blog.kelleycom.com

kelleycom.com

Hemophilia Education Experts since 1990 - LA Kelley Communications, Inc.

http://www.kelleycom.com/index.html

Project SHARE donates blood-clotting medicine to developing countries. Factor units donated to date:. Sponsor a child with hemophilia from a developing country for less than $1 a day. Become a fan of Save One Life! Books for Parents & Patients. Books for Children & Teens. CD, DVD, & Video. Project SHARE Annual Reports.

kelleycom.com

LA Kelley Communications, Inc. - Scholarships

http://www.kelleycom.com/scholarships.html

Empowering yourself to design and elevate your life requires education. The hemophilia community is fortunate to have abundant scholarships available to current and future college students with bleeding disorders to help them get the education they need to live the lives they dream. Baxalta's Education Advantage Scholarship Program. Multiple scholarships will be awarded up to:. College/University - $7,000 renewable for up to three additional years. GED: $150 (one time only). PO Box 811 Enfield, CT 06083.

prophyholic.blogspot.com

ProphyHolic HemoMom: January 2014

http://prophyholic.blogspot.com/2014_01_01_archive.html

The random thoughts of a Mother dedicated to taking care of her sons with hemophilia, staying involved in the hemophilia community and continuing to learn about hemophilia. Professor Mark Kendall uses the device he designed and patented to attach a Nanopatch to a child’s forearm. Brisbane, Australia, 2012. Photo: ©Rolex Awards/Julian Kingma. Posted by Lovee' Johnson-Lundy. Links to this post. Hemophilia Shout Out during AFC Divisional Playoffs! 160;     The hemophilia community is such a small ...I think...

kelleycom.com

LA Kelley Communications, Inc. - CD, DVD & Video

http://www.kelleycom.com/emedia.html

For Parents and Patients. For Children and Teens. CD, DVD and Video. My First Factor Song. Sing Along and Teach Through Song: Bumps, bruises, falls, and boo-boos are all normal parts of growing up. However, for children with hemophilia, they also provide opportunities to teach your young child about hemophilia care in a way that they can remember and share with others. Lyrics by Carri Nease. Http:/ thereforyou.com/patient-resources/my-first-factor-song.html. A Bright Future (series). Russian, Chinese;.

bloodrelationsblog.blogspot.com

Blood Relations Blog: Day One

http://bloodrelationsblog.blogspot.com/2012/01/hi-everyone-im-starting-blog-about-my.html

Sunday, January 8, 2012. Hi everyone, I'm starting a blog about my experiences in the bleeding disorders community. Its been a long time since I've wanted to write about my life with hemophilia. Somehow I was just not doing it. Is a bleeding disorder. About 1 in 10,000 people are born with it. Now that makes me a very unique creature. Its like being different from everyone else. Isn't that what a lot of people want to be. Well ask me! Read about the 'Survive in the Jungle'. Posted by Vaibhav Nehra. Thank...

bloodrelationsblog.blogspot.com

Blood Relations Blog: A minute protein causes a lot of trouble

http://bloodrelationsblog.blogspot.com/2012/05/minute-protein-causes-lot-of-trouble.html

Thursday, May 24, 2012. A minute protein causes a lot of trouble. A minute protein can cause a lot of trouble.not by its presence, but by its absence. People with hemophilia have to experience it every day. If you feel your life is tough.think about the boy who suffers from this incurable blood clotting disorder and lives in an underdeveloped nation without having any access to treatment. That is what a tough life is! Posted by Vaibhav Nehra. Subscribe to: Post Comments (Atom). World Hemophilia Day 2012.

prophyholic.blogspot.com

ProphyHolic HemoMom: Needle Free Vaccinations!

http://prophyholic.blogspot.com/2014/01/needless-vaccinations.html

The random thoughts of a Mother dedicated to taking care of her sons with hemophilia, staying involved in the hemophilia community and continuing to learn about hemophilia. Professor Mark Kendall uses the device he designed and patented to attach a Nanopatch to a child’s forearm. Brisbane, Australia, 2012. Photo: ©Rolex Awards/Julian Kingma. Posted by Lovee' Johnson-Lundy. Thanks for your comments or sharing your own stories:. Subscribe to: Post Comments (Atom). There was an error in this gadget. What's ...

kelleycom.com

Periodicals - LA Kelley Communications, Inc.

http://www.kelleycom.com/periodicals.html

For Parents and Patients. For Children and Teens. CD, DVD and Video. Inspirational stories about families with hemophilia; product information from Baxalta. Newsletter of largest US hemophilia nonprofit. Articles on bleeding disorder medical research and treatment; articles for families; reports on community events. Hemophilia Federation of America (HFA). Hard copy or e-newsletter. Plasma Protein Therapeutics Association. World Federation of Hemophilia (WFH). Patient Services, Inc. (PSI). Newsletter of n...

fibrinogenfree.blogspot.com

Fibrinogen Free: Miner's Canary

http://fibrinogenfree.blogspot.com/2014/04/miners-canary.html

Personal essays from a woman born with no fibrinogen. Tuesday, April 22, 2014. When I get to a mirror I see my yellow face and blood shot eyes staring back at me, looking frightened. I go back to bed and sleep another two hours. The doctor said these new medications were safe, minor side effects, perhaps some rash or slight headache. I took a leap of faith and agreed to go down the mine. Late in 2013 I learned there was a new drug available for Hepatitis C, a second had been approved by the FDA; it was d...