BUTTERFLYPRINCE17.BLOGSPOT.COM

Paper Thin Butterfly Skin... The Story of Our Butterfly Prince

Saturday, August 1, 2015. Regardless, I like to write. It's how I feel I can most express myself. I felt like I haven't been able to fully do that in a while and I miss it. So, I will be updating Gunner's blog now. Here I can openly exress myself, and that is what I need. I hope everyone is OK with that. :). I don't even know where to start. Gunner is 3 1/2 years old now. Time FLIES. He also has a little sister! Here is a current picture of my little darlings. Gunner Ray 3 1/2 years old. More on that soo...

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Paper Thin Butterfly Skin... The Story of Our Butterfly Prince | butterflyprince17.blogspot.com Reviews

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Saturday, August 1, 2015. Regardless, I like to write. It's how I feel I can most express myself. I felt like I haven't been able to fully do that in a while and I miss it. So, I will be updating Gunner's blog now. Here I can openly exress myself, and that is what I need. I hope everyone is OK with that. :). I don't even know where to start. Gunner is 3 1/2 years old now. Time FLIES. He also has a little sister! Here is a current picture of my little darlings. Gunner Ray 3 1/2 years old. More on that soo...

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Paper Thin Butterfly Skin... The Story of Our Butterfly Prince | butterflyprince17.blogspot.com Reviews

https://butterflyprince17.blogspot.com

Saturday, August 1, 2015. Regardless, I like to write. It's how I feel I can most express myself. I felt like I haven't been able to fully do that in a while and I miss it. So, I will be updating Gunner's blog now. Here I can openly exress myself, and that is what I need. I hope everyone is OK with that. :). I don't even know where to start. Gunner is 3 1/2 years old now. Time FLIES. He also has a little sister! Here is a current picture of my little darlings. Gunner Ray 3 1/2 years old. More on that soo...

INTERNAL PAGES

butterflyprince17.blogspot.com

1

Paper Thin Butterfly Skin... The Story of Our Butterfly Prince: Big things to share with Gunner's readers...

http://butterflyprince17.blogspot.com/2013/04/big-things-to-share-with-gunners-readers.html

Saturday, April 6, 2013. Big things to share with Gunner's readers. First and foremost, we have Gunner's genetic testing results back! And asked her if she could possibly "interpret" the report for me. I sent her a picture message of the report and within minutes she found links about Gunner's specific mutations. The first mutation is a RDEB-HS or (Hallopeau-Siemens) mutation. She then looked up the second mutation. Sure enough, that one too is a RDEB-HS mutation. Waiting on the derm team at the EB clinic.

2

Paper Thin Butterfly Skin... The Story of Our Butterfly Prince: Gunner's facebook page..

http://butterflyprince17.blogspot.com/2013/04/gunners-facebook-page.html

Friday, April 26, 2013. Is officially up and running. I want to thank Christie Zink, a wonderful EB advocate for helping with the design of the page and all the helpful info that you will find there. She is such a blessing to the EB community! Please feel free to "like" and "share" Gunner's story. His page will be more of day to day updates on Gunner. I will still be posting on the blog as well. Thank you all so much for all the prayers and support for our lil prince. :). Go to Gunner's facebook page here.

3

Paper Thin Butterfly Skin... The Story of Our Butterfly Prince: April 2013

http://butterflyprince17.blogspot.com/2013_04_01_archive.html

Friday, April 26, 2013. Is officially up and running. I want to thank Christie Zink, a wonderful EB advocate for helping with the design of the page and all the helpful info that you will find there. She is such a blessing to the EB community! Please feel free to "like" and "share" Gunner's story. His page will be more of day to day updates on Gunner. I will still be posting on the blog as well. Thank you all so much for all the prayers and support for our lil prince. :). Go to Gunner's facebook page here.

4

Paper Thin Butterfly Skin... The Story of Our Butterfly Prince: I find myself dreaming...

http://butterflyprince17.blogspot.com/2013/03/i-find-myself-dreaming.html

Thursday, March 21, 2013. I find myself dreaming. Of the cure (or even a successful treatment for that matter) for EB more and more everyday. Because, every single day that goes by, EB gets harder. Especially for our Gunner, but also for Cody and I having to watch what EB is doing to our prince. Those of you that are close to us are probably thinking to yourselves, "What? My heart that he is constantly. nervous around me. Here is some of the latest wound pics:. His whole foot was a blister here. Gunner a...

5

Paper Thin Butterfly Skin... The Story of Our Butterfly Prince: August 2012

http://butterflyprince17.blogspot.com/2012_08_01_archive.html

Monday, August 6, 2012. Hey everyone, hope that everyone is doing well. It's been a long while since I last updated. Our little guy is just growing right before our eyes. He is truly a blessing from God. He will be 8 months old on the 14th of August. I recently had to quit my job, Gunner had an infection that was getting pretty serious. The company was so amazing and understanding! Recently there have been many wildfires across Oklahoma. Many have lost their homes and everything along with it. My...I am ...

