Stephanie is 5 years old and has CHARGE Syndrome, here are some photo's and her story. Wednesday, May 23, 2007. Posted by Angela Begas @ 11:21 PM. View my complete profile. My best friend Kaity. Going for a morning walk. Stephanie - almost 5yo.
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Stephanie Begas | begasfamily.blogspot.com Reviews
https://begasfamily.blogspot.com
Stephanie is 5 years old and has CHARGE Syndrome, here are some photo's and her story. Wednesday, May 23, 2007. Posted by Angela Begas @ 11:21 PM. View my complete profile. My best friend Kaity. Going for a morning walk. Stephanie - almost 5yo.
begasfamily.blogspot.com
Stephanie Begas: October 2006
http://begasfamily.blogspot.com/2006_10_01_archive.html
Stephanie is 5 years old and has CHARGE Syndrome, here are some photo's and her story. Thursday, October 05, 2006. The kids were well looked after by volunteers and whisked off to the zoo on Saturday, where they had a great time. Stephanie and Aiden were lucky enough to be carried around by David. Posted by Angela Begas @ 2:37 PM. It may be a long time before we pluck up the courage to do it again, but I hope so because it was fun. Posted by Angela Begas @ 2:03 PM. View my complete profile.
Stephanie Begas: My best friend Kaity
http://begasfamily.blogspot.com/2006/09/my-best-friend-kaity.html
Stephanie is 5 years old and has CHARGE Syndrome, here are some photo's and her story. Sunday, September 17, 2006. My best friend Kaity. This is Stephanie's best friend Kaitlyn. Posted by Angela Begas @ 2:30 PM. View my complete profile. Going for a morning walk. Stephanie - almost 5yo. 8 months - Fundoplication. CPAP and Gastrostomy tube.
Stephanie Begas: May 2007
http://begasfamily.blogspot.com/2007_05_01_archive.html
Stephanie is 5 years old and has CHARGE Syndrome, here are some photo's and her story. Wednesday, May 23, 2007. Posted by Angela Begas @ 11:21 PM. View my complete profile. My best friend Kaity. Going for a morning walk. Stephanie - almost 5yo.
Stephanie Begas: coloboma
http://begasfamily.blogspot.com/2006/08/coloboma.html
Stephanie is 5 years old and has CHARGE Syndrome, here are some photo's and her story. Friday, August 25, 2006. Stephanie had an eye test this week and the opthalmologist took a photo of her optic discs for me to see her colobomas. It only affects the top of her vision, like a wearing a baseball cap pulled down slightly. This white bubble on the botton right corner of the picture is the coloboma, which is in fact a cleft in the optic disc. Posted by Angela Begas @ 5:06 PM. Stephanie- you are so adorable!
Stephanie Begas: montage
http://begasfamily.blogspot.com/2007/05/montage.html
Stephanie is 5 years old and has CHARGE Syndrome, here are some photo's and her story. Wednesday, May 23, 2007. Posted by Angela Begas @ 11:21 PM. She is so beautiful - post more pictures Stephanie! You guys look great on the big poster I made for the conference - thanks again for the picture. So lovely :o) thank you for the beautiful, uplifting and inspiring montage. So lovely :o) thank you for the beautiful, uplifting and inspiring montage. Shelly and Luke Snyder. Your smile makes me smile.
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Raphael in CHARGE: Raphael's colobomas
http://raphaelincharge.blogspot.com/2010/02/raphaels-colobomas.html
Friday, 12 February 2010. I have a special treat for you today. The ophthalmologist kindly agreed to take photos of Raphael's coloboma. We did not get a photo of the right eye coloboma becuase it is quite low but there are some good ones of the left eye. If people are interested I amhappy to explain the parts of the images (as far as my eye anatomy will allow me to do so). Subscribe to: Post Comments (Atom). Practicing .k and .dy. Gross motor skills teacher [gymbaroo]. Speech pathologist [ELT] (x2).
Raphael in CHARGE: Oxymetry study
http://raphaelincharge.blogspot.com/2010/09/oxymetry-study.html
Friday, 3 September 2010. Raphael stayed in hospital last night to confirm that his breathing is still ok over night. The results were all good and so I think that finally marks the absolute end of his night time breathing problem. Subscribe to: Post Comments (Atom). Chronology of events that doctors are usually inte. Summary of chronology summary. Gross motor skills teacher [gymbaroo]. Speech pathologist [ELT] (x2). Teacher of the deaf [ELT] (x3). Audiologist [RHH and Aus Hearing]. Http:/ ellencharger&#...
Raphael in CHARGE: Practicing ...k and ...dy
http://raphaelincharge.blogspot.com/2010/02/practicing-k-and-dy.html
Monday, 8 February 2010. Practicing .k and .dy. Subscribe to: Post Comments (Atom). Practicing .k and .dy. Gross motor skills teacher [gymbaroo]. Speech pathologist [ELT] (x2). Teacher of the deaf [ELT] (x3). Audiologist [RHH and Aus Hearing]. Ear Nose and Throat Doctor (ENT) (x3). Ophthalmologist (eye surgeon) (x3). Orthoptist [RHH and Hobart Eye Surgeons]. Paediatric home care nurse (x2) [RHH]. Speech Pathologist [RHH (x2) and CHC and Speech Pathology Tasmania (x2)]. CHARGE Syndrome Foundation (USA).
