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Beautiful Billee Living with Lissencephaly

Follow our journey through the laughter and the tears.....

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Beautiful Billee Living with Lissencephaly | beautifulbillee.blogspot.com Reviews
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Follow our journey through the laughter and the tears.....
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1 good intentions
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5 stronger and stronger
6 more hospital appointments
7 birthday girl
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9 chat chat
10 classical music
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Beautiful Billee Living with Lissencephaly | beautifulbillee.blogspot.com Reviews

https://beautifulbillee.blogspot.com

Follow our journey through the laughter and the tears.....

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Beautiful Billee Living with Lissencephaly: Chat chat....

http://beautifulbillee.blogspot.com/2010/10/chat-chat.html

Beautiful Billee Living with Lissencephaly. Follow our journey through the laughter and the tears. Friday, October 22, 2010. Well the new exercises are going well! Billee has been really trying to talk lately. When I talk to her she looks me right in the eye and moves her mouth like she is really trying to talk back! We decreased her anti seizure meds again this week. In 3 weeks time she will be off the second one and then we will only have 1 left! Note: Only a member of this blog may post a comment.

2

Beautiful Billee Living with Lissencephaly: March 2010

http://beautifulbillee.blogspot.com/2010_03_01_archive.html

Beautiful Billee Living with Lissencephaly. Follow our journey through the laughter and the tears. Wednesday, March 31, 2010. Day 19 on MAPS. I was hoping to post daily with Billee's progress as the tiniest things can happen all the time. Unfortunatly its now been 1 week since the last post! We had to send Claudie a report at the end of last week so we had to really think of any improvements in Billee no matter how small. We realised the following things:. She is more vocal and is shouting (babble) a lot.

3

Beautiful Billee Living with Lissencephaly: New 2 week programme

http://beautifulbillee.blogspot.com/2010/10/new-2-week-programme.html

Beautiful Billee Living with Lissencephaly. Follow our journey through the laughter and the tears. Wednesday, October 20, 2010. New 2 week programme. I spoke with Claudie Gordon - Pomares this morning at our fortnightly phone appointment. We discussed my recent report, Billee's reactions to the last set of exercises and her new programme for the next 2 weeks. We always start with the same things:. Smell and gentle claw every hour to increase seratonin. Also an exercise working with art and texture. I am ...

4

Beautiful Billee Living with Lissencephaly: April 2010

http://beautifulbillee.blogspot.com/2010_04_01_archive.html

Beautiful Billee Living with Lissencephaly. Follow our journey through the laughter and the tears. Thursday, April 15, 2010. Billee has been shouting all day! Honestly she has been so noisy today which is obviously fantastic. Last night she said something, we're not sure what it was but it was just a really different, 'normal' babble sound unlike her normal noises. Glenn and I just looked at each other in shock. I'm so glad we both heard it otherwise I wouldn't have believed it! Some people don't really ...

5

Beautiful Billee Living with Lissencephaly: Stronger & stronger....

http://beautifulbillee.blogspot.com/2010/10/stronger-stronger.html

Beautiful Billee Living with Lissencephaly. Follow our journey through the laughter and the tears. Friday, October 29, 2010. Billee loves her swing! We have it hanging in the doorway between the lounge room and computer room. I've noticed lately that when it stops moving she leans her head and body forward and tries to make it move again. The control she has of her head is amazing and it's improving all the time. She continues to be mesmerised by her own hands. Subscribe to: Post Comments (Atom). I am th...

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Beautiful Billee Living with Lissencephaly. Follow our journey through the laughter and the tears. Thursday, March 31, 2011. Well so much for me blogging daily or even weekly, it's been almost 6 months! So much has happened. Billee is doing well, we received the results of all the tests only to be told that everything is normal. This is a good thing of course but it didn't explain the pain she seemed to be in. We have started to see a Kinesiologist and have just had more tests done! She seems to enjoy th...

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