iwillliftmyeyesconnorkhoury.blogspot.com
I Will Lift My Eyes: October 2010
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I Will Lift My Eyes. Bravely Battling Opsoclonus-Myoclonus Syndrome and Neuroblastoma. Tuesday, October 19, 2010. Just wanted to let everyone know why we haven't been home to answer the phone or anything else lately. I cut his speech therapy shedule back from Monday and Friday after school to just Tuesday afternoon once a week. Arranged to get him in there and to a secluded area away from all the kids so he doesn't catch their germs (hopefully). He gets his 2nd dose of the Rituxan on Thursday and two mor...
iwillliftmyeyesconnorkhoury.blogspot.com
I Will Lift My Eyes: April 2010
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I Will Lift My Eyes. Bravely Battling Opsoclonus-Myoclonus Syndrome and Neuroblastoma. Monday, April 26, 2010. Connor had wonderful party yesterday afternoon-even if it DID rain on our outside fun we had plannned. Luckily I had planned an indoor activity for the kids as well-so they had a blast making sand bottles with a sand art kit-they turned out beautifully! Links to this post. Tuesday, April 13, 2010. I wish it had stung me so badly, I don't know if he will get back in the ocean anytime soon, lol.
iwillliftmyeyesconnorkhoury.blogspot.com
I Will Lift My Eyes: Lots going on...
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I Will Lift My Eyes. Bravely Battling Opsoclonus-Myoclonus Syndrome and Neuroblastoma. Tuesday, October 19, 2010. Just wanted to let everyone know why we haven't been home to answer the phone or anything else lately. I cut his speech therapy shedule back from Monday and Friday after school to just Tuesday afternoon once a week. Arranged to get him in there and to a secluded area away from all the kids so he doesn't catch their germs (hopefully). He gets his 2nd dose of the Rituxan on Thursday and two mor...
iwillliftmyeyesconnorkhoury.blogspot.com
I Will Lift My Eyes: Making it through...
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I Will Lift My Eyes. Bravely Battling Opsoclonus-Myoclonus Syndrome and Neuroblastoma. Wednesday, November 3, 2010. A few days break will make a huge difference for us all. My foot is a little better (I sprained it really bad two weeks ago) it is TRUE what they say about sprains hurting more than breaks! The numbers came out today at our clinic (Aflac Cancer Center@CHOA) and 361 new cancer cases were diagnosed this year alone at just this clinic! Thanks for checking on my little guy. Connor was SO happy ...
iwillliftmyeyesconnorkhoury.blogspot.com
I Will Lift My Eyes: March 2010
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I Will Lift My Eyes. Bravely Battling Opsoclonus-Myoclonus Syndrome and Neuroblastoma. Monday, March 29, 2010. Wild ride around here! The Big Top Cupcake! Random colorings by Connor. Samantha's American Girl Doll in her jammies "aka, hospital jammies according to Connor" He is right though-they DO look like hospital gowns at Scottish Rite, lol! And even now Samantha has started having some computer homework too, it blows my mind. He is excited about his birthday coming up soon (April 26th) That evening w...
iwillliftmyeyesconnorkhoury.blogspot.com
I Will Lift My Eyes: January 2010
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I Will Lift My Eyes. Bravely Battling Opsoclonus-Myoclonus Syndrome and Neuroblastoma. Wednesday, January 27, 2010. Hanging out at Scottish Rite clinic together. Not too surprising-me and Sam are very sick with whatever Connor has had.never had a sore throat like this before! Hopefully we will be better soon-Sam is planning on going to the doctor tomorrow and me on Friday. We didn't make it to the restaurant Saturday night :-( due to all this illness, hoping for this weekend maybe? Samantha has been enjo...
iwillliftmyeyesconnorkhoury.blogspot.com
I Will Lift My Eyes: July 2010
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I Will Lift My Eyes. Bravely Battling Opsoclonus-Myoclonus Syndrome and Neuroblastoma. Saturday, July 10, 2010. 3 years and counting. We have past the 3 year mark now for Connor's Getting sick with OMS.so much changed in such a short time. Thank you to everyone that has followed his progress and prayed for his cure from this horrible illness. He is doing well and getting better everyday! We are down to 6 mg. on the Decadron that Connor takes and only TWO days per month instead of three. So far he...Atlan...
iwillliftmyeyesconnorkhoury.blogspot.com
I Will Lift My Eyes: September 2010
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I Will Lift My Eyes. Bravely Battling Opsoclonus-Myoclonus Syndrome and Neuroblastoma. Friday, September 17, 2010. Been an emotional month, but a very successful one, spreading the word about childhood cancer! We had hopes of going to the circus this weekend.but decided not to risk it. We also wanted to try and get away for a few days-but just not sure if the kids can afford to miss even a day of school right now. Such is the life of high schoolers, lol. The dedicated ones I suppose anyway. Love to all,.
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I Will Lift My Eyes: Awareness
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I Will Lift My Eyes. Bravely Battling Opsoclonus-Myoclonus Syndrome and Neuroblastoma. Sunday, August 29, 2010. I cant believe it is almost September! So its been a long time since I posted an update.Lots of reasons why-mainly being I have been very focused on the kids and enjoying them. Tired of all the electronic distractions-tonight the Emmy's came on TV and it surprised me to notice I didn't recognize MOST of the shows they were raving about! Not much on I am interested in watching. Ryan and Stacy li...
iwillliftmyeyesconnorkhoury.blogspot.com
I Will Lift My Eyes: May 2010
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I Will Lift My Eyes. Bravely Battling Opsoclonus-Myoclonus Syndrome and Neuroblastoma. Saturday, May 22, 2010. I can hardly believe that school is almost out! Ryan and Connor only have one more day, and Stacy and Samantha have two. (the last day is optional at Columbus High because it is cinema day-popcorn and movies) I guess sleeping late and staying home sounded better to Ryan! Tuesday is Awards Day for Samantha. Her grades have been incredible this year! Not bad, huh? All the kids are getting very exc...