cahisus.co.uk

CAH is us - Home

Welcome to our updated site which aims to provide the latest information on congenital adrenal hyperplasia and other conditions that lead to adrenal insufficiency for everyone. We have lots of information available in the form of leaflets covering circadian dosing, using the pump method to replace cortisol and how hydrocortisone works as cortisol in the body. We aim to hold meetings twice a year which have proved very popular with attendees flying in from Europe and others travelling from all over the UK...

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CAH is us - Home | cahisus.co.uk Reviews

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Welcome to our updated site which aims to provide the latest information on congenital adrenal hyperplasia and other conditions that lead to adrenal insufficiency for everyone. We have lots of information available in the form of leaflets covering circadian dosing, using the pump method to replace cortisol and how hydrocortisone works as cortisol in the body. We aim to hold meetings twice a year which have proved very popular with attendees flying in from Europe and others travelling from all over the UK...

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2 emergency letter

3 emergency letter uclh

4 adrenal insufficiency card

5 news and updates

6 articles

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9 fundraising

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CAH is us - Home | cahisus.co.uk Reviews

https://cahisus.co.uk

Welcome to our updated site which aims to provide the latest information on congenital adrenal hyperplasia and other conditions that lead to adrenal insufficiency for everyone. We have lots of information available in the form of leaflets covering circadian dosing, using the pump method to replace cortisol and how hydrocortisone works as cortisol in the body. We aim to hold meetings twice a year which have proved very popular with attendees flying in from Europe and others travelling from all over the UK...

INTERNAL PAGES

cahisus.co.uk

1

CAH is us - Contact Us

http://cahisus.co.uk/articles.htm

SUMMARY TRANSCRIPT OF THE MEETING WORKING TOWARDS A SINGLE GOLD STANDARD CARE PROTOCOL FOR EVERYONE OF ALL AGES WITH CORTISOL DEFICIENCY. To read the Transcripts of the meeting please click on the link below. TRANSCRIPT OF MEETING 14 JUNE 2014. Our new series of Questions and Answers. Disability Discrimination Law in Employment and Eduction. Have a look at the slides on the link below. Please note that this is not about claiming any type of disability benefit. Discrimination Law in Employment and Eduction.

2

CAH is us - Leaflets

http://cahisus.co.uk/leaflets.htm

EXTRA HYDROCORTISONE DOSE AT 04:00AM IN ILLNESS. QUICK GUIDE TO ILLNESS PROTOCOL. ADRENAL CRISIS PATHWAY OF EVENTS. AIR TRAVEL AND TIME ZONES. FLUDROCORTISONE AND PLASMA RENIN ACTIVITY. USING THE PUMP FOR CAH. GROWTH AND BONE AGE. THE VALUE OF 24HOUR PROFILES. Please note that any data/ information contained on this website cannot be copied or used in any way without the prior permission of the owner/ author Professor Peter Hindmarsh.

3

CAH is us - Links

http://cahisus.co.uk/Addisons.htm

Although CAH is a different condition to Addison's, the replacement of cortisol with glucocorticoids and the emergency care is common ground. We have been asked by many if we could help by providing some leaflets for those with Addison's. Surgery Protocol for Addison's. Extra Hydrocortisone dose at 4am in Illness Addison's. Illness and Emergency Advice Addison's. Quick Guide to Illness Flow Chart Addison's. The Value of 24 Hour Profiles to Assess and Fine-tune Cortisol Replacement Addison's.

4

CAH is us - Home

http://cahisus.co.uk/index.htm

Welcome to our updated site which aims to provide the latest information on congenital adrenal hyperplasia and other conditions that lead to adrenal insufficiency for everyone. We have lots of information available in the form of leaflets covering circadian dosing, using the pump method to replace cortisol and how hydrocortisone works as cortisol in the body. We aim to hold meetings twice a year which have proved very popular with attendees flying in from Europe and others travelling from all over the UK...

5

CAH is us - Newsletters

http://cahisus.co.uk/newsletters.htm

CHRISTMAS NEWSLETTER DECEMBER 2013. This newsletter includes a summary of our November 2013 meeting and gives news on the New Young Adult Service being set up at University College Hospitals London, for which Professor Peter Hindmarsh will be the lead. SUMMER NEWSLETTER AUGUST 2013. SUMMER NEWSLETTER JUNE 2012. Summary of the group meeting held on October 8th 2011. What the team at GOSH have done to improve Emergency Care. Gosh team working with General Practitioners. News on new leaflets.

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aldlife.org

Online Shopping | ALD Life

http://www.aldlife.org/get-involved/fundraising/online-shopping

Link between ALD and Addison’s Disease. Help, Info & Care Links. Donating your Unwanted Clothes. Playing a Prize Draw. Recycling your old Ink Cartridges. Run for Your ALD Life! Parachute Jump and Skydive. Other ways to get involved. Patience is a Virtue. Where your money goes. Link between ALD and Addison’s Disease. ALD & AMN Forums. Donating your Unwanted Clothes. Playing a Prize Draw. Recycling your old Ink Cartridges. Run for Your ALD Life! Parachute Jump and Skydive. Patience is a Virtue. EasyFundrai...

