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Best Dressed Baby in the ICUMy life as the parent of a medically fragile/special needs child with CdLS.
http://bestdressedbabyintheicu.blogspot.com/
My life as the parent of a medically fragile/special needs child with CdLS.
http://bestdressedbabyintheicu.blogspot.com/
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Best Dressed Baby in the ICU | bestdressedbabyintheicu.blogspot.com Reviews
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My life as the parent of a medically fragile/special needs child with CdLS.
bestdressedbabyintheicu.blogspot.com
Best Dressed Baby in the ICU: November 2011
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Best Dressed Baby in the ICU. My life as the parent of a medically fragile/special needs child with CdLS. Tuesday, November 29, 2011. I had hoped she would be able to move herself around somewhat by this age, but the reality is that she still cannot sit up unassisted. It's not from a lack of trying. No, she wants to go! We also have a gait trainer coming which I am very excited about. Ella's legs are very strong and this will allow her to "walk" and move around the house on her own, ideally. It i...We ar...
Best Dressed Baby in the ICU: June 2011
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Best Dressed Baby in the ICU. My life as the parent of a medically fragile/special needs child with CdLS. Thursday, June 16, 2011. One of the things we struggle with a lot is how to balance doing typical things with being cautious of Ella's medical issues. There seems to be a very fine line between being *normal* and being irresponsible when you have a medically fragile child. Aside from the fact that we need to be cautious of keeping the water below a certain level (and not dropping her of course! We ha...
Best Dressed Baby in the ICU: January 2014
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Best Dressed Baby in the ICU. My life as the parent of a medically fragile/special needs child with CdLS. Sunday, January 12, 2014. Dear Typical Moms: Why You Can't Win. I know it's awkward for you to know what to say or which questions to ask about my child. Honestly, I wouldn't know what to say to me either. And when you talk about your own children, you run the risk of making me feel bad about what I'm not experiencing as a typical mom. Which you probably do, but it's not your fault. I know that you a...
Best Dressed Baby in the ICU: April 2013
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Best Dressed Baby in the ICU. My life as the parent of a medically fragile/special needs child with CdLS. Monday, April 22, 2013. Happy Birthday, Ella Grace. It wasn't until 4 o'clock the following afternoon that the doctors announced she would need to be delivered via C-section and less than an hour later she was finally here. I remember immediately asking John, "How does she look? I have always loved celebrating any occasion, it's my nature. Anyone who knows me knows that I love a party! CdLS) She spen...
Best Dressed Baby in the ICU: October 2011
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Best Dressed Baby in the ICU. My life as the parent of a medically fragile/special needs child with CdLS. Sunday, October 16, 2011. Living on the Edge. Today a mom is acting as nurse and doctor to try and keep her child out of the hospital. Today a mom is sitting at her child's bedside in the hospital longing to take her home. Today a mom is burying her 5 year old daughter. How do you cope? Everyone is different, but here are some of the ways I know of:. Some have vices like alcohol, food or cigarettes&#...
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9/11 Fortified Decision to Create New Career Path | Grief, Interrupted
https://griefinterrupted.com/2011/09/09/911-fortified-decision-to-create-new-career-path
Recognizing and Honoring All Kinds of Loss. What is ‘Grief, Interrupted’? 9/11 Fortified Decision to Create New Career Path. September 9, 2011. Ten years ago tomorrow, on September 10, 2001, I handed in the resignation letter that would end my 12-year journalism career and launch my new path as a life coach. Around 8:45, I heard urgency from voices on TV and looked up to see smoke pouring from the top of the World Trade Center. A co-worker and I were trying to make sense of it — an accident? Then the Pen...
Our ‘New Normals’ in the Wake of Big Events Like 9/11 | Grief, Interrupted
https://griefinterrupted.com/2012/09/11/our-new-normals-in-the-wake-of-big-events-like-911
Recognizing and Honoring All Kinds of Loss. What is ‘Grief, Interrupted’? Our ‘New Normals’ in the Wake of Big Events Like 9/11. September 11, 2012. I’m thrilled and honored (and nervous! To be making my radio debut today on The Mary and Melissa Show. With a new feature called “ The New Normal. 8221; which focuses on creating a space for parents whose children have needs beyond what they imagined. 8230;……. From → Connection: To Yourself and Others. Special Needs: Not What You Signed Up For. You are comme...
Parent Support Group | Grief, Interrupted
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Recognizing and Honoring All Kinds of Loss. What is ‘Grief, Interrupted’? Are you a parent of a child with ADHD, SPD or similar issues? If you would like to connect with other parents who share similar experiences, we invite you to join. For Our Kids, For Ourselves. A support and resource organization with neighborhood-based groups that meet monthly. We are currently welcoming new and returning members to our Northwest DC group,. For Our Kids, For Ourselves. For Our Kids, For Ourselves. Please send a che...
