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Rebekah Faith - Redefining 'Incompatible With Life' - Living with Trisomy 18

A blog about the buddzoo, Rebekah Faith Budd (who is living, loving, and thriving with trisomy 18), and the trisomy journey.

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Rebekah Faith - Redefining 'Incompatible With Life' - Living with Trisomy 18 | buddzoo.blogspot.com Reviews
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Rebekah Faith - Redefining 'Incompatible With Life' - Living with Trisomy 18 | buddzoo.blogspot.com Reviews

https://buddzoo.blogspot.com

A blog about the buddzoo, Rebekah Faith Budd (who is living, loving, and thriving with trisomy 18), and the trisomy journey.

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Rebekah Faith - Redefining 'Incompatible With Life' - Living with Trisomy 18: April 2013

http://buddzoo.blogspot.com/2013_04_01_archive.html

Loving Life With Full Trisomy 18 - Edwards Syndrome - Helping Families with Prenatal and Postnatal Diagnosis of Trisomy 18, 13, and Related Chromosome Disorders - Dealing with Ethics, Genetics, and Related Medical and Health Issues. Wednesday, April 24, 2013. Make Change Through Grace. 8220;God appoints our graces to be nurses to other men's weaknesses.” -Henry Ward Beecher. Why did we stick with him? Well Rebekah surprised everyone! And it wasn't the point that Rebekah lived, because we were still very ...

2

Rebekah Faith - Redefining 'Incompatible With Life' - Living with Trisomy 18: Happy 1461 Days of Trisomy 18 Miracles!

http://buddzoo.blogspot.com/2013/04/happy-1461-days-of-trisomy-18-miracles.html

Loving Life With Full Trisomy 18 - Edwards Syndrome - Helping Families with Prenatal and Postnatal Diagnosis of Trisomy 18, 13, and Related Chromosome Disorders - Dealing with Ethics, Genetics, and Related Medical and Health Issues. Sunday, April 21, 2013. Happy 1461 Days of Trisomy 18 Miracles! Happy 4th birthday to our little miracle girl! In case you are checking your math, it's 1461 days because she lived through 1 leap year! Here is a look back through time. How she has changed! Rebekah celebrated h...

3

Rebekah Faith - Redefining 'Incompatible With Life' - Living with Trisomy 18: Foot Surgery - Finally!

http://buddzoo.blogspot.com/2013/06/foot-surgery-finally.html

Loving Life With Full Trisomy 18 - Edwards Syndrome - Helping Families with Prenatal and Postnatal Diagnosis of Trisomy 18, 13, and Related Chromosome Disorders - Dealing with Ethics, Genetics, and Related Medical and Health Issues. Monday, June 10, 2013. Foot Surgery - Finally! Another look at her feet from the bottom. you can see the outward curve of the right foot and the bony protrusion on the inside of that right foot. This is due to her talus bone in the foot appearing vertical and diagonal. You ca...

4

Rebekah Faith - Redefining 'Incompatible With Life' - Living with Trisomy 18: It's a bird! It's a plane! It's TinySuperhero Rebekah!!

http://buddzoo.blogspot.com/2013/07/it-bird-it-plane-it-tinysuperhero.html

Loving Life With Full Trisomy 18 - Edwards Syndrome - Helping Families with Prenatal and Postnatal Diagnosis of Trisomy 18, 13, and Related Chromosome Disorders - Dealing with Ethics, Genetics, and Related Medical and Health Issues. Tuesday, July 30, 2013. I can not even begin to formulate the words for the amount of love. She has been a warrior. Through it all. There is no doubt in my mind that Rebekah is a Tiny Superhero. And we received her official TinySuperheroes cape to prove it! What an amazing wa...

5

Rebekah Faith - Redefining 'Incompatible With Life' - Living with Trisomy 18: August 2013

http://buddzoo.blogspot.com/2013_08_01_archive.html

Loving Life With Full Trisomy 18 - Edwards Syndrome - Helping Families with Prenatal and Postnatal Diagnosis of Trisomy 18, 13, and Related Chromosome Disorders - Dealing with Ethics, Genetics, and Related Medical and Health Issues. Saturday, August 10, 2013. A Lazy Saturday Morning. I have a trisomy friend, Kara, whose T13 son's story has gone viral on YouTube and the Team Corbin facebook page has over 23k likes! Many have asked, how far are we willing to go? I want Corbin to experience life! Kara's wor...

