badglue.wordpress.com
Ehlers Danlos and POTS links January 22, 2013 | Bad Glue
https://badglue.wordpress.com/2013/01/22/ehlers-danlos-and-pots-links-january-22-2013
Ex-librarian with Ehlers Danlos Syndrome and Postural Tachycardia Syndrome. Ehlers Danlos and POTS links January 22, 2013. Have any of you with Postural Orthostatic Tachycardia Syndrome gotten the flu? If so, how bad did it get for you? Genetic dissection of marfan syndrome and related connective tissue disorders: an update 2012. Gynecologic disorders and menstrual cycle lightheadedness in postural tachycardia syndrome. Rare Disease Day at NIH 2013 (Day 1). Rare Disease Day at NIH 2013 (Day 2). Enter you...
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Ehlers Danlos and POTS links January 10, 2012 | Bad Glue
https://badglue.wordpress.com/2013/01/10/ehlers-danlos-and-pots-links-january-10-2012
Ex-librarian with Ehlers Danlos Syndrome and Postural Tachycardia Syndrome. Ehlers Danlos and POTS links January 10, 2012. Vote: The Rare Disease Champion Award. 8220;…is given to a leader in college football, individual or organization, who has realized his or her potential to make a positive and lasting impact on the rare disease community.” [full text]. Limb dislocation: Phoebe Bruce’s Ehlers-Danlos syndrome treatment. Audio: Phoebe Bruce’s Ehlers-Danlos syndrome treatment. Treatment of myofascial pain.
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Ehlers Danlos and POTS links December 20, 2012 | Bad Glue
https://badglue.wordpress.com/2012/12/21/ehlers-danlos-and-pots-links-december-20-2012
Ex-librarian with Ehlers Danlos Syndrome and Postural Tachycardia Syndrome. Ehlers Danlos and POTS links December 20, 2012. Sorry there’s been a lack of updates. It’s been a bit rough. Low Bone Mass in Ehlers-Danlos Syndrome. Evolutionary divergence and functions of the ADAM and ADAMTS gene families. Exploiting potency of negative pressure in wound dressing using limited access dressing and suction-assisted dressing. A Physician Tries to Make Sense of Sandy Hook. A case of mosaic Ehlers Danlos syndrome.
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Ehlers Danlos and POTS links January 2, 2013 | Bad Glue
https://badglue.wordpress.com/2013/01/02/ehlers-danlos-and-pots-links-january-2-2013
Ex-librarian with Ehlers Danlos Syndrome and Postural Tachycardia Syndrome. Ehlers Danlos and POTS links January 2, 2013. Happy 2013 hope it is a great year for you, with good pain control and a lot of support. 🙂. Deconditioning in patients with orthostatic intolerance. David Cameron got involved and council’s attitude to care changed’. The heroes of 2012. Hawarden teenager who suffers up to 18 limb dislocations to get specialist help. The cell biology of genomes: From fundamentals to disease. Prolapse ...
stoppotsvirginia.blogspot.com
STOP POTS (and Dysautonomia!): Taking a break...
http://stoppotsvirginia.blogspot.com/2013/04/taking-break.html
LIBRARY: Medical Journal Articles. Physicians Treating Dysautonomia in VA/DC/MD. Resources for Family and Friends / "In The Press" Links. Web and Resource Links. Tools / Tips for Patients. An Open Letter To Doctors (Regarding the Anxiety Bias). FIND YOUR POTS CAUSE. Personal Posts (My Journey). POTS, Pregnancy, and Parenting Oh My! Dysautonomia SOS: Searching Out Solutions - A New Nonprofit! Tuesday, April 16, 2013. Peace out homies (for a bit). Thank you for understanding! May 2, 2013 at 2:37 PM. On the...
stoppotsvirginia.blogspot.com
STOP POTS (and Dysautonomia!): Silly POTS Stuff
http://stoppotsvirginia.blogspot.com/p/silly-pots-stuff.html
LIBRARY: Medical Journal Articles. Physicians Treating Dysautonomia in VA/DC/MD. Resources for Family and Friends / "In The Press" Links. Web and Resource Links. Tools / Tips for Patients. An Open Letter To Doctors (Regarding the Anxiety Bias). FIND YOUR POTS CAUSE. Personal Posts (My Journey). POTS, Pregnancy, and Parenting Oh My! Dysautonomia SOS: Searching Out Solutions - A New Nonprofit! Well, chronic illness can either be sad, or we can laugh and make fun of how ridiculous it is! 9 You crave IV Flui...
stoppotsvirginia.blogspot.com
STOP POTS (and Dysautonomia!): Find Others! Join The Dysautonomia Social Media Directory!
http://stoppotsvirginia.blogspot.com/2012/11/find-others-join-dysautonomia-social.html
LIBRARY: Medical Journal Articles. Physicians Treating Dysautonomia in VA/DC/MD. Resources for Family and Friends / "In The Press" Links. Web and Resource Links. Tools / Tips for Patients. An Open Letter To Doctors (Regarding the Anxiety Bias). FIND YOUR POTS CAUSE. Personal Posts (My Journey). POTS, Pregnancy, and Parenting Oh My! Dysautonomia SOS: Searching Out Solutions - A New Nonprofit! Tuesday, November 27, 2012. Join The Dysautonomia Social Media Directory! Let’s connect online! And I'm one of them.
badglue.wordpress.com
Welcome | Bad Glue
https://badglue.wordpress.com/2012/02/03/welcome
Ex-librarian with Ehlers Danlos Syndrome and Postural Tachycardia Syndrome. I use some acronyms here:. EDS = Ehlers-Danlos syndrome. A genetic connective tissue disorder. POTS = Postural Orthostatic Tachycardia syndrome. A form of dysautonomia (autonomic nervous system disorder). February 3, 2012 at 8:04 am. Both comments and trackbacks are currently closed. Ehlers Danlos and POTS liks 01/15/12. EDS and Postural Tachycardia Syndrome links Feb 03 2012 ». Product Review: Sea-Band Anti Nausea Wristband.
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Update after almost a year; still alive :) | Bad Glue
https://badglue.wordpress.com/2013/11/27/update-after-almost-a-year-still-alive
Ex-librarian with Ehlers Danlos Syndrome and Postural Tachycardia Syndrome. Update after almost a year; still alive :). Not much to report – EDS is the same; POTS is worse. Luckily the Vanderbilt Autonomic Clinic. Is local and I’ve been able to donate my body to science while I’m still alive. I still keep on eye on new EDS and POTS research but mostly post at Twitter @Jilly since it requires less effort than logging in here etc. November 27, 2013 at 4:28 pm. Ehlers Danlos and POTS links January 22, 2013.
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Ehlers Danlos and POTS links January 6, 2013 | Bad Glue
https://badglue.wordpress.com/2013/01/06/ehlers-danlos-and-pots-links-january-6-2013
Ex-librarian with Ehlers Danlos Syndrome and Postural Tachycardia Syndrome. Ehlers Danlos and POTS links January 6, 2013. The Bellmawr resident writes edgy, melodic rock songs with titles like “Palinopsia,” the name for an optical disturbance that’s among the debilitating symptoms of Ehlers-Danlos Syndrome. The family is trying to raise $13,000 to buy a specially trained dog from “4 Paws for Ability.”. Links to search results for “Ehlers Danlos Syndrome” [Full Text]. January 6, 2013 at 12:35 am. Dysauton...
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