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Goldenhar Syndrome Support NetworkOur goal is to provide support and information to families and individuals affected by Goldenhar Syndrome and its related conditions.
http://barbmiles.tripod.com/
Our goal is to provide support and information to families and individuals affected by Goldenhar Syndrome and its related conditions.
http://barbmiles.tripod.com/
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Goldenhar Syndrome Support Network | barbmiles.tripod.com Reviews
https://barbmiles.tripod.com
Our goal is to provide support and information to families and individuals affected by Goldenhar Syndrome and its related conditions.
barbmiles.tripod.com
Dysmorphic Child
http://barbmiles.tripod.com/dysmorphic_child.htm
Goldenhar Syndrome Support Network Society. January 22, 2006. Michael J. Goldberg, M.D. Professor of Orthopedic Surgery. Tufts University School of Medicine. ASYMMETRY OF THE FACE. Goldenhar Syndrome: Oculoauriculovertebral Dysplasia. It has been suggested that the characteristic asymmetrical malformations of the face, the eye, and the ear were first recorded by the nineteenth-century German physician Carl Ferdinand von ArIt, but it took until 1952 for French ophthalmologist Maurice Goldenhar. The classi...
Welcome
http://barbmiles.tripod.com/welcome.htm
Goldenhar Syndrome Support Network Society. January 22, 2006. Hello and Welcome to the Goldenhar Syndrome Support Network. I started this organization to fill a gap in the support system. When my daughter was born in. Golden, British Columbia, Canada. In July of 1995, I had no idea what Goldenhar Syndrome was, and even less an idea of how to get more information about it. Now, ten years later my goals are coming together, I have set up two mailing lists. For her this means, she has. Her right thumb was m...
Goldenhar Syndrome Support Network
http://barbmiles.tripod.com/index.html
Goldenhar Syndrome Support Network Society. January 22, 2006. January 22, 2006. Goldenhar Syndrome Support Network Society. Free Mailing List Subscription:. Http:/ groups.yahoo.com/group/goldenharsyndrome. Mailing List for Personally Affected Members Only:. Http:/ groups.yahoo.com/group/goldenharadults/. Our goal is to provide Support and Information to families and individuals involved with Goldenhar Syndrome and its many related conditions. For more information.).
Therapy
http://barbmiles.tripod.com/therapy.htm
Goldenhar Syndrome Support Network Society. January 22, 2006. Due to the various physical difficulties involved with Goldenhar Syndrome, many types of therapy are recommended for our children. Some include:. Speech Therapy (to help develop both feeding techniques, and speech). Physical Therapy (gross motor skills). Occupational Therapy (fine motor skills). With always being on the lookout for great educational toys, games and books, my husband found a catalogue for Discovery Toys for me.
Resources
http://barbmiles.tripod.com/resources.htm
Goldenhar Syndrome Support Network Society. February 22, 2006. Below you will find various other Organizations that may be of use to you. Please be sure to inform us if you think we have missed any that should be listed here. United States of America. Let's Face It, Inc. Directory of resources for specific conditions. The Children's Craniofacial Association. Has published a series of 'A Guide to understanding' booklets for parents, which explain craniofacial conditions and their treatment. Phoenix, AZ 85...
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Goldenhar Syndrome Support Network
Goldenhar Syndrome Support Network Society. January 22, 2006. January 22, 2006. Goldenhar Syndrome Support Network Society. Free Mailing List Subscription:. Http:/ groups.yahoo.com/group/goldenharsyndrome. Mailing List for Personally Affected Members Only:. Http:/ groups.yahoo.com/group/goldenharadults/. Our goal is to provide Support and Information to families and individuals involved with Goldenhar Syndrome and its many related conditions. For more information.).
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