!

finleyanabelle.wordpress.com

For Expecting CDH parents | Finley Anabelle's Blog

https://finleyanabelle.wordpress.com/for-expecting-cdh-parents

For Expecting CDH parents. Finley Anabelle's Blog. For Expecting CDH parents. March 12, 2012. I have typed up my NICU advice list a few times, so I thought it might be helpful for other parents to see my NICU must-have’s list. I’ll add to this as I think of more things. Hands free pumping bra and nursing cover – so I could pump right next to Finley but could have my hands free to surf internet or read. A little notebook with inspirational verses/quotes. This was great for containment and positioning and ...

finleyanabelle.wordpress.com

7/24 | Finley Anabelle's Blog

https://finleyanabelle.wordpress.com/2014/07/07/724

For Expecting CDH parents. Finley Anabelle's Blog. 7/24 July 7, 2014. 8212; lizdooley @ 8:09 am. 7 Responses to “7/24”. July 7, 2014 at 8:35 am. Praying for you all! So sorry you are in a place of unknowns again. Praying you can rest in HIM. July 7, 2014 at 8:38 am. Had a dream last night that she needed another surgery but for some reason Dr bliss was up visiting and he was going to do it. Wasn’t the best dream, but I remember thinking how god had provided for us again. July 7, 2014 at 9:15 am. Mass Gen...

finleyanabelle.wordpress.com

He is with you… | Finley Anabelle's Blog

https://finleyanabelle.wordpress.com/2014/08/05/he-is-with-you

For Expecting CDH parents. Finley Anabelle's Blog. He is with you… August 5, 2014. 8212; lizdooley @ 4:48 pm. Those words feel very sweet. Finley’s X-Ray went quickly and though we haven’t heard the results, Dr Liz looked at it and after having seen many of her chest X-Rays (both with bowel and other organs up and not) and I felt like it looked good. The Radiologists asked what those clips were and I explained that she was born with CDH and see that healthy looking lung there? Be praying for that. So now...

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babyallisonsstory.blogspot.com

Baby Allison

Well, we have known that Allison has had some trouble holding her head up straight, but over time it has gotten more severe. She will be starting some more intensive physical therapy this coming Monday to help her gain the strength to overcome this condition that they call torticollis. Hopefully she does well. She has also been moving in ways that are a bit concerning to the doctors. She is scheduled for an EEG ( Electroencephalography). On the Thursday that follows to rule out possible seizures. Posted ...

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