bpold.co.uk

Welcome to BPOLD

British Paediatric Orphan Lung Diseases (BPOLD). PATIENT and PARENT FORUM. BPOLD aims to establish a registry of nine rare lung diseases in children in the UK. The registry will provide epidemiological data on the prevalence and incidence of individual rare lung diseases and inform research projects which will increase our understanding of these diseases and ultimately improve treatment strategies for these children. BPOLD provides the following functions (click on each heading. To be taken to the page).

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British Paediatric Orphan Lung Diseases (BPOLD). PATIENT and PARENT FORUM. BPOLD aims to establish a registry of nine rare lung diseases in children in the UK. The registry will provide epidemiological data on the prevalence and incidence of individual rare lung diseases and inform research projects which will increase our understanding of these diseases and ultimately improve treatment strategies for these children. BPOLD provides the following functions (click on each heading. To be taken to the page).

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1 the diseases

2 monthly returns

3 news

4 contacts

5 links

6 welcome to bpold

7 a monthly returns

8 an information resource

9 on related sites

10 a support forum

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Welcome to BPOLD | bpold.co.uk Reviews

https://bpold.co.uk

British Paediatric Orphan Lung Diseases (BPOLD). PATIENT and PARENT FORUM. BPOLD aims to establish a registry of nine rare lung diseases in children in the UK. The registry will provide epidemiological data on the prevalence and incidence of individual rare lung diseases and inform research projects which will increase our understanding of these diseases and ultimately improve treatment strategies for these children. BPOLD provides the following functions (click on each heading. To be taken to the page).

INTERNAL PAGES

bpold.co.uk

1

BPOLD - News

http://bpold.co.uk/news.php

British Paediatric Orphan Lung Diseases (BPOLD). PATIENT and PARENT FORUM. BPOLD is now funded by the Edinburgh University Research and Development Fund. Thanks to Lynne Thompson, from Breathtakers. Plus others) for helping the Patient/Parent forum. However, some have been finding the registration process difficult. See if this GUIDE. To registration makes things easier. Link added to 'Links. New Primary Ciliary Dyskinesia Family Support Group. Link added to 'Links. And online at www.wiley.com. Problems ...

2

Orphan Paediatric Lung Conditions

http://bpold.co.uk/condition.php

British Paediatric Orphan Lung Diseases (BPOLD). PATIENT and PARENT FORUM. Orphan Paediatric Lung Conditions. Click on the disease you require more information about. You can download the Acrobat (.PDF) file of the text here or on the condition page. Parents and Young People with Orphan Lung Diseases in the UK. Parent and Patient Information Sheet and Consent Form. Adolescent Information Sheet (over 14 years). Young Persons Information Sheet (8-14 years). Child's Information Sheet (under 8 years of age).

3

bpold.co.uk :: Index

http://bpold.co.uk/phpBB

For patients and families to discuss and support. Log in to check your private messages. The time now is Sun Aug 21, 2016 12:36 pm. Bpoldco.uk Forum Index. Use this auth code when registering (to stop spam) bP0LdB8. Sat Jul 14, 2012 9:05 am. All times are GMT. Our users have posted a total of 1. The newest registered user is AndrewJohnson. In total there is 1. User online : 0 Registered, 0 Hidden and 1 Guest [ Administrator. Most users ever online was 62. On Sun Feb 08, 2015 9:46 pm.

4

BPOLD Monthly Returns

http://bpold.co.uk/monreturn.php

British Paediatric Orphan Lung Diseases (BPOLD). PATIENT and PARENT FORUM. BPOLD Monthly Returns - how it works. BPRS members can register for BPOLD via this site by using the register link on the top menu or by clicking here. Once registered you will receive a monthly text email containing two links (see the example below - click on the image for a larger view):. If you have not seen any patients with one of the nine listed BPOLD conditions then a single click.

5

Welcome to BPOLD

http://bpold.co.uk/index.php

British Paediatric Orphan Lung Diseases (BPOLD). PATIENT and PARENT FORUM. BPOLD aims to establish a registry of nine rare lung diseases in children in the UK. The registry will provide epidemiological data on the prevalence and incidence of individual rare lung diseases and inform research projects which will increase our understanding of these diseases and ultimately improve treatment strategies for these children. BPOLD provides the following functions (click on each heading. To be taken to the page).

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nospg.nhsscotland.com

NoSPRN | North of Scotland Planning Group (NoSPG)

http://www.nospg.nhsscotland.com/child-health-camhs/nosprn

North of Scotland Planning Group (NoSPG). Skip to primary content. North of Scotland Paediatric Respiratory Network. Clinical Lead: Dr Jonathan McCormick Network Manager: Carolyn Duncan. Attending a Review Clinic Appointment by Video Conference. Http:/ www.georgecoller.co.uk/. 8211; National Paediatric Respiratory and Allergy Nurses Group. 8211; CF Trust. 8211; British Thoracic Society. 8211; British Paediatric Respiratory Society. 8211; British Paediatric Orphan Lung Diseases (BPOLD). 8211; Asthma UK.

bprs.co.uk

British paediatric respiratory society

http://bprs.co.uk/link.php

British Paediatric Orphan Lung Diseases (BPOLD). The Cystic Fibrosis Trust. Royal College of Paediatrics and Child Health. National Paediatric Respiratory and Allergy Nurses Group (NPRNG). Ped-Lung - an international paediatric respiratory email discussion group.

redaat.es

REDAAT - Registro Español de Pacientes con Déficit Alfa-1 Antritipsina

http://www.redaat.es/enlaces-de-interes.php

REDAAT - Registro Español de Pacientes con Déficit Alfa-1 Antritipsina. Jornada sobre el déficit de alfa-1 antitripsina y EPOC - Las enfermedades minoritarias como modelos de patologías de gran prevalencia. Asociación Española para el Déficit de Alfa-1-Antitripsina. Fundación Love x air. Portal de registro de enfermedades raras. Año SEPAR enfermedades respiratorias minoritarias. SEPAR Pacientes - Pacientes como tú. Documentos en español en Alpha One Foundation. Alpha One International Registry (AIR).

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bpold.co.uk

Welcome to BPOLD

British Paediatric Orphan Lung Diseases (BPOLD). PATIENT and PARENT FORUM. BPOLD aims to establish a registry of nine rare lung diseases in children in the UK. The registry will provide epidemiological data on the prevalence and incidence of individual rare lung diseases and inform research projects which will increase our understanding of these diseases and ultimately improve treatment strategies for these children. BPOLD provides the following functions (click on each heading. To be taken to the page).

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