ryntales.blogspot.com
Ryn Tale's Book of Days:: Cha, Cha, Change! or Goodbye Feeding Tube!
http://ryntales.blogspot.com/2014/01/change-change-change-for-better.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Friday, January 31, 2014. Cha, Cha, Change! Or Goodbye Feeding Tube! Ellie having a lavender foot soak on her Winter Break. This last 6 months has been a time of intense change for us all and for the better. On October 22nd of 2013 Ellie got her g-tube OUT (for good if I can be so bold to say that)! Me and Ellie playing her Paper Jamz guitars.
ryntales.blogspot.com
Ryn Tale's Book of Days:: Happy Twelfth Birthday Princess Ellie!
http://ryntales.blogspot.com/2014/11/happy-twelfth-birthday-princess-ellie.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Monday, November 10, 2014. Happy Twelfth Birthday Princess Ellie! Even toys she has come to love and are essential to her, started this way. This is a picture of her playing with her newly unwrapped toy. She would play with it for a few minutes and then push it away and stare at it. Then she would ask for it again. She did this seve...Today she...
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Ryn Tale's Book of Days:: Surgery Day
http://ryntales.blogspot.com/2015/06/surgery-day.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Friday, June 26, 2015. Ellie got the "Independence" Award at school! She has a long road ahead of her but I believe it's one that leads to better quality of life than what she has now AND ensures that her body will be the healthiest possible so she can have a long life. Their easy sharing of the responsibility did not leave them as exhausted as...
ryntales.blogspot.com
Ryn Tale's Book of Days:: Pharrell's "Happy" in ASL by Deaf Film Camp at CM7
http://ryntales.blogspot.com/2014/09/pharrells-happy-in-asl-by-deaf-film.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Monday, September 01, 2014. Pharrell's "Happy" in ASL by Deaf Film Camp at CM7. Subscribe to: Post Comments (Atom). You can write me at:. Ryntales at gmail dot com. Ellie, My Warrior Princess. Mama and Fairy Child. Your Words for Ellie. Boston, United States. View my complete profile. Mobility and Traveling with a Quadriplegic Child. Awakenings...
ryntales.blogspot.com
Ryn Tale's Book of Days:: Awakenings and Weaning Off Depakote
http://ryntales.blogspot.com/2009/07/awakenings-and-weaning-off-depakote.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Friday, July 03, 2009. Awakenings and Weaning Off Depakote. I am weaning Ellie off Depakote against doctor's orders. The question that is torturing me is why didn't I do that as soon as it started making her sick? So I must be crazy right? No you should not try another drug, because Depakote has the least side effects. . Get her off that crap!
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Ryn Tale's Book of Days:: *Ten Ways To Diss a Differently Abled Person
http://ryntales.blogspot.com/2013/08/ten-ways-to-piss-off-parent-of.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Sunday, August 04, 2013. Ten Ways To Diss a Differently Abled Person. 1 Make sure to leave your empty shopping carts in the special needs parking space. Hey, no one was using it anyway. 2 Always park in the special needs space and if that is not available park as close as you possibly can to it. 7 Turn around and frown at the differently abled ...
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Ryn Tale's Book of Days:: Sleep Deprivation and Resilience
http://ryntales.blogspot.com/2015/07/sleep-deprivation-and-reslience.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Tuesday, July 07, 2015. Sleep Deprivation and Resilience. This chair if really helping thanks to Liz! To help maybe flip her back to a proper rhythm. Let's hope it works. I had hoped that approaching puberty she would start to sleep more like any good teenager - but not yet. Still she is only 12. I have been inspired lately by this guy. Who exe...
ryntales.blogspot.com
Ryn Tale's Book of Days:: Inspiring innovation
http://ryntales.blogspot.com/2013/09/inspiring-innovation.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Wednesday, September 04, 2013. Labels: Assistive Technology Woes. Subscribe to: Post Comments (Atom). You can write me at:. Ryntales at gmail dot com. Ellie, My Warrior Princess. Mama and Fairy Child. Your Words for Ellie. Boston, United States. View my complete profile. Mobility and Traveling with a Quadriplegic Child. Cha, Cha, Change! Awaken...
ryntales.blogspot.com
Ryn Tale's Book of Days:: Hello Walkable Feet
http://ryntales.blogspot.com/2015/06/hello-walkable-flat-feet.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Sunday, June 28, 2015. Ellie asleep yesterday evening. Ellie is resting now and we have a long road ahead of us. She has casts from the knee down to toes on both legs. Within those casts are feet at neutral and straight if not pointing out slightly (which is good because her tone pulls them in). She has flat feet! So far so good. Amazingly we g...
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Ryn Tale's Book of Days:: For the beautiful Anastasia: Questions and Answers
http://ryntales.blogspot.com/2014/11/for-beautiful-anastasia-questions-and.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Friday, November 07, 2014. For the beautiful Anastasia: Questions and Answers. Ellie at Advance with Doran and Dada. Dear J.,. There's some psychology for you. ;-). The brain above all else, is a dynamic system all its own. It's always evolving. And it takes feedback from the body and external environment to build itself. There is e...She had a...
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