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The Road Less TraveledA Mother's Journey Raising Twins
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A Mother's Journey Raising Twins
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A Mother's Journey Raising Twins
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The Road Less Traveled: February 2011
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The Road Less Traveled. A Mother's Journey Raising Twins. Saturday, February 26, 2011. But I don't have oxygen, IV fluids, or nursing care available at our home. William, I am sure, is feeling even worse; poor guy. We have been working with the Ketogenic dietician weekly to fine tune this diet and try to control the seemingly worse seizures. I am prepared to continue with the diet for another couple months. We will see what changes Spring brings. William and I are also starting another round of visiting ...
The Road Less Traveled: Update
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The Road Less Traveled. A Mother's Journey Raising Twins. Thursday, March 22, 2012. Hi friends and family,. I plan to be in bed in a few minutes so this is going to be a super quick update on our Will man! This has actually been the best week we have had in months! He has really enjoyed this beautiful weather we are having in Rochester. In the process of setting up that surgery. He will still be able to eat smaller amounts by mouth for pleasure though :-). As for his body temperature. he has been sta...
The Road Less Traveled: April 2012
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The Road Less Traveled. A Mother's Journey Raising Twins. Monday, April 9, 2012. A few Easter Pics and Neurology Update. Ella and Wayne kite flying on Easter. A candid shot of my loves and I . they are getting so big! Our very tolerant dog Porter :-) Ella enjoys trying to dress him in pink! I am now willing my mind to be at rest this week and take a break from the decision making process! In the past three months. During this time we have been able to wean him off one of his other seizure meds. A few Eas...
The Road Less Traveled: Philadelphia
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The Road Less Traveled. A Mother's Journey Raising Twins. Thursday, January 12, 2012. First, thank you all for your thoughts, prayers, and encouragements concerning William and this trip! Many of you know how apprehensive I was and how much planning it took to make it happen. So thank you so much for your support! Wayne, William, and I arrived home last night after our three day trip to Children's Hospital. Overall the visit was definitely. It is hard to know what the best choice is. and what worked ...
The Road Less Traveled: November 2012
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The Road Less Traveled. A Mother's Journey Raising Twins. Friday, November 16, 2012. I seem to be having a very difficult time keeping up with this blog. Each time I sit down to reflect I either struggle with writing coherent paragraphs or end up being distracted by kids/dogs/cat. It is much easier to post some cute pictures from our Summer and Fall adventures. We put all the money raised in a special bank account and are finally making use of it! Either way we are praying for a healthy baby. July and Au...
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The Burri: Four Weeks and Four S's
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A family seeking to glorify God through day to day life. Friday, July 10, 2015. Four Weeks and Four S's. We are presently exactly four weeks away from Hannah's upcoming palate repair. Truth be told, we are still, to some extent, recovering from her lip repair that was completed in the end of April. Y'all have been such wonderful prayer warriors for us in this marathon of adoption, we couldn't face this surgery without you involved! Would you also pray over her thumb and finger sucking? 3) Surgeon-Continu...
The Burri: July 2015
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A family seeking to glorify God through day to day life. Wednesday, July 29, 2015. I would be lying if I said our family hasn't dealt with a certain degree of growing pains since we added our fourth child to the family in February of this year. We have all had our ups and downs and personal struggles that come as a result of big life changes. It has been no different for Grace. Friday, July 17, 2015. For My Fellow Shoppers. Please forgive me. This is a public service announcement. I should. If this had b...
The Burri: May 2015
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A family seeking to glorify God through day to day life. Wednesday, May 13, 2015. More {Mother's Day 2015}. It is a little late, but we celebrated our first Mother's Day with Hannah in our family this past weekend. It was a big day for Miss H. She participated in our Parent-Congregational Prayer Covenant (think Dedication Service) at church that morning and then went to her very first "large" family gathering (outside our home! Is blessing. Yes, more. Makes more joy as well. She looks like someone so dif...
What... a Whirlwind!: This is the year Aidan turns 7!
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Choose to inhale. Do not breathe simply to exist. Mattie Stepanek. Aidan . Cole . Ty. Saturday, July 18, 2015. This is the year Aidan turns 7! The other day in the car a song came on that took me back to when I was pregnant with him. Anytime I heard this song, I rubbed my belly and the baby's tiny arms and legs would push back at me. So very connected from the start. So don't let anyone scare you. You know that I'll protect you. Through the thick and thin,. I'm always here for you,. I'll be here for you.
The Burri: December 2014
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A family seeking to glorify God through day to day life. Tuesday, December 30, 2014. An Update from China and Glimpses of Love. Yesterday we received our final update about Hannah. In that update we found out about an accidental injury involving Hannah's index finger. While we were so sad to hear this news, it allowed us to communicate directly with the orphanage and foster parents to ask some questions in follow up to that piece of information. We could tell from the first message from them that they ca...
The Burri: November 2014
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A family seeking to glorify God through day to day life. Tuesday, November 25, 2014. We have had many people ask, since we got our LOA, when we will be booking flights to travel, etc. We wish the LOA were the final piece of paperwork we needed, but unfortunately, it isn't. We will continue to plug along in the mass of paperwork and fees for several more weeks before we can officially book our travel and head to get our girl. After those items are complete, we will begin the Article 5 drop off and pick up...
What... a Whirlwind!: September 2013
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Choose to inhale. Do not breathe simply to exist. Mattie Stepanek. Aidan . Cole . Ty. Wednesday, September 18, 2013. 4 years of Ty Ty! The day you were born I placed your tiny fingers around mine. Only hours old, you were too little to purposefully reach out for me, but once I latched you onto my hand, you clung tightly. To this day, you still cannot purposely hold onto my hand. But I continue to wrap your little fingers around mine, and you hold on tight. I hold on tightly, tightly. This past year hasn'...
What... a Whirlwind!: The Gene Has Been Found!
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Choose to inhale. Do not breathe simply to exist. Mattie Stepanek. Aidan . Cole . Ty. Friday, March 07, 2014. The Gene Has Been Found! Tonight my phone rang. and it was a phone call I thought I would never receive. It was news I didn't think I would hear in my lifetime. The gene which has caused the boys' condition has been identified! One down, gazillion to go, ha! And what does this mean for us now? Of reoccurance (1 in a million! No genetic link. Then. Ty's birth. And alas - reoccurance! Nothing showe...
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Beyerstedt.com - Start
Herzlich willkommen auf meiner Seite! Taschenrechner: Diesen habe ich selbst programmiert:. Dieser Taschenrechner funktioniert aktuell leider nicht mit dem Internet Explorer von Microsoft! Schulprojekt: Mein zwei Stunden Referat aus der neunten Klasse im Fach Informatik über HTML:. Freizeit: Reisen und fotografieren macht mir auch sehr viel Spaß. Niklas Beyerstedt info@beyerstedt.com. Letzte änderung am 26.12.2015.
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The Road Less Traveled
The Road Less Traveled. A Mother's Journey Raising Twins. Friday, January 22, 2016. This last month Wayne and I have made some very difficult decisions for our sweet William. Of course we were not alone in making these decisions. We had guidance and input from several neurologists and a wonderful Pediatric Palliative care team. So in 2012 Will's neurologist told us that his brain may be shutting down yet here we are 4 years later! I can't remember exactly when we started working with palliative care....
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