aldlife.org

Practical Information | ALD Life

http://www.aldlife.org/patient-information/practical-support

Link between ALD and Addison’s Disease. Help, Info & Care Links. Donating your Unwanted Clothes. Playing a Prize Draw. Recycling your old Ink Cartridges. Run for Your ALD Life! Parachute Jump and Skydive. Other ways to get involved. Patience is a Virtue. Where your money goes. Link between ALD and Addison’s Disease. ALD & AMN Forums. Donating your Unwanted Clothes. Playing a Prize Draw. Recycling your old Ink Cartridges. Run for Your ALD Life! Parachute Jump and Skydive. Patience is a Virtue. Join the wo...

aldlife.org

Online Shopping | ALD Life

http://www.aldlife.org/get-involved

Link between ALD and Addison’s Disease. Help, Info & Care Links. Donating your Unwanted Clothes. Playing a Prize Draw. Recycling your old Ink Cartridges. Run for Your ALD Life! Parachute Jump and Skydive. Other ways to get involved. Patience is a Virtue. Where your money goes. Link between ALD and Addison’s Disease. ALD & AMN Forums. Donating your Unwanted Clothes. Playing a Prize Draw. Recycling your old Ink Cartridges. Run for Your ALD Life! Parachute Jump and Skydive. Patience is a Virtue. EasyFundrai...

aldlife.org

What is ALD? | ALD Life

http://www.aldlife.org/patient-information

Link between ALD and Addison’s Disease. Help, Info & Care Links. Donating your Unwanted Clothes. Playing a Prize Draw. Recycling your old Ink Cartridges. Run for Your ALD Life! Parachute Jump and Skydive. Other ways to get involved. Patience is a Virtue. Where your money goes. Link between ALD and Addison’s Disease. ALD & AMN Forums. Donating your Unwanted Clothes. Playing a Prize Draw. Recycling your old Ink Cartridges. Run for Your ALD Life! Parachute Jump and Skydive. Patience is a Virtue. In cerebral...

i-cah.org

FOR PATIENTS | I-CAH Registry

http://www.i-cah.org/for-patients

I-CAH seeks to support patients, children and parents by providing information, support and links, as well as developing research that will underpin improvements in the treatment of Congenital Adrenal Hyperplasia. I-CAH patient information sheet (child). I-CAH patient information sheets (adult). Congenital Adrenal Hyperplasia - Living with CAH Support Group (UK). Congenital Adrenal Hyperplasia adult information booklet - Dr G. Conway. CAH Support Group Links. CAH is Us - Parent and Patient support group.

aiunited.org

Support Groups National | Adrenal Insufficiency | AIU | AIU

http://aiunited.org/index.php/support-us/support-groups

Support Groups – AIU. Support for Those Living with Adrenal Insufficiency. AI In The News. Financial & Gifting Organizations. Research & Medical Information. Adrenal Insufficiency is treated with steroids. Any supplements or special diets should be used under the supervision of a physician familiar with adrenal insufficiency. The groups listed below are not appropriate for those forgoing steroid treatment for AI. If you have a group you’d like to suggest we add please contact us. Congenital Adrenal Hyper...

congenitaladrenalhyperplasia.org

Congenital Adrenal Hyperplasia

http://www.congenitaladrenalhyperplasia.org/people.html

Maria I. New, M.D. CLAN: Caring and Living as Neighbours. Australian CAH support group. CAHNZ: New Zealand CAH Support Group. UK CAH support group. Great Ormond Street Parent and Patient Support Group. The MAGIC Foundation Homepage. Due to poorly written scripts this site may cause your computer to freeze up. We have notified the webmaster of the problem.). Dutch Cushings and Addisons Association. Also has some info for people with CAH). The Carlton Family Home Page.

aldlife.org

Personal Links | ALD Life

http://www.aldlife.org/patient-information/useful-links

Link between ALD and Addison’s Disease. Help, Info & Care Links. Donating your Unwanted Clothes. Playing a Prize Draw. Recycling your old Ink Cartridges. Run for Your ALD Life! Parachute Jump and Skydive. Other ways to get involved. Patience is a Virtue. Where your money goes. Link between ALD and Addison’s Disease. ALD & AMN Forums. Donating your Unwanted Clothes. Playing a Prize Draw. Recycling your old Ink Cartridges. Run for Your ALD Life! Parachute Jump and Skydive. Patience is a Virtue. Fundación N...

cah.org.au

CAH Support Group Australia :: Links

http://www.cah.org.au/links

General Links and Factsheets. General Links and Factsheets. NZ CAH Support Group. NZ CAH Support Group. CLAN - Caring and Living as Neighbours. CLAN is dedicated to the dream that all children living with chronic health conditions in resource-poor countries of the world will enjoy a quality of life on par with that of their neighbours in wealthier countries. CLIMB - CAH Support Group UK. CLIMB - CAH Support Group UK. CAH Great Ormond Street Parent and Patient Support Group. General Links and Factsheets.

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CAH is us - Home

Welcome to our updated site which aims to provide the latest information on congenital adrenal hyperplasia and other conditions that lead to adrenal insufficiency for everyone. We have lots of information available in the form of leaflets covering circadian dosing, using the pump method to replace cortisol and how hydrocortisone works as cortisol in the body. We aim to hold meetings twice a year which have proved very popular with attendees flying in from Europe and others travelling from all over the UK...

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