caleb-paul-hlebiczki.blogspot.com

Caleb Paul Hlebiczki

Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!

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Caleb Paul Hlebiczki | caleb-paul-hlebiczki.blogspot.com Reviews

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Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!

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Caleb Paul Hlebiczki | caleb-paul-hlebiczki.blogspot.com Reviews

https://caleb-paul-hlebiczki.blogspot.com

Caleb was born with two rare syndromes, CHARGE and DiGeorge. Caleb is the 6th person in the world born with both syndromes. CHARGE is a multisystem-effecting syndrome which can cause several severe anomolies. DiGeorge prevented Caleb from developing an immune system. He spent over a year straight in the hospital, had multiple surgeries with a possibility of having more in the future. This blog details his heroic journey and story. God Bless Caleb!!

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caleb-paul-hlebiczki.blogspot.com

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Caleb Paul Hlebiczki: January 2014

http://caleb-paul-hlebiczki.blogspot.com/2014_01_01_archive.html

Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us". Friday, January 31, 2014. I just wanted to share some sweet photos of the kids. They are amazing. Have a great weekend everyone. God Bless you all! God Bless Caleb and Camryn! Saturday, January 25, 2014. I do want to share a pic of Caleb doing his homework earlier this week. He is doing great. He has such an amazing team that works with him at his school. Poor Cale...

2

Caleb Paul Hlebiczki: December 2014

http://caleb-paul-hlebiczki.blogspot.com/2014_12_01_archive.html

Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us". Monday, December 22, 2014. Caleb was on the news. Good Morning Team Caleb. Yep you read that right. Thanks to a friend who reached out to the local news and explained how they needed to do a follow-up on sweet Caleb the news did in fact come to our house yesterday. So I wanted to share the story. It was great. I am so proud of our litle boy. God Bless you all!

3

Caleb Paul Hlebiczki: Clinic day

http://caleb-paul-hlebiczki.blogspot.com/2015/02/clinic-day.html

Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us". Wednesday, February 18, 2015. Well it's that time of the year. Clinic time. Clinic had a clinic day today. He had appointments with orthodontics, cleft/craniofacial, and cardiology. So here are the updates. I will update as soon as we know more. God Bless you all! God Bless Caleb and Camryn! Subscribe to: Post Comments (Atom). 2nd grade school picture.

4

Caleb Paul Hlebiczki: Clinic Time

http://caleb-paul-hlebiczki.blogspot.com/2014/12/clinic-time.html

Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us". Thursday, December 18, 2014. Also, I found an old news story they did on Caleb on CD however, I can't get it to upload to the blog, as soon as I can figure it out I will post it. We went to Polar Express this past weekend as well. I will upload those pictures tomorrow. I was thinking about while driving for. Work today and thought I would share. God Bless you all!

5

Caleb Paul Hlebiczki: Winter Germs

http://caleb-paul-hlebiczki.blogspot.com/2014/11/winter-germs.html

Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us". Friday, November 21, 2014. God Bless you all! God Bless Caleb and Camryn! Subscribe to: Post Comments (Atom). 2nd grade school picture. Caleb Hlebiczki Medical Fund-Mail In Info. A newer Fund, to aid in paying Caleb's medical bills, has just been set up for checks to be written and mailed to the Caleb Hlebiczki Medical Fund. My Sissy Camryn Jayde's Blogger Page.

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chargesyndrome.blogspot.com

The Adventures of Kennedy: December 2012

http://chargesyndrome.blogspot.com/2012_12_01_archive.html

Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Friday, December 7, 2012. Kennedy with her "Scenes" group from HVHS, performing in Footloose! First stage performance of high school.we were super proud. Best part? She had a BALL! Posted by Lisa and Kennedy. Subscribe to: Posts (Atom). A welcome message from a young Kennedy circa 2006! Click to support Team Kennedy! What is CHARGE Syndrome? 12th International CHARGE Syndrome Conference.

chargesyndrome.blogspot.com

The Adventures of Kennedy: May 2014

http://chargesyndrome.blogspot.com/2014_05_01_archive.html

Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Thursday, May 29, 2014. HVHS Chorale Ensemble Spring Concert. Tonight was the spring concert - Kennedy is on the far right of the front row in each of the three videos. Changamano (Join Together) by Sally K. Albrecht. Dona Nobis Pacem (Traditional). Some Nights by Fun. Posted by Lisa and Kennedy. Wednesday, May 28, 2014. My beauty surrounded by the Grand Canyon. She once again worked extre...

thestraubys.blogspot.com

Haleigh Rose: January 2009

http://thestraubys.blogspot.com/2009_01_01_archive.html

Friday, January 30, 2009. Here We Go Steelers! So we have been in the Big Girl Bed for a week now and it has gone pretty well! I am enjoying it! So I got the best news this week! Here is their blog if you want to check out more about them. http:/ caleb-paul-hlebiczki.blogspot.com/. We are ready for the Superbowl and really excited! Friday, January 23, 2009. We are home sick today, both with nasty colds, so we will see how this goes. Hope this finds you all well! Subscribe to: Posts (Atom).

