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capturing cf | Living with cystic fibrosisLiving with cystic fibrosis
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Living with cystic fibrosis
http://capturingcf.wordpress.com/
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capturing cf | Living with cystic fibrosis | capturingcf.wordpress.com Reviews
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Living with cystic fibrosis
capturingcf.wordpress.com
Rydal bliss | capturing cf
https://capturingcf.wordpress.com/2015/08/04/rydal-bliss
Living with Cystic fibrosis. This entry was posted on August 4, 2015, in Relationships. My dad often asks me. 8220;What are you looking forward to? Over the last four months I’ve been stuck for an answer because I honestly haven’t been looking forward to much. I’ve been in survival mode. After a lengthy pause during which I cast around for some sort of response I often replied along these lines:. Someone to change the bed sheets. Dave wearing something other than tracksuit pants and a tracksuit top.
Welcome! | capturing cf
https://capturingcf.wordpress.com/2012/09/29/welcome
Living with Cystic fibrosis. This entry was posted on September 29, 2012, in Relationships. Living with Cystic fibrosis (CF) is a unique experience. Marrying a fellow person with CF makes our experience even more unusual. Join me as I share images, information and stories capturing the varied facets of living with CF x 2. For your sharing pleasure:. Share on Facebook (Opens in new window). Click to share on Twitter (Opens in new window). Click to share on Google (Opens in new window).
About Cystic fibrosis | capturing cf
https://capturingcf.wordpress.com/about-cystic-fibrosis
Living with Cystic fibrosis. Cystic fibrosis (CF) is the most common inherited condition is the Australian caucasian population. It is a life limiting condition. The average life expectancy is about 38. There is no cure. It’s bloody hard work. It’s monotonous. It can be scary. On the other hand, sometimes it’s not that big a deal and some of the experiences it brings are positive – there are silver linings in the cloud. For your sharing pleasure:. Share on Facebook (Opens in new window). This is fantasti...
About me | capturing cf
https://capturingcf.wordpress.com/about-me
Living with Cystic fibrosis. My name is Janette, I am 32 years old and I live in Sydney, Australia. I specifically live in Newtown – an inner city suburb which is absolutely full of life. We’ve lived in our house for three and a half years and I couldn’t imagine living anywhere else. I’ve been married to Dave for almost ten years and we have two beautiful Kelpie dogs. Our dogs are the light of our lives. I also have a wonderful network of family and friends which make my life extra special. Click to shar...
We did it | capturing cf
https://capturingcf.wordpress.com/2015/08/11/we-did-it
Living with Cystic fibrosis. This entry was posted on August 11, 2015, in Relationships. We did it. We made it one whole week without illness. A-mazing. CF came with us, and we felt its presence. In spite of it. For your sharing pleasure:. Share on Facebook (Opens in new window). Click to share on Twitter (Opens in new window). Click to share on Google (Opens in new window). Click to share on Pinterest (Opens in new window). Click to share on Tumblr (Opens in new window). 4 thoughts on “ We did it. Every...
TOTAL PAGES IN THIS WEBSITE
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July | 2014 | Our ΔF508 Life
https://ourf508life.wordpress.com/2014/07
Our ΔF508 Life. Our family, living with CF. Monthly Archives: July 2014. July 14, 2014. So You’ve Found Out Your Unborn Baby Has Cystic Fibrosis. Or that you and your partner both carry the cystic fibrosis gene (or I should say one of the many genes that can cause CF). I’ve thought a lot about this problem since Alma was born. What does it mean to know that your child will, or that your child might, have cystic fibrosis? It’s something that sometimes gets framed as an “ impossible choice. Ok What I can s...
So You’ve Found Out Your Unborn Baby Has Cystic Fibrosis. | Our ΔF508 Life
https://ourf508life.wordpress.com/2014/07/14/so-youve-found-out-your-unborn-baby-has-cystic-fibrosis
Our ΔF508 Life. Our family, living with CF. So You’ve Found Out Your Unborn Baby Has Cystic Fibrosis. July 14, 2014. Or that you and your partner both carry the cystic fibrosis gene (or I should say one of the many genes that can cause CF). I’ve thought a lot about this problem since Alma was born. What does it mean to know that your child will, or that your child might, have cystic fibrosis? It’s something that sometimes gets framed as an “ impossible choice. So What can I contribute instead. Ok What I ...