Taking time to seek and grant forgiveness | Grief, Interrupted
https://griefinterrupted.com/2011/10/07/taking-time-to-seek-and-grant-forgiveness
Recognizing and Honoring All Kinds of Loss. What is ‘Grief, Interrupted’? Taking time to seek and grant forgiveness. October 7, 2011. 8220;I’d forgive a.n.y.t.h.i.n.g,” my 6-year-old said this morning as he looked directly into my eyes from across the kitchen counter. I blinked back my tears and told him it was a wonderfully wise way to live. 8220;But,” he then said, “some things take longer to forgive than others.”. Ahhhh So true, I thought. Then I asked them each to think about ways they might have hur...
Hearing aids: Can they help us listen to ourselves? | Grief, Interrupted
https://griefinterrupted.com/2011/07/06/hearing-aids-can-they-help-us-listen-to-ourselves
Recognizing and Honoring All Kinds of Loss. What is ‘Grief, Interrupted’? Hearing aids: Can they help us listen to ourselves? July 6, 2011. The Buddha welcomed hearing aids into his life today. I, on the other hand, wore my lack of enthusiasm on my sleeve when we got the news a few weeks ago. One more thing to remember each morning. (Organization is not my strong suit.) One more thing to keep clean. (Please don’t look inside our humidifier! So I consciously changed my message from, “We just found o...
Down a Short Flight of Stairs, Up a Mountain of Confidence | Grief, Interrupted
https://griefinterrupted.com/2011/10/03/down-a-short-flight-of-stairs-up-a-mountain-of-confidence
Recognizing and Honoring All Kinds of Loss. What is ‘Grief, Interrupted’? Down a Short Flight of Stairs, Up a Mountain of Confidence. October 3, 2011. I stood in the doorway just now as The Buddha, knowing he looked handsome in the picture-day outfit he chose, walked across our front porch toward his waiting school bus. Then tears came to my eyes as I watched him walk down the crazy-tall, uneven stairs … without holding on to anything or anyone. I didn’t know he could do that. Leave a Reply Cancel reply.
Grief, Interrupted | Recognizing and Honoring All Kinds of Loss | Page 2
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Recognizing and Honoring All Kinds of Loss. What is ‘Grief, Interrupted’? April 4, 2011. The stories have been stuck in my head. In truth, the stories haven’t been completely stuck. They just haven’t been coming out easily through my fingers. Instead, my voice has been my medium of choice. Though talking is my go-to processing method, I value the clarity that writing has to offer. This space is meaningful to me, and I apologize for my recent absence. Please be on the lookout for more soon! Prompted by Th...
Our Journey: September 2013
http://watzspot.blogspot.com/2013_09_01_archive.html
Trust in the Lord with all your heart and lean not on your own understanding. Proverbs 3:5. What Emma CAN do. Friday, September 27, 2013. Did you know that actually orally eating. A food containing garlic has nothing to do with your breath smelling awful after you consume it? In fact, that terrible odor is not even phased by an esophagus having been surgically altered to prevent reflux. She's lucky she's cute :). PS - Thank you so much for all your prayers! Friday, September 20, 2013. The ease of the rec...
Our Journey: November 2014
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Trust in the Lord with all your heart and lean not on your own understanding. Proverbs 3:5. What Emma CAN do. Tuesday, November 18, 2014. It was wonderful :). My little family had an absolutely delightful day celebrating the Bear's birthday this weekend. We started off the morning with an all-out sensory arts and crafts time, which included new paints and stickers as a present from Big Brother. As with most things, there is a Mommy way of doing things, and a Daddy way of doing things . It was lovely :).
Our Journey: Adrenaline Junkie
http://watzspot.blogspot.com/2014/09/adrenaline-junkie.html
Trust in the Lord with all your heart and lean not on your own understanding. Proverbs 3:5. What Emma CAN do. Tuesday, September 30, 2014. Remember that ridiculous 90s action movie in which a bus cannot go any slower than 55 mph or else a bomb will explode? Pop quiz, hot shot". At the end of the movie (spoiler alert? I hear relationships based on intense situations never work". She responds with something silly and they kiss again. Is my relationship with God based solely on intense situations? It hit me...
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Best Dressed Baby in the ICU
Best Dressed Baby in the ICU. My life as the parent of a medically fragile/special needs child with CdLS. Tuesday, April 1, 2014. Birthdays are always bittersweet - summoning up those "where we have been" and "where we are headed" thoughts - and when Ella presented with her first loose tooth a few days ago on the eve of her sixth birthday, I was a bit blindsided by the reality of "six." It made me unexpectedly sad, and I was surprised at my reaction:. Links to this post. Thursday, March 6, 2014. You can ...
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