bandagedheartjourneys.blogspot.com
bandagedheartjourneysCHD, HLHS, Hypoplastic Left Heart Syndrome, CHOP
http://bandagedheartjourneys.blogspot.com/
CHD, HLHS, Hypoplastic Left Heart Syndrome, CHOP
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bandagedheartjourneys | bandagedheartjourneys.blogspot.com Reviews
https://bandagedheartjourneys.blogspot.com
CHD, HLHS, Hypoplastic Left Heart Syndrome, CHOP
bandagedheartjourneys.blogspot.com
bandagedheartjourneys: It's Been Too Long........
http://www.bandagedheartjourneys.blogspot.com/2013/07/its-been-too-long.html
July 9, 2013. It's Been Too Long. It has been months since I have updated this blog again. The good news is that the reason why is because the girls have been so busy with all of their activities! Having 2 kids involved in sports, and extracurricular activities sure keep mommy and daddy on their toes! I am posting a few recent pictures for you all to enjoy. We hope you have a safe, happy, and healthy summer! Last day of School 2013. Subscribe to: Post Comments (Atom). View my complete profile.
bandagedheartjourneys: Heart Moms Unite!!
http://www.bandagedheartjourneys.blogspot.com/2012/11/heart-moms-unite.html
November 16, 2012. Last night I had dinner with some of the most amazing moms around. Not only are they amazing, but they all have children with HLHS. It was so wonderful to network with a group of ladies who share the same journey that I do. We had many great conversations, and lots of laughs! Hope to see you all again VERY soon! Subscribe to: Post Comments (Atom). View my complete profile. Picture Window template. Template images by sbayram.
bandagedheartjourneys: CHD Awareness Week 2013
http://www.bandagedheartjourneys.blogspot.com/2013/02/chd-awareness-week-2013.html
February 7, 2013. CHD Awareness Week 2013. This week February 7-14, 2013 is Congenital Heart Defect Awareness Week. CHDs are the most common birth defect in the U.S. 1 in 100 babies born each year will have some type of CHD. 1.8 million Americans alive today have CHDs. CHDs are the leading cause of all infant deaths in the U.S., yet CHD research is grossly underfunded relative to the disease prevalence. Subscribe to: Post Comments (Atom). View my complete profile.
bandagedheartjourneys: PTH and Calcium
http://www.bandagedheartjourneys.blogspot.com/2012/10/pth-and-calcium.html
October 31, 2012. We received a call from Endocrinology at CHOP today. Lily's PTH levels are high, and her Calcium levels are low. They want to start her on 500mg of calcium carbonate daily and retest in 2 weeks. If her Calcium levels don't come up, then they may have to order more testing to find out why? Have any other HLHS families had experience with low calcium or high PTH? Subscribe to: Post Comments (Atom). View my complete profile. Picture Window template. Template images by sbayram.
bandagedheartjourneys: Today's CHOP visit
http://www.bandagedheartjourneys.blogspot.com/2012/10/today-chop-visit.html
October 18, 2012. Well, we survived! Lily was first evaluated by Immunology. They follow the kids for any protein losing conditions as well as any other immune system or allergy disorders. Dr. Heimal feet that Lit looked great, no indication of PLE or any other immune deficiencies. All and all, it was a very positive visit and we don't have to come back to SVSP clinic for another 2-3 years. Just regular cardiology followups. Below are some pictures from our day. Subscribe to: Post Comments (Atom).
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xaviersheartjourney.blogspot.com
Xtra Special Heart: Recovery
http://xaviersheartjourney.blogspot.com/2015/04/recovery.html
This is the story of Xavier, his strength and his fight. Courage is not the absence of fear, but rather the judgment that something else is more important than fear. The way is not in the sky. The way is in the heart. Sunday, April 26, 2015. Re-cov-er-y: 1. The act or process of becoming healthy after an illness or injury. We all find ourselves struggling to regain possession of what we lost. BUT catching small little flickers of what we gained. For although we find ourselves on the front lines of recove...
xaviersheartjourney.blogspot.com
Xtra Special Heart: March 2014
http://xaviersheartjourney.blogspot.com/2014_03_01_archive.html
This is the story of Xavier, his strength and his fight. Courage is not the absence of fear, but rather the judgment that something else is more important than fear. The way is not in the sky. The way is in the heart. Saturday, March 1, 2014. My strong warrior.do you know how amazing you are? How strong and how special? You've had such a huge impact on our lives.you made me better! From the moment you were born you kicked serious butt! Your still working on learning to talk but it's coming. Your so s...
xaviersheartjourney.blogspot.com
Xtra Special Heart: September 2014
http://xaviersheartjourney.blogspot.com/2014_09_01_archive.html
This is the story of Xavier, his strength and his fight. Courage is not the absence of fear, but rather the judgment that something else is more important than fear. The way is not in the sky. The way is in the heart. Monday, September 1, 2014. After surgery and recovery we have Xavier lined up for a preschool. We know that this will stimulate his development even further. We are so excited to watch him grow and mature in an educational setting. Having a child with medical needs is difficult and life cha...
xaviersheartjourney.blogspot.com
Xtra Special Heart: August 2014
http://xaviersheartjourney.blogspot.com/2014_08_01_archive.html
This is the story of Xavier, his strength and his fight. Courage is not the absence of fear, but rather the judgment that something else is more important than fear. The way is not in the sky. The way is in the heart. Thursday, August 28, 2014. Time doesn't care what your plans are, what you want to do, what you dream of doing, how stressed out you are or how you don't know if you can deal with this again.Time marches on.consistent, with a beat and a cadence.tick, tock, tick, tock. But when that call cam...
