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The Smith Family: every day
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Friday, April 11, 2014. Every day I think about Deacon and what his future holds. Every day I read something about Duchenne Muscular Dystrophy. Every day I cry or am on the verge of tears. Every day I ask God why. Every day I hug this sweet little boy. Every day I thank God for him. Every day I am reminded that we don't have many more days. Subscribe to: Post Comments (Atom). Amazima: an amazing story. Go here to make a difference. Life is somewhat routine. Blogs I enjoy or learn from. It's how you live.
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The Smith Family: August 2012
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Wednesday, August 29, 2012. We were so close this time. just a little over 48 hours away from take off. It is heartbreaking to think almost another month will pass and our son will still be without us. I spent a lot of time being mad yesterday. Today I am okay just frustrated. Saturday, August 18, 2012. Our little guy is older than Grace by a year and a half at our first meeting. He will be more set in his ways and probably have more opinions than G did. He will probably want Ryan like Grace did&...We ha...
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The Smith Family: levels
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Thursday, March 6, 2014. The call came on Monday afternoon. What seemed to be so many hours later ended up being around 4. Our pediatrician said that Deacon's CK levels were at 38,000. Normal level is 75-230. She would refer us to a Neurologist immediately so that we could see what the next steps were. But Deacon had gotten so much stronger in the year plus he has been home. He is doing things now that he could physically when we first got him. He can ride his bike. He is so active. It's how you live.
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The Smith Family: February 2014
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Friday, February 28, 2014. Every Friday, Deacon goes to physical therapy. He has been seeing this therapist for over a year now. It was February 14, Valentine's Day. I took Deacon to his weekly visit then ran to pick up Kaylee. Then, I went inside to pick him up and chat with the PT. My email to her was this, How do you test for Muscular Dystrophy? Is that something that you can do or would we need to see a specialist? Deacon enjoying a peanut butter frosting beater. Thursday, February 27, 2014. We have ...
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The Smith Family: not the timing we wanted
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Saturday, March 22, 2014. Not the timing we wanted. At first I though maybe the lab was backed up. Then I thought that maybe something was wrong with the blood work or maybe they weren't able to figure out what MD Deacon has. So I called the lab myself. I talked to the nicest person. I explained our situation and she said she would figure it out! Lesson learned… ask if payment needs to be made before whatever test will be run! Subscribe to: Post Comments (Atom). Amazima: an amazing story. November 25, 20...
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The Smith Family: December 2012
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Sunday, December 30, 2012. After we returned home from our safari, there wasn't much going on. we did a lot of sitting and waiting. Uganda celebrated their 50th Jubilee, we watched some soccer, did some shopping, slept well, and just enjoyed being where we were. Fast forward to October 16:. So we left and decided to go get some items that we need from Deacon's file to start his medicals. It is 3 days that we won't have to do next week. Huge! Hanging on the porch. Saturday, December 29, 2012. I spotted at...
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The Smith Family: July 2012
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Saturday, July 28, 2012. We received news on friday that we won't be traveling to UG as planned. there is a court delay and it has pushed us back 2 weeks. so we are hoping to leave at the end of August for an early September court date. We are doing okay with the news. it means we get to be with the kids as they start their new school year which is good. it is hurting our pocket book though as we had already bought our tickets. $900 later we are now working on new flights. Monday, July 23, 2012. Today, J...
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The Smith Family: September 2012
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Saturday, September 29, 2012. After many many court changes which lead to airline ticket changes, we are in Uganda! We have met our sweet boy and are on day 6 of being in country. Our court date has been changed once again but it was only delayed 3 business days due to our judge being sick and giving our case to another judge. Pray for a quick court date and a positive ruling! Saturday, September 8, 2012. Totally stole this from a friend's fb page. Several months later, we were led back to the continent ...
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The Smith Family: She was great
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Sunday, March 9, 2014. We visited the neurologist just 6 days after hearing the words "I think we need to have Deacon tested for Muscular Dystrophy." It feels like those days took forever but 6 days really isn't that long. We headed to OKC and nervously waited to go back to the doctor's office. Subscribe to: Post Comments (Atom). Amazima: an amazing story. Go here to make a difference. Not the timing we wanted. Today has been a hard day. I made it through worsh. Blogs I enjoy or learn from. November 19, ...
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The Smith Family: November 2012
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Monday, November 19, 2012. Some would say that this adoption went pretty quickly. We turned in paperwork in January and were home with our son at the end of October. Ten months. That is quick for international adoption. Really, it is quick for any kind of adoption. At the one year anniversary of Grace being home, we were going to start again. We would bring another child home to our family. Then Rwanda shut their doors. So that wasn't the right place. We tried to adopt through our state&#...There was so ...