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Telethon Network of Genetic Biobanks

Telethon Network of Genetic Biobanks. Telethon Network of Genetic Biobanks (TNGB). Has been founded in 2008 by 7 Biobanks supported by Telethon Foundation. Whose purpose is to collect, preserve and offer to the Scientific Community biological samples and related clinical data from individuals affected by genetic diseases, from their relatives or from healthy control individuals. TNGB also offers its services to Patient Organisations. At present, the Network is constituted of 11 Biobanks. Project aimed at...

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Telethon Network of Genetic Biobanks | biobanknetwork.telethon.it Reviews
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Telethon Network of Genetic Biobanks. Telethon Network of Genetic Biobanks (TNGB). Has been founded in 2008 by 7 Biobanks supported by Telethon Foundation. Whose purpose is to collect, preserve and offer to the Scientific Community biological samples and related clinical data from individuals affected by genetic diseases, from their relatives or from healthy control individuals. TNGB also offers its services to Patient Organisations. At present, the Network is constituted of 11 Biobanks. Project aimed at...
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Telethon Network of Genetic Biobanks | biobanknetwork.telethon.it Reviews

https://biobanknetwork.telethon.it

Telethon Network of Genetic Biobanks. Telethon Network of Genetic Biobanks (TNGB). Has been founded in 2008 by 7 Biobanks supported by Telethon Foundation. Whose purpose is to collect, preserve and offer to the Scientific Community biological samples and related clinical data from individuals affected by genetic diseases, from their relatives or from healthy control individuals. TNGB also offers its services to Patient Organisations. At present, the Network is constituted of 11 Biobanks. Project aimed at...

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1

Telethon Network of Genetic Biobanks

http://biobanknetwork.telethon.it/Pages/View/Associations

TNGB and Patient Organisations. Since its inception, the TNGB has developed a close relationship with Patient Organisations in particular with UNIAMO FIMR. Italian Federation of about 100 Patient Organisations with rare diseases) to raise the interest in Biobanks services as well as to introduce patients and their families to the concept that the Biobanks are an effective service for collecting and centralising rare samples for specific research projects. Each agreement is published in the Documents.

2

Telethon Network of Genetic Biobanks

http://biobanknetwork.telethon.it/Pages/View/Members

Telethon financially supports only Genetic Biobanks belonging to the Network. Membership is subject to yearly Telethon Biobank Committee approval. To join the Network, Applicants are requested to send a letter of interest to the Telethon Foundation Scientific Office. After one-year pre-admission period, required for implementing the Networks procedures, newly approved Biobanks will be admitted into the Network. Coordinator and Biobank Director:. IRCCS AOU San Martino - IST. Director: Elena Pegoraro, Univ...

3

Telethon Network of Genetic Biobanks

http://biobanknetwork.telethon.it/Pages/View/Documents

Network policies and forms. The Network Charter (pdf format). Standard Operating Procedures (pdf format). Material Transfer Agreement (pdf format). Information leaflet and consent form (pdf format). Agreement Template between Biobank and Patient Organisation (pdf format). Genetic Biobank Guidelines (English version). Genetic Biobank Guidelines, Analysis N. 5/6.2003 (Italian version). Filocamo et al. Orphanet J Rare Dis. 2013 Aug 30;8:129. Baldo et al. Orphanet J Rare Dis. 2016 Oct 24;11(1):142. TNGB on t...

4

Telethon Network of Genetic Biobanks

http://biobanknetwork.telethon.it/Pages/View/Services

Services provided by biobanks operating as a single entity:. Establishment of cell lines from appropriate tissue;. Establishment of EBV-transformed lymphoblast cultures from human blood;. Preservation of biological specimens and recording of the related data for genetic studies;. Distribution of samples to scientific community for specific research projects;. Repository services for patients and their families as well as external institutions, which do not have an independent biobank. PI will not perform...

5

Telethon Network of Genetic Biobanks

http://biobanknetwork.telethon.it/Home

Telethon Network of Genetic Biobanks. Telethon Network of Genetic Biobanks (TNGB). Has been founded in 2008 by 7 Biobanks supported by Telethon Foundation. Whose purpose is to collect, preserve and offer to the Scientific Community biological samples and related clinical data from individuals affected by genetic diseases, from their relatives or from healthy control individuals. TNGB also offers its services to Patient Organisations. At present, the Network is constituted of 11 Biobanks. Project aimed at...

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Una malattia.tante malattie. In questa sezione del sito vengono riportati documenti rigorosamente scientifici che in modo sufficientemente semplice aiutino a capire in che cosa consiste, allo stato attuale delle conoscenze, la malattia che viene indicata con il termine "Angiodisplasia". Non sono trattati di medicina per specialisti ma testi rigorosi e semplici che possono contribuire alla conoscenza del male che si deve combattere. Via Abbondio Sangiorgio 14. Per favore compila i campi qui sotto:.

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Telethon Network of Genetic Biobanks :: Telethon Network of Genetic Biobanks

Telethon Network of Genetic Biobanks. Telethon Network of Genetic Biobanks (TNGB). Has been founded in 2008 by 7 Biobanks supported by Telethon Foundation. Whose purpose is to collect, preserve and offer to the Scientific Community biological samples and related clinical data from individuals affected by genetic diseases, from their relatives or from healthy control individuals. TNGB also offers its services to Patients’ Associations. At present, the Network is constituted of 11 Biobanks. Project aimed a...

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Telethon Network of Genetic Biobanks :: Telethon Network of Genetic Biobanks

Telethon Network of Genetic Biobanks. Telethon Network of Genetic Biobanks (TNGB). Has been founded in 2008 by 7 Biobanks supported by Telethon Foundation. Whose purpose is to collect, preserve and offer to the Scientific Community biological samples and related clinical data from individuals affected by genetic diseases, from their relatives or from healthy control individuals. TNGB also offers its services to Patients’ Associations. At present, the Network is constituted of 11 Biobanks. Project aimed a...

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Telethon Network of Genetic Biobanks :: Telethon Network of Genetic Biobanks

Telethon Network of Genetic Biobanks. Telethon Network of Genetic Biobanks (TNGB). Has been founded in 2008 by 7 Biobanks supported by Telethon Foundation. Whose purpose is to collect, preserve and offer to the Scientific Community biological samples and related clinical data from individuals affected by genetic diseases, from their relatives or from healthy control individuals. TNGB also offers its services to Patients’ Associations. At present, the Network is constituted of 11 Biobanks. Project aimed a...

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Telethon Network of Genetic Biobanks

Telethon Network of Genetic Biobanks. Telethon Network of Genetic Biobanks (TNGB). Has been founded in 2008 by 7 Biobanks supported by Telethon Foundation. Whose purpose is to collect, preserve and offer to the Scientific Community biological samples and related clinical data from individuals affected by genetic diseases, from their relatives or from healthy control individuals. TNGB also offers its services to Patient Organisations. At present, the Network is constituted of 11 Biobanks. Project aimed at...

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