xaviersheartjourney.blogspot.com
Xtra Special Heart: One week later....
http://xaviersheartjourney.blogspot.com/2014/10/one-week-later.html
This is the story of Xavier, his strength and his fight. Courage is not the absence of fear, but rather the judgment that something else is more important than fear. The way is not in the sky. The way is in the heart. Wednesday, October 1, 2014. Posted by Xtra Special Heart. October 2, 2014 at 4:45 AM. What a nice blog. its good to hear from Mommy and Daddy. Xaiver is a super hero and is loved so much from so many people, I get on fb to check updates and it looks like I am on his page. So muc...The Child...
xaviersheartjourney.blogspot.com
Xtra Special Heart: February 2015
http://xaviersheartjourney.blogspot.com/2015_02_01_archive.html
This is the story of Xavier, his strength and his fight. Courage is not the absence of fear, but rather the judgment that something else is more important than fear. The way is not in the sky. The way is in the heart. Sunday, February 1, 2015. Have you ever stood in the same place for so long that it starts to feel like the earth is moving under you? Stood still for so long that you begin to lose your balance, you begin to lose track of your place? Posted by Xtra Special Heart. Subscribe to: Posts (Atom).
xaviersheartjourney.blogspot.com
Xtra Special Heart: The warmth of the sun
http://xaviersheartjourney.blogspot.com/2014/11/the-warmth-of-sun.html
This is the story of Xavier, his strength and his fight. Courage is not the absence of fear, but rather the judgment that something else is more important than fear. The way is not in the sky. The way is in the heart. Saturday, November 22, 2014. The warmth of the sun. There are defining moments in life. Seconds that change everything. The term "in a blink of an eye" is sickeningly accurate. I am fully aware that our lives will NEVER be the same again. Poor little guy has been through so much and still h...
xaviersheartjourney.blogspot.com
Xtra Special Heart: April 2015
http://xaviersheartjourney.blogspot.com/2015_04_01_archive.html
This is the story of Xavier, his strength and his fight. Courage is not the absence of fear, but rather the judgment that something else is more important than fear. The way is not in the sky. The way is in the heart. Sunday, April 26, 2015. Re-cov-er-y: 1. The act or process of becoming healthy after an illness or injury. We all find ourselves struggling to regain possession of what we lost. BUT catching small little flickers of what we gained. For although we find ourselves on the front lines of recove...
xaviersheartjourney.blogspot.com
Xtra Special Heart: I mourn....
http://xaviersheartjourney.blogspot.com/2014/05/i-mourn.html
This is the story of Xavier, his strength and his fight. Courage is not the absence of fear, but rather the judgment that something else is more important than fear. The way is not in the sky. The way is in the heart. Monday, May 26, 2014. Three years later and I find that I am still in mourning. In labor with Xavier! He is finally here! Recovering from his Norwood. Recovering from his Glen. Recovering from his valve repair/pacemaker. Posted by Xtra Special Heart. May 27, 2014 at 4:55 PM. For I know the ...
xaviersheartjourney.blogspot.com
Xtra Special Heart: June 2013
http://xaviersheartjourney.blogspot.com/2013_06_01_archive.html
This is the story of Xavier, his strength and his fight. Courage is not the absence of fear, but rather the judgment that something else is more important than fear. The way is not in the sky. The way is in the heart. Thursday, June 27, 2013. And the beat goes on. So here we sit, at CHOP doing all we can to heal our mighty warrior.working hard to stay in rhythm and to stay in sync.AND THE BEAT GOES ON. Posted by Xtra Special Heart. Tuesday, June 18, 2013. I WILL NOT be shaken. 3 Getting through the scar ...
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The Children’s Hospital at Westmead
The Children's Hospital at Westmead. How your donations help. About The Children’s Hospital at Westmead. About the Sydney Children’s Hospitals Network. Make a regular gift. Tributes – In memoriam. Donating goods and services. How your donations help. About The Children’s Hospital at Westmead. About the Sydney Children’s Hospitals Network. Make a regular gift. Tributes – In memoriam. Donating goods and services. 2 Celebrating 20 Years. 3 Team Bandaged Bear. Click here to donate!
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bandagedheartjourneys.blogspot.com
bandagedheartjourneys
July 9, 2013. It's Been Too Long. It has been months since I have updated this blog again. The good news is that the reason why is because the girls have been so busy with all of their activities! Having 2 kids involved in sports, and extracurricular activities sure keep mommy and daddy on their toes! I am posting a few recent pictures for you all to enjoy. We hope you have a safe, happy, and healthy summer! Last day of School 2013. February 7, 2013. CHD Awareness Week 2013. This week February 7-14, 2013...
bandagedheartliberal.wordpress.com
bandagedheartliberal
High School Rape threats (Happy Birthday B! I don’t think it does. And its terrifying because he said this over a room full of students, several of whom clearly found the prospect of my rape pretty funny. And you know what makes it worse? This entry was posted in Uncategorized. February 11, 2015. 50 shades of So Not Over This. TW: Abusive relationships, emotional/psychological abuse. And then 50 Shades of Grey came out and it was pretty depressing. The internet was pretty sparse with resources we could j...
Adopt, Foster - Bandaged Paws Animal Rescue - Grande Prairie, AB
Bandaged Paws Animal Rescue in Grande Prairie.