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abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.: Ben Jr's Journey Day 1

http://abuckforbenjr.blogspot.com/2013/01/ben-jrs-journey-day-1.html

Honoring a EB soldier Ben Wiley Jr. Wednesday, January 9, 2013. Ben Jr's Journey Day 1. Oct 26, 2011. When we got home I went to sleep. I woke up and told my husband that I was not feeling well. Ben Sr. was all excited and said, "YES hospital time baby! Give me my SON! We decided to go to the hospital, packed the girl's bags, dropped them off at my mom's, contractions were coming, but they were very different then I remembered. Oct 27, 2011. All this in one day. My next blog I will include learning dress...

abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.: 100 pennies

http://abuckforbenjr.blogspot.com/2013/01/100-pennies.html

Honoring a EB soldier Ben Wiley Jr. Friday, January 18, 2013. Have any of you ever taken the cushions off your couch and found a bunch of change hidden in the cracks and crevices? When I was younger and in need of money for the penny candy aisle at our neighborhood market I would always go down to our basement and lift up the cushions on my dad's couch. It was rare if I found less than $1. Do you know how much candy a kid can buy in the penny candy aisle for a dollar? Subscribe to: Post Comments (Atom).

abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.: January 2013

http://abuckforbenjr.blogspot.com/2013_01_01_archive.html

Honoring a EB soldier Ben Wiley Jr. Friday, January 18, 2013. Have any of you ever taken the cushions off your couch and found a bunch of change hidden in the cracks and crevices? When I was younger and in need of money for the penny candy aisle at our neighborhood market I would always go down to our basement and lift up the cushions on my dad's couch. It was rare if I found less than $1. Do you know how much candy a kid can buy in the penny candy aisle for a dollar? Wednesday, January 9, 2013. I never ...

abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.: News Story featuring Ben Jr!

http://abuckforbenjr.blogspot.com/2013/01/arcadia-boy-with-rare-disease.html

Honoring a EB soldier Ben Wiley Jr. Sunday, January 6, 2013. News Story featuring Ben Jr! Check out this news story from WINK News in Arcadia, Florida featuring Ben Jr. Just click on the link below. Arcadia boy with rare disease celebrates first birthday. Subscribe to: Post Comments (Atom). Please Pin this site. Ben Jrs Journey Day 1. Hello Everyone this Is Kay Broad! For those of you. I am very excited about being able to blog . News Story featuring Ben Jr! Picture Window theme. Powered by Blogger.

abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.: Ben Jr's 2nd Valentines Day

http://abuckforbenjr.blogspot.com/2013/02/ben-jrs-2nd-valentines-day.html

Honoring a EB soldier Ben Wiley Jr. Wednesday, February 13, 2013. Ben Jr's 2nd Valentines Day. We have the auction coming up! Http:/ bidsforben.wordpress.com/ Please help us with items for the auction! We are in need of any item that you may find valuable! Email bidsforben@yahoo.com for more information =). Also, we do have a amazon wish list that can be found by going to http:/ www.amazon.com/gp/registry/wishlist/3OYWOYPSQ0F3M/ref=topnav lists 1. 1557 NW Eucalyptus Ave. Subscribe to: Post Comments (Atom).

abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.

http://abuckforbenjr.blogspot.com/2013/01/hello-i-am-very-excited-about-being.html

Honoring a EB soldier Ben Wiley Jr. Monday, January 7, 2013. I am very excited about being able to blog finally. Being a mother of three children, I have never had the time to sit down and create a blog, but thanks to. Julianne Smith, now I can. She is an amazing woman that I have never met before, yet she took time out of her everyday schedule to make a blog page for Ben Jr. I am honored and I thank God for the great people that he has sent to help us along our journey. January 7, 2013 at 10:29 AM.

abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.: About EB

http://abuckforbenjr.blogspot.com/p/about-eb.html

Honoring a EB soldier Ben Wiley Jr. There are 3 FORMS of EB. 1 EB simplex (EBS). 2 Junctional EB (JEB). 3 Dystrophic EB (DEB). Ben Jr has JEB-NH. Subscribe to: Posts (Atom). Please Pin this site. Ben Jrs 2nd Valentines Day. Picture Window theme. Powered by Blogger.

abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.

http://abuckforbenjr.blogspot.com/2013/01/this-past-year-i-came-across-facebook_5.html

Honoring a EB soldier Ben Wiley Jr. Saturday, January 5, 2013. I know to us one dollar doesn't seem like much, but if EVERY ONE of Ben Jr's followers donated just one dollar to the family it would add up so very quickly and help them out in a HUGE way! Would you please consider donating a Buck for Ben Jr? If you would like to learn more about Ben Jr. and EB please visit their facebook page: https:/ www.facebook.com/#! Be a blessing by donating "a Buck for Ben Jr."! Subscribe to: Post Comments (Atom).

abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.

http://abuckforbenjr.blogspot.com/2013/01/hello-everyone-this-is-kay-broad-for.html

Honoring a EB soldier Ben Wiley Jr. Monday, January 7, 2013. Hello Everyone this Is Kay Broad! For those of you who do not know me already, i'm a friend of the family :) The other day I was checking my messages and came across a message from a sweet family, Mike and Julianne. Julianne had a wonderful Idea to start an event for Ben Jr. called " A buck for Ben"! In no time we created the event and started sharing it on Ben Jr.s page! Such and amazing Idea Julianne! THank you so much for your idea! This mea...

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Paper Thin Butterfly Skin... The Story of Our Butterfly Prince

Saturday, August 1, 2015. Regardless, I like to write. It's how I feel I can most express myself. I felt like I haven't been able to fully do that in a while and I miss it. So, I will be updating Gunner's blog now. Here I can openly exress myself, and that is what I need. I hope everyone is OK with that. :). I don't even know where to start. Gunner is 3 1/2 years old now. Time FLIES. He also has a little sister! Here is a current picture of my little darlings. Gunner Ray 3 1/2 years old. More on that soo...

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