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compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Time to Throw in the Towel

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/time-to-throw-in-towel.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Saturday, May 2, 2015. Time to Throw in the Towel. Yep, that kinda says it all. I called his ped yesterday morning and they changed his med to a different one, a hopefully better one. But by afternoon, "stuff" was just pouring out of him. Almost literally pouring out. But that's not where he is right now. Four weeks ago, he weighed 20&#...

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: We Just Don't Know...

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/we-just-dont-know.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Monday, May 4, 2015. We Just Don't Know. This kid is a mystery. He's not playing by the rules, which is often a good thing, but kinda perplexing. Here's what we know:. His first test was positive, his second (and third 'cause they were so surprised at the results) were negative. But this kiddo has a real sense of humor. The nasty di...

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Trisomy 18 Awareness Day

http://compatiblewithjoy-trisomy18.blogspot.com/2015/03/trisomy-18-awareness-day.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Wednesday, March 18, 2015. Trisomy 18 Awareness Day. I've tried for days to come up with something "important" or "profound" to say about today, and it just hasn't happened. Words can't convey the sorrow we feel when a child passes on, even if we haven't met them in person, the grief that rips at our soul, or the niggling of guilt that ...

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: For My Angel Mommy Friends

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/for-my-angel-mommy-friends.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Sunday, May 3, 2015. For My Angel Mommy Friends. I have a lot of angel mommy friends. Some are obvious, some less so. You'd expect that I have a lot in the Trisomy/Heart/Trach/Vent world. It's almost like we're afraid it might be catching. So if we don't acknowledge that it happens, it can't happen to us. So today, may I offer you a gif...

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: The "Go" Bag

http://compatiblewithjoy-trisomy18.blogspot.com/p/the-go-bag.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Here's what we travel with for Aaron. It seems really complicated, but it's not, because we only had to organize it once. Then when we use something, we just make sure to replace it. Except there was the one time when I forgot to replace diapers and ended up without any. Arg! The one staple of EVERY baby's "go" bag. Suction catheters (B...

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Medical History Template

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What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Page 1 - this is the most important page. MEDICAL ACTION (full code, dnr, no cpr, whatever). In this text box put:. Insurance Co and policy #. EGA (gestational age @ birth). Birth weight and blood type. Current weight and date last weighed. Trach size, vent settings. G-tube size, etc that would. Be needed ASAP in an. Anytown, ST 00000.

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: What Is Trisomy 18?

http://compatiblewithjoy-trisomy18.blogspot.com/p/what-is-trisomy-18.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. What Is Trisomy 18? Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a chromosomal defect. It occurs in about 1 out of every 3000 live births. The numbers increase significantly when early pregnancy losses are factored in that occur in the 2nd and 3rd trimesters of pregnancy. Subscribe to: Posts (Atom).

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Happy 11 Months!

http://compatiblewithjoy-trisomy18.blogspot.com/2011/05/happy-11-months.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Friday, May 13, 2011. BUT, come Thursday, his tummy had stretched and his meds had kicked in and lowered his lung pressures. Lo and behold, we're back down low on his oxygen usage and high on the smiles! He's still taking his antibiotics, but those will be done tomorrow. The weather is also gorgeous so I'm going to try to take him t...

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Pertinent Medical History

http://compatiblewithjoy-trisomy18.blogspot.com/p/pertinent-medical-history.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. This is by no means exhaustive. It can be used to help others who want to know what can be done for our little ones. Aaron is a 25 month old male with full Trisomy 18 diagnosed prenatally. He was born via C-section at 37 weeks, 2 days due to persistent heart decelerations with delayed recovery. He was not breathing at birth. Intubation ...

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Letter of Medical Necessity

http://compatiblewithjoy-trisomy18.blogspot.com/p/letter-of-medical-necessity.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Letter of Medical Necessity. September 24, 2012. A* * * P* * *. Insurance Company and ID number. To Whom It May Concern:. My son/daughter, * * *, is medically complex. His/her current diagnosis include:. List ALL diagnosis (ours is about 17. He uses: (List all equipment). LTV 1150 ventilator, dependent 24/7. He is not expected to develo...

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Rebekah Faith - Redefining 'Incompatible With Life' - Living with Trisomy 18

Loving Life With Full Trisomy 18 - Edwards Syndrome - Helping Families with Prenatal and Postnatal Diagnosis of Trisomy 18, 13, and Related Chromosome Disorders - Dealing with Ethics, Genetics, and Related Medical and Health Issues. Thursday, July 3, 2014. The Relationship Between Hot Weather and GI Issues. From one of the pages, I read the following:. I also found this Huffington Post article about a medical study on the relationship between climate GI health. It states that prolonged heat exposure ...

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