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Busily Seeking 2.0

Busily Seeking 2.0: a blog about rare disease and personal experience

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Busily Seeking 2.0 | bobbyhank14.blogspot.com Reviews
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Busily Seeking 2.0: a blog about rare disease and personal experience
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2 will it shrink
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suffer,will it shrink,posted by,jeneva stone,1 comment,email this,blogthis,share to twitter,share to facebook,share to pinterest,depletion,5 comments,tunnel,short sleeves,will we,sole,2 comments,lift,scale,with good wishes,with hope,destroyed,what lunacy
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Busily Seeking 2.0 | bobbyhank14.blogspot.com Reviews

https://bobbyhank14.blogspot.com

Busily Seeking 2.0: a blog about rare disease and personal experience

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1

Busily Seeking 2.0: Scale

http://www.bobbyhank14.blogspot.com/2015/04/scale.html

Busily Seeking 2.0. Of love, disease and genetic variation. Monday, April 6, 2015. A New Yorker cartoon shows a folded paper crane (out-of-scale, very large) lifting beams to assemble a Japanese-style home. A man with a hard hat stands nearby. I forget what the paper cranes stand for- something to do with prayers? It was perfectly formed, although no bigger than an inch square, maybe even 3/4 of an inch. The man bowed slightly as he backed away. I thanked him, of course. The tiny crane- white for purity,...

2

Busily Seeking 2.0: Depletion

http://www.bobbyhank14.blogspot.com/2015/07/depletion.html

Busily Seeking 2.0. Of love, disease and genetic variation. Friday, July 3, 2015. Depletion feels like this: roar of voices brushing past the sides of my face; sets of tiny hands clutching tasks in one fist, grabbing my shirt with the other and pulling, pulling; lists blurry with wavy scribbles crossing off items, so cluttered with pen marks I can barely read those yet undone; pressure building hydraulic, a frustration, as those who ought to have been more flexible refuse to bend. July 3, 2015 at 7:11 PM.

3

Busily Seeking 2.0: Suffer

http://www.bobbyhank14.blogspot.com/2015/07/suffer.html

Busily Seeking 2.0. Of love, disease and genetic variation. Sunday, July 26, 2015. Lovely to see Robert so very happy and engaged at Imagination Stage. Yet I feel increasingly worried about his level of happiness. How can I maintain that as his world shrinks? That possibility real as the physical constriction of my throat as the thought enters my mind. Sometimes people mention or reference a concern that Robert suffers. I honestly think no. Is his life challenging? Sure But does he suffer? For several ye...

4

Busily Seeking 2.0: One Step Forward, One Back (but not 12 steps)

http://www.bobbyhank14.blogspot.com/2015/04/one-step-forward-one-back-but-not-12.html

Busily Seeking 2.0. Of love, disease and genetic variation. Sunday, April 5, 2015. One Step Forward, One Back (but not 12 steps). I've been blocked from writing in this diary because I know I need to write a little bit about a realization within the last month that involves my husband's family. So there's a sensibility about a public/private line and whether or not it should be crossed. How it should be crossed, really. The exemplar of what it looks like to "hit bottom"? And, yes, my husband has told me ...

5

Busily Seeking 2.0: Sole

http://www.bobbyhank14.blogspot.com/2015/05/sole.html

Busily Seeking 2.0. Of love, disease and genetic variation. Thursday, May 21, 2015. I've taken a break from blogging while I was enrolled in a mindfulness course- meditation has been good for my soul. And my soles- the soles of my feet. Not only are there sitting meditations, but movement meditations. "Walking meditation" has not been one of my favorites, and I have never practiced it at home. The last day of class, though, we worked on it again. Why move with such focus and deliberation? So this momenta...

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Busily Seeking 2.0. A diary of caregiving. Sunday, July 26, 2015. Lovely to see Robert so very happy and engaged at Imagination Stage. Yet I feel increasingly worried about his level of happiness. How can I maintain that as his world shrinks? That possibility real as the physical constriction of my throat as the thought enters my mind. Sometimes people mention or reference a concern that Robert suffers. I honestly think no. Is his life challenging? Sure But does he suffer? Friday, July 3, 2015. The sun o...

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