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Basekamp Laundry Mountain | The tapestry of the life of a medically complex family

The tapestry of the life of a medically complex family

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Basekamp Laundry Mountain | The tapestry of the life of a medically complex family | basekamper.com Reviews

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The tapestry of the life of a medically complex family

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1

Memorial Day Modified | Basekamp Laundry Mountain

https://basekamper.com/2014/06/01/memorial-day-modified

The tapestry of the life of a medically complex family. June 1, 2014. Often families of a child with special healthcare needs will celebrate holidays or family events in ways that are different from others. My family has 2 children with trachs, one on full-time oxygen, and another who has severe asthma and heat and exercise intolerance. These health characteristics change the way we celebrate but do not lessen participation- different, not less. 2 Years and STILL Screwed. Leave a Reply Cancel reply.

2

“the Ugly” | Basekamp Laundry Mountain

https://basekamper.com/category/the-ugly

The tapestry of the life of a medically complex family. Archive for the ‘“the Ugly”’ Category. I had to move a toy there. I took the fire station and moved it to the spot where his dog bed was until this morning. Each time I pass through the study, sobs escape, but having the visual space filled helps…. My oldest finished high school and went to college out of state. His visits brought increased excitement and unending smiles from Jake. After a visit, Jake would run to the kitchen with every next...Jake ...

3

Special Needs | Basekamp Laundry Mountain

https://basekamper.com/category/special-needs

The tapestry of the life of a medically complex family. Archive for the ‘Special Needs’ Category. Often families of a child with special healthcare needs will celebrate holidays or family events in ways that are different from others. My family has 2 children with trachs, one on full-time oxygen, and another who has severe asthma and heat and exercise intolerance. These health characteristics change the way we celebrate but do not lessen participation- different, not less. Tonight, for the first time in ...

4

pet | Basekamp Laundry Mountain

https://basekamper.com/category/pet

The tapestry of the life of a medically complex family. Archive for the ‘pet’ Category. I had to move a toy there. I took the fire station and moved it to the spot where his dog bed was until this morning. Each time I pass through the study, sobs escape, but having the visual space filled helps…. My oldest finished high school and went to college out of state. His visits brought increased excitement and unending smiles from Jake. After a visit, Jake would run to the kitchen with every next arriva...Jake ...

5

Environmental Challenges | Basekamp Laundry Mountain

https://basekamper.com/category/environmental-challenges

The tapestry of the life of a medically complex family. Archive for the ‘Environmental Challenges’ Category. Often families of a child with special healthcare needs will celebrate holidays or family events in ways that are different from others. My family has 2 children with trachs, one on full-time oxygen, and another who has severe asthma and heat and exercise intolerance. These health characteristics change the way we celebrate but do not lessen participation- different, not less. None of them good.

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Uncategorized | Pressure Support

https://pressuresupport.com/category/uncategorized

My boy's ventilator really blows. A Thank You and a Statement on the future of The Olson and Son Hopyard. I Originally posted this at the new Olsonandsonhopyard.com but the information is just as pertinent here. Karin and I also want to take this transition as an opportunity to recharge pressure support.com. New posts and possibly even new writers (hint hint) coming soon! Olson and Son Hopyard. Let me also start by saying that I am very happy with how well the website. 1,198 more words. July 21, 2016.

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A quick visit. | Pressure Support

https://pressuresupport.com/2015/04/17/a-quick-visit

My boy's ventilator really blows. It was 11:18pm when we went in to check on Liam. Now, with his temperature rising, the shivering motion that resolved so quickly in the morning was present and stronger. His rate of breathing was about three times what it should be. By a quarter to 12am we were calling 911. 8220;Even though he looks fine now, we haven’t gotten any answers as to what happened to cause him to get here. We made subtle changes to his vent settings only a few hours ago! The wait was kind of b...

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Liam | Pressure Support

https://pressuresupport.com/category/liam

My boy's ventilator really blows. The Year (so far) in Pictures. Full disclosure, If you follow me on Instagram ( pressuresupport. Or Twitter ( @pressuresupport). You’ve probably already seen most of this, But this way, you can see it again all in one place. I guess I just picked the wrong year to fall off of my blogging game, because Liam’s 6th year has been a pretty good one. His hips however are both dislocated. He’s still a rock star. Don’t care, I’m still walking. Yes other than that Liam stayed awa...