Raphael in CHARGE
http://raphaelincharge.blogspot.com/2012/10/i-had-first-appointment-today.html
Tuesday, 23 October 2012. I had the first appointment today specifically for sound localisation. The Audiologist said that severe loss in the low frequencies is the cause for the inability to localise sounds. Hearing aids focus on speech, of course, and so they are not providing the info for localisation. Having said that there is a chance that some directional hearing can be taught. From this we appointment we have a course of action:. Do some online research into sound localisation training. Speech Pat...
Raphael in CHARGE: Simple Sleep Study
http://raphaelincharge.blogspot.com/2009/04/simple-sleep-stufy.html
Friday, 10 April 2009. Raphael had a simple sleep study performed last night in hospital. This is mainly to monitor his blood oxygen saturation while not on CPAP. The results were good in that he maintained good oxygen levels all night without a single desaturation. He even has a slight upper respiratory infection at the moment so this was an excellent effort. We will leave him off CPAP at home for the next few nights and he will go back into hospital on Monday night to see if things are still the same.
Raphael in CHARGE: It has been a long time since the last post
http://raphaelincharge.blogspot.com/2009/07/it-has-been-long-time-since-last-post.html
Friday, 10 July 2009. It has been a long time since the last post. Q: So what has been happening lately? A: The regular drudge of appointments of course. In addition to the occasional doctor appointment, this is what a typical week looks like at the moment:. Monday: Signing with a deaf adult followed by the early intervention playgroup. Wednesday: RIDBC (Royal Institute of Deaf and Blind Children) videoconference. Thursday: Teacher of the Deaf - teaching listening skills. 24 August 2009 at 4:04 pm. Feel ...
Raphael in CHARGE: The new sound "s"
http://raphaelincharge.blogspot.com/2010/06/new-sound-s.html
Friday, 4 June 2010. The new sound "s". Today Rapahel made a new sound "s". He did this at the end of a word that he was copying "Always". It is not a very confident sound but it is being made with the correct part of the mouth rather than him using the constant fluid in his nose to make an s whistle when he breathes out his nose. Ironically his Chinese can be quite clear but he has a very limited Chinese vocabulary. Mostly "I want" and "I don't want". 14 July 2010 at 2:52 pm. 16 July 2010 at 7:04 am.
Raphael in CHARGE: More sleep studies
http://raphaelincharge.blogspot.com/2009/05/more-sleep-studies.html
Friday, 1 May 2009. Raphael had two more sleep tests in Hobart and he continued to maintain excellent saturations over night. So with this information we organised another full Polysomnography test in Melbourne for 29-30/4/2009. To cut a long story short, this latest test confirmed the good results that he appeared to be having in Hobart. As for Annie and I, we are celebrating the opportunity of getting uninterrupted sleep for the first time in three years. And a short video like the one from 2008:.
Raphael in CHARGE: My child has just been diagnosed with CHARGE syndrome, what should I do?
http://raphaelincharge.blogspot.com/2011/09/my-child-has-just-been-diagnosed-with.html
Thursday, 15 September 2011. My child has just been diagnosed with CHARGE syndrome, what should I do? BIG DISCLAIMER: I have no relevant qualifications other than being a parent of a child with CHARGE syndrome. Get a good baby sitter network for other kids. Early intervention (physiotherapy, occupational therapy, speech pathologist, hearing and vision specialists). Possibly learn sign language to give your child a language as early as possible. Get disabled parking permit. If you don't understand anythin...
Raphael in CHARGE
http://raphaelincharge.blogspot.com/2013/02/i-have-given-up-looking-into-sound.html
Friday, 8 February 2013. Subscribe to: Post Comments (Atom). I have given up looking into sound localisation be. Gross motor skills teacher [gymbaroo]. Speech pathologist [ELT] (x2). Teacher of the deaf [ELT] (x3). Audiologist [RHH and Aus Hearing]. Ear Nose and Throat Doctor (ENT) (x3). Ophthalmologist (eye surgeon) (x3). Orthoptist [RHH and Hobart Eye Surgeons]. Paediatric home care nurse (x2) [RHH]. Speech Pathologist [RHH (x2) and CHC and Speech Pathology Tasmania (x2)]. German CHARGE Syndrome Forum.
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Stephanie Begas
Stephanie is 5 years old and has CHARGE Syndrome, here are some photo's and her story. Wednesday, May 23, 2007. Posted by Angela Begas @ 11:21 PM. View my complete profile. My best friend Kaity. Going for a morning walk. Stephanie - almost 5yo.
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Bega Showjumping Cup 2016. CONT Bega Showjumping Cup 2016 No. 2. Bega Showjumping Cup 2015. Bega Showjumping Cup 2014. Bega Showjumping Cup 2013. Bega Showjumping Cup 2012. Bega Showjumping Cup 2011. Bega Showjumping Cup 2010. Cobargo Showjumping Cup 2016. News Flash - News Flash - News Flash - News Flash - News Flash -. This is a page for you our MEMBERS! For club enquires, please email the Secretary begashowjumpingclub@gmail.com. The 2017 Bega Showjumping Cup. OFFICIAL PROGRAM IS HERE! Entries wi...
