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Butterfly Kisses: January 2014
http://myleegrace2006.blogspot.com/2014_01_01_archive.html
Wednesday, January 1, 2014. Our day today, the first day of the year 2014 is now coming to a close. Dave has just finished his run for the day and he is feeling great! We are less than 3 weeks now until Arizona's PF Chang Rock N Roll Marathon. We are excited for TGen's Rare Childhood Disorders. To be an official charity this year! Team Mylee's Marathoners continues to train hard and fundraise with so much enthusiasm! We are so proud and excited for this fun event! We are so grateful for those who continu...
Butterfly Kisses: September 2013
http://myleegrace2006.blogspot.com/2013_09_01_archive.html
Thursday, September 5, 2013. We continue to breath. to live without our princess. Life over the past sixteen and half months has been mostly in a fog. Moments of clarity are few and far between. However, we continue to live. Our continuous heartache is a painful reminder of the fight she so courageously fought. A piece of her baton passed on to each of us as we continue her fight against rare childhood disorders and our hope of victory against Mitochondrial disease. Never Give Up,. About Me. ♥. Kristen K...
Butterfly Kisses: June 2011
http://myleegrace2006.blogspot.com/2011_06_01_archive.html
Tuesday, June 21, 2011. Finding a happy balance ♥. Realities really seem to be a struggle lately and even writing those first few words really aren't accurate because the struggles have been on going for almost a year! It must be due to her outgrowing the baby years and into a child. Why am I having such a hard time with the reality of having a child with disabilities? Is it my faith that I believe a miracle could happen? Is it the HOPE that one day she could be healed on this earth? Tuesday, June 7, 2011.
Butterfly Kisses: February 2011
http://myleegrace2006.blogspot.com/2011_02_01_archive.html
Tuesday, February 15, 2011. Child's play.♥. We enjoyed the beautiful weather yesterday and took the girls to the park. it was a suggestion by Mylee's physical therapist to meet at our local city park in our neighborhood. It was amazingly beautiful outside, I think the temperture was almost 80 degrees! In fact, so well that she created angels in the sand (us desert folk make sand angels instead of snow angels! Wednesday, February 9, 2011. Bonded forever ♥. Thursday, February 3, 2011. A smile like no other.
Butterfly Kisses: Who is your Hero?
http://myleegrace2006.blogspot.com/2014/02/who-is-your-hero.html
Friday, February 21, 2014. Who is your Hero? Do you remember being in school or a young child and someone asking you, "Who is your hero? This is one hero we are so thankful to also call our friend. In 58 days, Phil Maderia and his Genzyme running team. Of 30 runners will be running in the Boston Marathon for rare diseases. They are dedicated to making an impact on the lives of people fighting these incredible battles of diseases without treatment options or cures. Alone we are rare, together we are strong.
Butterfly Kisses: July 2011
http://myleegrace2006.blogspot.com/2011_07_01_archive.html
Saturday, July 9, 2011. I have sat down many times in the past few weeks to update this blog and ended up having to put it away because my head was full of fog, much like it is at the moment but I decided to just start writing and I would re-read to see what I came up with before posting the written thoughts. Seizures activity and unusual episodes. New brain changes; lesions, atrophy. Subscribe to: Posts (Atom). About Me. ♥. We try to live our lives peacefully and by our family mantra to "Never Give Up"&...
Butterfly Kisses: We continue to breath.... to live without our princess.
http://myleegrace2006.blogspot.com/2013/09/we-continue-to-breath-to-live-without.html
Thursday, September 5, 2013. We continue to breath. to live without our princess. Life over the past sixteen and half months has been mostly in a fog. Moments of clarity are few and far between. However, we continue to live. Our continuous heartache is a painful reminder of the fight she so courageously fought. A piece of her baton passed on to each of us as we continue her fight against rare childhood disorders and our hope of victory against Mitochondrial disease. Never Give Up,. About Me. ♥. Kristen K...
Butterfly Kisses: March 2010
http://myleegrace2006.blogspot.com/2010_03_01_archive.html
Sunday, March 28, 2010. I always wonder what her little thoughts are. like I said her expression tell it all. Despite the challenges she competes for each day - she will always be our champion! We also fight each day for Mylee and continue our journey with her unknown metabolic diagnosis. It seems to be pointing towards a mitochondrial disease. We may never know for sure, but still encourage all of our friends and family to help us fight this battle! On Being a Champion. A Champion is a winner,. We have ...
Jane's Random Thoughts and Other Stuff: Trike-a-Thon at Preschool!
http://janeherb.blogspot.com/2010/11/trike-thon-at-preschool.html
Jane's Random Thoughts and Other Stuff. Thursday, November 18, 2010. Subscribe to: Post Comments (Atom). Custom Scrapbooks by Trina. Books in my library (search janeeherb). View my complete profile. White Tanks Library and Nature Center- Grand Opening. Http:/ boisejillw.blogspot.com. Watermark template. Powered by Blogger.
Jane's Random Thoughts and Other Stuff: Three Baby Herbs Get Baptized!
http://janeherb.blogspot.com/2010/12/three-baby-herbs-get-baptised.html
Jane's Random Thoughts and Other Stuff. Tuesday, December 28, 2010. Three Baby Herbs Get Baptized! Here are pics from the boys' most important day of their lives! January 9, 2011 at 7:25 PM. Subscribe to: Post Comments (Atom). Custom Scrapbooks by Trina. Books in my library (search janeeherb). View my complete profile. Three Baby Herbs Get Baptized! Http:/ boisejillw.blogspot.com. Watermark template. Powered by Blogger.
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