bmrnpatientadvocacy.com
Batten Awareness | BioMarin Patient Advocacy Website
http://www.bmrnpatientadvocacy.com/rare-disease-calendar/batten-awareness
Rare Disease Events Calendar. We Are Connected Through Hope. Batten Disease Awareness Weekend June 7th- June 8th, 2014. From reaching out at a fundraising garage sale to speaking in front of their congregation, the BDSRA provides materials and a regular newsletter for follow-up on the initial outreach and provides ways for others to become involved. Families are also encouraged to get out in their neighborhoods and to tell their stories. Our Work to Treat Batten Disease. BioMarin’s BMN 190 program is an ...
bmrnpatientadvocacy.com
Handprints Across America | BioMarin Patient Advocacy Website
http://www.bmrnpatientadvocacy.com/rare-disease-calendar/handprints-across-america
Rare Disease Events Calendar. BioMarin Patient Advocacy Events. Powered by BioMarin Pharmaceutical Inc.
bmrnpatientadvocacy.com
Rare Disease Day | BioMarin Patient Advocacy Website
http://www.bmrnpatientadvocacy.com/rare-disease-calendar/rare-disease-day
Rare Disease Events Calendar. BioMarin is Preparing For. Rare Disease Day on February 29th, 2016! Annual International Rare Disease Day February 28th. 2014 Rare Disease Day Celebration. Rare Disease Day 2014 at BioMarin. Global Rare Disease Day. Employees Meet Patients at the March 6 Rare Disease Cooler. Rare Disease Day 2013 at BioMarin. The rare disease community and patient advocates in more than 60 countries around the world joined together on Feb 28th, 2013. Barbara Wuebbels, Associate Director of P...
bmrnpatientadvocacy.com
Our Team | BioMarin Patient Advocacy Website
http://www.bmrnpatientadvocacy.com/advocacy
Rare Disease Events Calendar. For more information please contact us:. X6d;oc.nrmb null. X40;ycacovdatneitap. Powered by BioMarin Pharmaceutical Inc.
sandrashpilberg.com
Deeper: November 2013
http://www.sandrashpilberg.com/2013_11_01_archive.html
Fearless Depth on Juicy Topics. Friday, November 22, 2013. What Goldie Blox is Telling My Girl, Which I Won’t Let Her Hear. My blog is new and improved! Got me out of my retreating stupor, because I got stuff to say. You knew it. I now know it. I am back. I relaunched the blog as DEEPER because I wish to go deeper into a variety of topics. I will still write about what it means to be a woman, a mother, a working mom, but I have a few other topics.you'll see! So… Goldie Blox. Ugh Let me tell you a story.
battens.org.au
Network Links | Battens Disease Support & Research Association
http://battens.org.au/network-links
Skip to main content. The Australian Chapter of BDSRA. What is Batten Disease. What is Batten Disease. What are the forms of NCL? How many people have these disorders? Clinical course of Batten disease. How are NCLs inherited? What causes these diseases? Is there any treatment? Australian and NZ development? YOU CAN FIND US NOW ON. LDNZ (Lysosomal Diseases New Zealand). BT4K (Better Treatment For Kids NSW). BIOMARIN (Batten Disease Research Partners). USA’s Batten Disease Support and Research Association.
biomint.eng.uci.edu
Welcome To BioMiNT
http://biomint.eng.uci.edu/people.html
This page contains contact information and links to the personal home pages for all current and past members of the lab. Professor Abraham Abe P. Lee, Ph.D. Dylan Boyle, Garri Arzumanyan, Hamsa Gowda, Joseph Ssu-Chieh Hsu. Assistant Professor, Shanghai Jiaotong University. Microfluidic Scientist, Micareo. Assistant Professor, National Taiwan University. Eugene Huang, Ph.D. Sony Asuncion V. Lemoff. Microfluidics and Biotechnology Consultant, West Virginia. Yung-Chieh (Mike)Tan, Ph.D. Lisen Wang, Ph.D.
bmrnpatientadvocacy.com
Patient Voices | BioMarin Patient Advocacy Website
http://www.bmrnpatientadvocacy.com/category/patient-voices
Rare Disease Events Calendar. Parent Advocates: Tracy and Jen VanHoutan. Kendra Mentors Students With Disabilities. MPS VI Patient Patricia Espinal Shares Her Story. BioMarin Patient Advocacy Events. Powered by BioMarin Pharmaceutical Inc.
bmrnpatientadvocacy.com
On The Road | BioMarin Patient Advocacy Website
http://www.bmrnpatientadvocacy.com/on-the-road
Rare Disease Events Calendar. ACMG - Annual Clinical Genetics Meeting - Nashville, TN 2014. New Horizons In The Management of mucopolysaccaridosis Type IVA: Translating Research into Practice To Resolve Key Diagnostic and Treatment Challenges". Best Practices for Optimal Management of Patients With Phenylketonuria Across the Lifespan: How Should the Latest Evidence Inform Our Practice. Batten Disease Support and Research Association (BDSRA) meeting- Nashville, TN 2013. The following day the Japanese MPS ...
bmrnpatientadvocacy.com
MPS Awareness | BioMarin Patient Advocacy Website
http://www.bmrnpatientadvocacy.com/rare-disease-calendar/mps-awareness
Rare Disease Events Calendar. International MPS Awareness Day is May 15th! National MPS Society 2013 Run/Walk Sponsored by BioMarin. The annual MPS walk was held on Saturday, October 19, 2013 at McNear Beach Park in San Rafael! This year’s event was the: 2013 Rock-n-Roll 5k Walk/Run . For more information click here. BioMarin Patient Advocacy Events. Powered by BioMarin Pharmaceutical Inc.