camryn-jayde-hlebiczki.blogspot.com

Camryn Jayde Hlebiczki: October 2012

http://camryn-jayde-hlebiczki.blogspot.com/2012_10_01_archive.html

Wednesday, October 24, 2012. Picture Day is coming for Camryn Jayde tomorrow at daycare. I have to admit, I am so excited to see how she does. She loooooooves the camera. She is too sweet. Becoming a little talker and now even pretends she goes to work, she puts her shoes on and grabs her purse and says goodbye as she heads for the door and says she is going to work. She is so cute! God Bless you all! God Bless Caleb and Camryn! Subscribe to: Posts (Atom). My Brother Caleb Hlebiczki's Blog Page.

evanstorrs.blogspot.com

The Life of Evan...: February 2010

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The Life of Evan. Saturday, February 20, 2010. Three months in a nutshell. Jeremy told me this morning Evan's preschool teachers mentioned how much they liked the "Naked Baby" post. It reminded me that Evan does have a following who are anxious for updates on his progress. So here goes, Top 10-style, is what he (and we) have been up to lately. 10: Loves to Spin. Some things will never change. The Sit-n-Spin is. Unfortunately Evan, there are some limits for your safety! 9: Bosley Loses a Toe. He can strip...

evanstorrs.blogspot.com

The Life of Evan...: June 2009

http://evanstorrs.blogspot.com/2009_06_01_archive.html

The Life of Evan. Tuesday, June 23, 2009. Here is a picture of Evan's haircut the next day (better late than never, right? Sunday, June 14, 2009. I was weeding in the flower bed while Evan played on front porch. He found the box of sidewalk chalk. At first he was just picking up the pieces and dropping them (we have lots more pieces of chalk now, thanks to little mister). But he managed to sneak a bite or two also. We need to work more on what the purpose of chalk is! Subscribe to: Posts (Atom).

evanstorrs.blogspot.com

The Life of Evan...: September 2009

http://evanstorrs.blogspot.com/2009_09_01_archive.html

The Life of Evan. Sunday, September 27, 2009. Down by the river. These are from out drive down to Vantage this afternoon. Soccer may be in my future. Time for my afternoon siesta. Sunday, September 20, 2009. Grandma Anna mailed us some throw pillows earlier this week (they match a quilt she'd given us before; our bed looks so coordinated now- thank you! Evan is not a fan of the pillows- he climbs up on our bed and throws them over board- but he was quite entertained by the box they came in. One of these ...

evanstorrs.blogspot.com

The Life of Evan...: April 2009

http://evanstorrs.blogspot.com/2009_04_01_archive.html

The Life of Evan. Saturday, April 25, 2009. People always comment about how much Evan looks like me (and my side of the family). But look at these expressions side by side- those mouths look pretty similar :) I think Jeremy was about 2 in this picture. Evan's picture was taken last week at preschool. March for Babies 2009. Here are some pictures from the day- Enjoy! Gary and Rosie (Grandma and Grandpa to Burke and the twins) Nelson. Evan walking between Rosie and daddy. The Yakima River is behind us.

evanstorrs.blogspot.com

The Life of Evan...: October 2009

http://evanstorrs.blogspot.com/2009_10_01_archive.html

The Life of Evan. Saturday, October 24, 2009. Evan had adjusted well to this year's routine of two pre-schools. Every once in awhile, he'll have a rough day at one class or the other but usually he does great on the days he goes to both (Tuesday-Thursday). He was belted in, but he just sat there looking out the window and having a great time. He was not as much of a fan of the actual pumpkin patch, but at least there was something redeeming on the field trip for him. At Head Start, Jeremy has been Evan's...

evanstorrs.blogspot.com

The Life of Evan...: March 2009

http://evanstorrs.blogspot.com/2009_03_01_archive.html

The Life of Evan. Sunday, March 29, 2009. 20 Hour Benefit Crop. We are asking all of our frinds and family to please help our family raise money for the Uncompensated Care Fund at Seattle Children’s Hospital. So how can you help? On April 17th, I will be participating in a 20-hour benefit crop (scrapbook lingo for a time and place to sit down, spread out your stuff, and put together some pages! Thank you in advance for your generous support! Levi weighed 4 lbs 11 oz and Judah weighed 4 lbs 6 oz at birth&...

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Caleb Paul Hlebiczki

Ephesians 3:20 "Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us". Wednesday, February 18, 2015. Well it's that time of the year. Clinic time. Clinic had a clinic day today. He had appointments with orthodontics, cleft/craniofacial, and cardiology. So here are the updates. I will update as soon as we know more. God Bless you all! God Bless Caleb and Camryn! Monday, December 22, 2014. Caleb was on the news. Good Morning Team Caleb.

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Friday, March 21, 2008. We finally got a nice day to go outside and play! Thursday, February 21, 2008. I fell in to a play kitchen and school and had to get three stiches right in the middle of my left eyebrow. You can't see it very well in this picture, but I also ended up with a black eye, too. (Also, don't you love my dinner all over my face? Click on the photo for a better view. Friday, February 15, 2008. Mommy and Caleb on Valentine's Day morning. Friday, February 08, 2008. Peyton Manning look out.