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Title: Biologics for Children with Rheumatic diseases,Keywords:Arthritis,register, uk, biologic, study, children

http://www.bcrdstudy.org/

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CONTACTS AT BCRDSTUDY.ORG

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https://bcrdstudy.org

Title: Biologics for Children with Rheumatic diseases,Keywords:Arthritis,register, uk, biologic, study, children

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1

BCRD

http://www.bcrdstudy.org/news.asp

Biologics for Children with Rheumatic Diseases. Read the latest on patient recruitment, centre approvals, and all other study progress. Data from the paediatric biologics registers: lay summaries. Spring 2014 Participant Newsletter. Autumn/Winter 2012 Participant Newsletter.

2

BCRD

http://www.bcrdstudy.org/datasecurity.asp

Biologics for Children with Rheumatic Diseases. How is it transferred? What happens to the data then? We use a form of technology called Secure Sockets Layer or SSL (often used by online banks) to encrypt data entered into the system and transfer it securely via the internet to staff working at the University of Manchester. This means that data is put into code and then ‘locked’ before it is sent across the internet.

3

BCRD

http://www.bcrdstudy.org/studyDetails.asp

Biologics for Children with Rheumatic Diseases. Short title: Safety and effectiveness of biologic treatments in children. Full title of the research: The Long term Safety and Efficacy of Biologic Therapies in Children with Rheumatic Diseases. REC Reference number : 09/H1008/137. UK CRN ID: 7725 ‘The Extended Biologics Study’. Download a Microsoft Powerpoint presentation outlining the study (12 slides).

4

BCRD

http://www.bcrdstudy.org/faq.asp

Biologics for Children with Rheumatic Diseases. Click on a question below to see the answer. When did the study start? Ethical approval for the study was given on 4th February 2010. Recruitment began in May 2010 and will continue for around five years, or until the recruitment target of 250 biologic participants and 250 methotrexate participants is reached. All participants enrolled in the study will be followed for at least 5 years. What is the study for? What are the inclusion criteria for the study?

5

BCRD

http://www.bcrdstudy.org/centres.asp

Biologics for Children with Rheumatic Diseases. Centres - map view. Map of centre locations. Please click on a centre to see more details.

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centre-for-adolescent-rheumatology.org centre-for-adolescent-rheumatology.org

About the Centre « Centre for Adolescent Rheumatology

http://www.centre-for-adolescent-rheumatology.org/about-the-centre

How will it affect. The mission of the Centre is to improve the health and well being of adolescents and young adults with arthritis and other rheumatic diseases through cutting-edge research. These research studies are so important in order to make predictions about the future and provide the best treatments today. It’s great so many young people consent to research studies. Patient involvement in focus groups is vital so we get research appropriate and relevant to young people. To achieve this ambitiou...

centre-for-adolescent-rheumatology.org centre-for-adolescent-rheumatology.org

How can I help « Centre for Adolescent Rheumatology

http://www.centre-for-adolescent-rheumatology.org/how-can-i-help

How will it affect. Young volunteers talk about getting involved in research projects. Taking part in research studies can mean anything from filling in a quick survey to giving just a teaspoon more blood when you next go to the clinic. 8220;I’m not a fan of needles but it didn’t hurt and it felt great to be contributing to developing better treatments and really making a difference. I helped on a project developing better drugs that dont make people feel sick. Please do let us know. Why the immune syste...

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BCRD

Biologics for Children with Rheumatic Diseases. The aim of the study. The study aims to recruit all children with JIA who are being newly treated with biologic agents (other than etanercept) in the UK and has a proposed sample size of 250 children. There is also a proposed sample size of 250 children for the control (Methotrexate) cohort. Tweets by @BCRD Study.

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