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Beyond The Bleed: von Willebrand disease (VWD) Educational Resource

Whether physically or emotionally, people affected by von Willebrand disease (VWD) can find empowerment, validation, support and resources here.

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Beyond The Bleed: von Willebrand disease (VWD) Educational Resource | beyondthebleed.com Reviews

https://beyondthebleed.com

Whether physically or emotionally, people affected by von Willebrand disease (VWD) can find empowerment, validation, support and resources here.

INTERNAL PAGES

beyondthebleed.com beyondthebleed.com
1

Beyond the Bleed: von Willebrand disease Basics

http://www.beyondthebleed.com/von-willebrand-disease

The only thing more exhausting than a bleed is trying to make sense of it. When you have von Willebrand disease (VWD), your body doesn't make enough VWF or the VWF that it does make doesn’t function properly, so a solid clot can’t form the way it should or takes longer to form. Prolonged bleeding may result. In a healthy blood vessel, hemostasis helps control bleeding. When an injury occurs, the blood vessel constricts to slow blood flow to the area. Is all VWD the same? Type 1 is the most common and acc...

2

Living With von Willebrand disease: Real Patient Stories

http://www.beyondthebleed.com/von-willebrand-patient-stories

Take control of your life. How do real people live with von Willebrand disease (VWD)? A VWD diagnosis comes with its own set of challenges and obstacles to overcome, but learning about others who are living well with the disease is sometimes the best medicine. Educating others about what you’re going through, expecting the unexpected, and the knowledge that you’re not alone are just a few of the things these VWD veterans have learned and are eager to share with you in these short bios. It’s good to belon...

3

The Impacts of von Willebrand disease

http://www.beyondthebleed.com/von-willebrand-impact

A bleed may be controlled. It’s the uncertainty that. What will happen to my body? While von Willebrand disease (VWD) is treatable, the unpredictability of a bleed occurring can affect a person’s life physically in a number of ways. Frequent bleeds could lead to absence from school, work or social activities. There may be a need to avoid certain types of exercise or sports. Some people with VWD report low energy and fatigue. This sounds stressful. What can I expect? Of the unknown and the future. Become ...

4

Finding A Network of Care: von Willebrand disease Management

http://www.beyondthebleed.com/von-willebrand-management

Treatment of a bleed is just the beginning of comprehensive care. What are my options for managing VWD? Von Willebrand disease (VWD) management should include comprehensive, personalized, lifelong care—beginning with diagnosis and throughout treatment. The National Hemophilia Foundation website. What is comprehensive care and how can it help me? A comprehensive care patient is first assigned a team, which varies based on the individual’s needs and the structure of that particular HTC. Your team of he...

5

Diagnosing von Willebrand disease: Step By Step Guide

http://www.beyondthebleed.com/von-willebrand-diagnosis

A bleed may last a short time. The road to diagnosis often doesn’t. If I have VWD, what will my symptoms be? Von Willebrand disease (VWD) is a complex, diverse disease with a wide variety of symptoms. They can vary greatly from person to person and episode to episode. Types of bleeding include. Heavy bleeding from small wounds. Heavy bleeding during/after surgery or procedures. Heavy bleeding from dental work. Severe bleeding during childbirth. Joint bleeds (can cause joint pain and damage). Your doctor ...

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hemophiliafed.org hemophiliafed.org

What is von Willebrand Disease (vWD)? - Hemophilia Federation of America

http://www.hemophiliafed.org/bleeding-disorders/vwd

Hemophilia Federation of America. Http:/ www.hemophiliafed.org/bleeding-disorders/vwd/. Our Mission / Vision. Partner Alliances and Coalitions. What is a Bleeding Disorder? What is von Willebrand Disease (vWD)? Are women affected by bleeding disorders? Complications of having a Bleeding Disorder. Programs & Services. Gears for Good Bike Rides. FitFactor – Health & Wellness. Meetings & Events. News & Stories. Mom’s Blog: Infusing Love. You are here: Hemophilia Federation of America. VWF is a carrier prote...

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Beyond The Bleed: von Willebrand disease (VWD) Educational Resource

It’s a common disease. But not so commonly known. Who gets von Willebrand disease? Von Willebrand disease (VWD) is the most common bleeding disorder, occurring in approximately 1% of the world’s population, including as many as 3 million people in the US alone. It’s a hereditary disease and occurs in women and men in equal numbers. What questions should I ask my HCP about VWD? Answer a few questions about your experiences with VWD. If I have VWD, what will my symptoms be? What will happen to my body?

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