trulylivingwithcf.blogspot.com
Truly Living with CF: February 2013
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Truly Living with CF. A blog about how cystic fibrosis affects our family's life. Thursday, February 14, 2013. Upcoming Great Strides Walk - 2013. Great Strides is coming up in May. After a couple of months of trying to decide if I should be the sole organizer, I finally decided it's best for me and the pregnancy if I took this year off. I asked a few friends if they would be interested in taking over (at least for 2013) and had one step up and say yes. What a relief! We hope to see you at the walk!
trulylivingwithcf.blogspot.com
Truly Living with CF: November 2012
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Truly Living with CF. A blog about how cystic fibrosis affects our family's life. Tuesday, November 27, 2012. November CF Clinic and Family Update. Miss Rach mixing the cookie dough. That girl just cracks me up -. Never a dull moment. Rach posing with the "turkey" cookies. She so proud of how they turned out. Baby pecan and pumpkin pies. Rachel is so excited for her sister to get here. May 1st is the due date and all I hear out of Rachel is how that is going to take forever! Links to this post. Rachel's ...
trulylivingwithcf.blogspot.com
Truly Living with CF: April 2014
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Truly Living with CF. A blog about how cystic fibrosis affects our family's life. Monday, April 14, 2014. I couldn't put any photos of Rach with the cast because they were filming the season finale and it could give it away.).after the finale airs I'll post some more pics. Thank you Make-A-Wish Hawaii, it's volunteers, and everyone else that made Rachel's wish come true. . . Gifts from Dave and Busters. In the "screening room". Eating at one of her favorite restaurants. Links to this post. Adorable Red C...
trulylivingwithcf.blogspot.com
Truly Living with CF: August 2013
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Truly Living with CF. A blog about how cystic fibrosis affects our family's life. Wednesday, August 7, 2013. Napping on the beach. I wasn't really going to post about this. My original thought was, "It's no body's business." Then I thought, "Well, people that follow this blog may be curious and just interested to know.". So, after a couple weeks or so, we got the results from both. Amelia does not have CF but she is a carrier. Links to this post. Parenting child with special needs. Search for Stuff Here.
trulylivingwithcf.blogspot.com
Truly Living with CF: It's Been a Looonnnnggg Time!
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Truly Living with CF. A blog about how cystic fibrosis affects our family's life. Tuesday, November 11, 2014. It's Been a Looonnnnggg Time! Anyway, below is a slide show of what we were up to all summer and into the homeschool year. Crazy me with my sweet friend. Ala Moana Beach Park. July 4 Waiting for the fireworks. Rach with one of her besties. Playing in the ocean. Ala Moana Beach Park. July 4 Waiting for the fireworks. Ala Moana Beach Park. Blooms from my plumeria tree. Rach and one of her besties,.
trulylivingwithcf.blogspot.com
Truly Living with CF: March 2015
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Truly Living with CF. A blog about how cystic fibrosis affects our family's life. Sunday, March 1, 2015. After waiting months, we know where our next Army move will be. It's bittersweet because we've been here just over 7 years and have made so many memories. Rachel just celebrated her 9th birthday with her BFF's on the beach.Yes, I'm sad to go but excited to be closer to family and friends and be back in the country! Mermaid in "da pool". She still has school! Learning about the body. Links to this post.
trulylivingwithcf.blogspot.com
Truly Living with CF: October 2013
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Truly Living with CF. A blog about how cystic fibrosis affects our family's life. Thursday, October 17, 2013. Links to this post. Parenting child with special needs. Subscribe to: Posts (Atom). Search for Stuff Here. Hawaii, United States. Im an Occupational Therapy Assistant, a wife to an Army man, and a mom to the sweetest little girl that happens to have cystic fibrosis (CF). I currently stay at home with my daughter to care for her special needs. and its fun to be with her! View my complete profile.
victorias-victory.blogspot.com
Victoria's Victory: May 2012
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Friday, May 18, 2012. It is very well written. And I agree almost totally. Napping in the recliner. Picnic blanket at the park. We went to the CF clinic today. But before we got there, we had to make our traditional stop at McDonald's for a chicken nugget happy meal. I'm happy to say she ate every last bite, plus a small fry. She might have eaten a medium if I'd gave her one. Of course the staff at the clinic comments that we have McDonald's again. Either could be true, but I agree with the doctor. No An...
trulylivingwithcf.blogspot.com
Truly Living with CF: May 2013
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Truly Living with CF. A blog about how cystic fibrosis affects our family's life. Tuesday, May 21, 2013. Baby Amelia has arrived. She was born Saturday, April 27th (she's now 3 weeks old). She's a real sweetie, just like her big sis. Rachel adores Amelia and keeps saying, "I can't believe I have a baby sister! Rachel is constantly giving Amelia kisses on her head and toes. I thought I'd share a few pictures in this welcome post. Obviously after the epidural! Amelia is wearing the dress Rachel came home in.
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