sweetsweetangels.blogspot.com
Angelman Syndrome, Life as an Angel: Minocycline results are out!
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Friday, December 12, 2014. Minocycline results are out! Well it's been a while since we posted but we have news! Many of you may remember that, in 2012, Brady took part in a clinical trial for a potential treatment for Angelman Syndrome. The medication was an antibiotic called minocycline. We have been fairly quiet while we anxiously awaited the results to be published.now they have been published and we can speak freely about our experience. His communication is amazing and we have gone from 10 words pr...
elijah-angelstory.blogspot.com
Elijah - an Angel Story: February 2010
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Monday, February 08, 2010. Branches on the Journey. As each day passes life is never the same again. new opportunities arise and present themselves - those who have gone before us forbears and children a like whisper call to us "Carpe Diem" - "Seize the day"- Gather the rosebuds while ye may - like the following scene from Dead Poets Society. Peace be with all readers of this blog and those whom they Love. Subscribe to: Posts (Atom). Christchurch, New Zealand. View my complete profile. Ashley. Our li...
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Elijah - an Angel Story: June 2011
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Tuesday, June 14, 2011. Hi Followers and readers - I have moved the continuing of this blog to the new following Site. Http:/ www.elijahangel.wordpress.com/. Please visit and subsribe at the new site. Subscribe to: Posts (Atom). Christchurch, New Zealand. Elijah had Angelman Syndrome. He lived in Christchurch New Zealand with his Mum, Dad and his sister Francesca. Elijah was returned to the Lord on 13 August 2007. This is his journey and our journey through the eyes of his Father - Darren.
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Elijah - an Angel Story: April 2009
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Sunday, April 05, 2009. Last year Julie and myself and Francesca watched the American Idol competition and it was as the competition was coming to an endi became aware ofthe Americn Idol Song writing competition that was also going on. Here is the song and the lyrics. Enjoy - peace be with you. Subscribe to: Posts (Atom). Christchurch, New Zealand. View my complete profile. Links and Favourite Place see below for blogs. Christos Concepts - Brochure Service. New Zealand Angelman Network.
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Elijah - an Angel Story: December 2009
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Tuesday, December 15, 2009. Continuation the Journey Continues. It is at the Bellabash site - www.bellabash.com that you can here Regie's song Angels wiating on wings. I was captivated the first time I heard this trak like the eyes of a stunned possum caught in the headlights. It was a preface to a DVD presentation by Dr Ed Weber from Foundation for Angelman Syndrome Theraputics FAST. The most recent project that involved Elijah was to work with Maiddy, a member of the Board of FAST. Elijah had Angelman ...
elijah-angelstory.blogspot.com
Elijah - an Angel Story: September 2008
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Thursday, September 18, 2008. For a week or so before this last weekend my sister Bernadette who lives in Dunedin said she was planning. Tuesday, September 09, 2008. Here's video clip of Elijah on the beach at Akaraoa in January 2007 - he is in his element in the water at the beach. Peace - unti next time. Friday, September 05, 2008. August continued in September. Subscribe to: Posts (Atom). Christchurch, New Zealand. View my complete profile. Links and Favourite Place see below for blogs. Sean Fennelly&...
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Elijah - an Angel Story: October 2009
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Thursday, October 22, 2009. Elijah's Legacy - The Journey Continues. Before I do let me tell you also another person that has inspired me both directly and indirectly - and this is a link to his latest post on his blog - Bella Bash 09. Speaks volumes about AS - this person is Regie Hamm. American Idol Songwriter winner 2008 with Time of My Life sung by David Cook, he isalsoa dad toIsabella who has Angelman Syndrome - I am inspired by his drive and passion for awareness and raising $ $ to support research.
elijah-angelstory.blogspot.com
Elijah - an Angel Story: December 2008
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Tuesday, December 02, 2008. The weekend before last I had the opportunity again the attend the Radio Network Sepcial Children's Christmas party - http:/ www.sccpnz.co.nz/index.html. I got to meet some great people and some fabulous kids as well - ilost count of the number of children I took through the toy cave. I met a little boy Isaac who was born with only half a heart and was able to share with his mum as well walked through the cave. I was also able to share Elijah's story with quite a few people.
elijah-angelstory.blogspot.com
Elijah - an Angel Story: October 2010
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Monday, October 04, 2010. Dancing in the Rain. Life is now about waiting for the storms to pass but learning to dance in the rain.". In planning for the Angelman Syndrome conference that took place here in Christchurch this past weekend, the first thought for a theme came to mind and thus it was. It was great to meet with both professionals and families to continue to share the Journey. Thanks Elijah - you rock my son. Subscribe to: Posts (Atom). Christchurch, New Zealand. View my complete profile. Sean ...
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Elijah - an Angel Story: August 2008
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Wednesday, August 13, 2008. How could have I ever imgaine that I would be experiecing this day? How could I have ever imagined that the precious gift of my son Elijah life would be so short and that a year ago today would be returned freely to the Lord, the giver of his life. Here is the clip - which can also be seen at http:/ www.youtube.com/user/dawg1467. Grief is the price we pay for having loved". And I found my mouth the word "So that God might be glorified". Friday, August 01, 2008. Elijah had Ange...
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