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photos | Pressure Support

https://pressuresupport.com/category/photos

My boy's ventilator really blows. Admittedly, it’s a lot of pressure and meaning to put on some ink under my skin. But that’s just it…. All of my Ink, Means something. Besides, that shop in town has a sign that says twenty dollar tuesdays for any words 5 letters or less.”. Yeah, good idea, that would be great.” I said waving her off and assuming we were joking, especially since I was due to be at work in less than an hour. “yeah, let’s get tattoos.”. Skin or tattoo ink. 8220;Ah, you must be E.W.O...I put...

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Liam the Ninja and his new Belt.  | Pressure Support

https://pressuresupport.com/2015/03/09/liam-the-ninja-and-his-new-belt

My boy's ventilator really blows. Liam the Ninja and his new Belt. We almost didn’t make it to see Walter at all. (You’ve heard me talk about Walter in my speech here. 8220;I’ll just text Walter that we aren’t going to make it. This is nuts, it’s going to be over before we even make it there.” She said. 8220;You made it! Walter wouldn’t have it though, and only a few minutes after we got settled the sensei addressed his students for the last time. A few minutes in to an already emotional speech...I don&#...

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fatherhood | Pressure Support

https://pressuresupport.com/tag/fatherhood

My boy's ventilator really blows. Admittedly, it’s a lot of pressure and meaning to put on some ink under my skin. But that’s just it…. All of my Ink, Means something. Besides, that shop in town has a sign that says twenty dollar tuesdays for any words 5 letters or less.”. Yeah, good idea, that would be great.” I said waving her off and assuming we were joking, especially since I was due to be at work in less than an hour. “yeah, let’s get tattoos.”. Skin or tattoo ink. 8220;Ah, you must be E.W.O...I put...

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tattoo | Pressure Support

https://pressuresupport.com/tag/tattoo

My boy's ventilator really blows. Admittedly, it’s a lot of pressure and meaning to put on some ink under my skin. But that’s just it…. All of my Ink, Means something. Besides, that shop in town has a sign that says twenty dollar tuesdays for any words 5 letters or less.”. Yeah, good idea, that would be great.” I said waving her off and assuming we were joking, especially since I was due to be at work in less than an hour. “yeah, let’s get tattoos.”. Skin or tattoo ink. 8220;Ah, you must be E.W.O...I put...

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The Names of Things | Pressure Support

https://pressuresupport.com/2014/08/18/the-names-of-things

My boy's ventilator really blows. The Names of Things. Elephant vs. Zebra., Monkey vs Buffalo, on and on it went until the winners were then put in again. Decision after decision until we were left with a winner. And his name is Anton. And after seeing the picture, when I tagged their handle, The good folks at the Roger Williams Park Zoo sent along a comment…. Here, I’ll let them tell you, Here’s the text of the email I got. To come visit the Zoo as our guests for the day. Let us know when you’d like to ...

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Eric Olson | Pressure Support

https://pressuresupport.com/author/pressuresupport

My boy's ventilator really blows. A Thank You and a Statement on the future of The Olson and Son Hopyard. I Originally posted this at the new Olsonandsonhopyard.com but the information is just as pertinent here. Karin and I also want to take this transition as an opportunity to recharge pressure support.com. New posts and possibly even new writers (hint hint) coming soon! Olson and Son Hopyard. Let me also start by saying that I am very happy with how well the website. 1,198 more words. July 21, 2016.

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Just another WordPress.com site. December 31, 2010. The closing of another year. Bring no remorse and shed no tear. A hard year for some friends we’ve lost. In our hearts their lives embossed. A good year for the friends we’ve made;. For out of hospitals we’ve stayed. A high school grad resides with here. Relaxing on his own “gap year”. Two four year olds, improving health,. Learning, growth, affection wealth. The three year old makes gains as well. Thriving, smiling, Momma’s belle. December 24, 2010.

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Basekamp Laundry Mountain | The tapestry of the life of a medically complex family

The tapestry of the life of a medically complex family. January 19, 2017. We sit at the end of an era of social progress and medical care access. I look in fear at the road ahead. If the changes in our healthcare since Nov 9th are any indication, we are on a downward spiral from access and availability toward a wasteland littered with the pages of equipment denials. Peace and health to you and your family. I will continue to fight for mine. September 7, 2014. His first few years there were multiple moves...

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