Our ΔF508 Life | Our family, living with CF | Page 2
https://ourf508life.wordpress.com/page/2
Our ΔF508 Life. Our family, living with CF. September 10, 2013. Today has been a hard day. Today I found out that a woman with CF who I know died. I didn’t know her well at all, and only knew her because she contacted a friend of mine when Alma was diagnosed. She was very kind and told me in that first awful week that there was a lot of hope for Alma. I didn’t hear much from her after that, though I saw her occasional posts on Facebook. And now she’s gone. What is the next exciting installment? When I se...
Barbecue salmon and vegetables | CF Kitchen
https://cfkitchen.wordpress.com/2015/01/22/bbq-salmon-vegetables
Barbecue salmon and vegetables. January 22, 2015. The olive oil is added last, so you can vary how much goes on each plate (there’s really no such thing as ‘too much’ olive oil in this dish). If you want to increase the fat content further, top the vegetables with some feta. Yummy. 2 150g salmon fillets, skin on. 2 zucchini, cut in half lengthwise, and then into 5mm thick slices lengthwise. 6 spring onions, outermost layer removed. Good quality olive oil for drizzling. Juice of half a lemon. You are comm...
Thai beef salad | CF Kitchen
https://cfkitchen.wordpress.com/2015/01/30/thai-beef-salad
January 30, 2015. The next timeI made it, I tried to add some extra fat into the recipe by mixing coconut milk powder into the dressing. It was so good I practically drank it. I’d also recommend the coconut milk version for anyone who doesn’t like too much chilli. 2 fresh red thai chillies, seeded and coarsely chopped. 1 stick lemongrass, coarsely chopped. 2/3 bunch fresh coriander. 1/3 cup lime juice. 1 tablespoon fish sauce. 1 tablespoon soy sauce. 2 tablespoons coconut milk powder. 400g been rump steak.
Welcome back (and a meal plan) | CF Kitchen
https://cfkitchen.wordpress.com/2015/01/18/welcome-back-and-a-meal-plan
Welcome back (and a meal plan). January 18, 2015. Hello everyone, it’s been a long time since I posted. I was busy with work, then busy with all the Christmas lead-up stuff, and then I went away. But now that life has settled down, I’m going to start blogging again. I’ve also decided to make a few changes to the blog. I’m going to move beyond just writing recipes to write some posts about life with CF (and life in general). Meal plan – Summer plan 1. Snacks – hummus and carrot sticks. Dinner – Out. Enter...
12 things I learned from #12monthsofgoals | CF Kitchen
https://cfkitchen.wordpress.com/2015/01/24/12-things-i-learned-from-12monthsofgoals
12 things I learned from #12monthsofgoals. January 24, 2015. Last year, rather than setting any new year’s resolutions, I set my sights a bit smaller – January resolutions. And then at the end of the month, having knocked almost all of those goals over, I started again. Setting new goals every month was really valuable for me, and this is what I learnt:. 1) Concrete goals, flexible path. 2) Focus on forming habits. 3) Find the projects that will make life better. 4) Some things aren’t right for me. Addre...
Marzec | 2015 | mukomama...
https://mukomama.wordpress.com/2015/03
Walczymy o kazdy oddech…fighting for every breath…. Stay updated via RSS. Luty 16th, 2014. I znowu musze nadgonic…. Obejzyj i posluchaj…koniecznie „OneRepublic – I Lived” on YouTube. What happens to the people in the countries that can’t afford Kalydeco? Kliknij tutaj i otrzymaj powiadomienia o nowym wpisie na Twojego maila. Dołącz do 193 obserwujących. 30 komentarzy będących spamem. Zostało zablokowanych przez Akismeta. Follow mukomama… on WordPress.com. Blogi, ktore czytam. Archiwum dla Marzec, 2015.
Doskonale swieta…!!! | mukomama...
https://mukomama.wordpress.com/2014/12/29/doskonale-swieta
Walczymy o kazdy oddech…fighting for every breath…. Stay updated via RSS. Luty 16th, 2014. I znowu musze nadgonic…. Obejzyj i posluchaj…koniecznie „OneRepublic – I Lived” on YouTube. What happens to the people in the countries that can’t afford Kalydeco? Kliknij tutaj i otrzymaj powiadomienia o nowym wpisie na Twojego maila. Dołącz do 193 obserwujących. 30 komentarzy będących spamem. Zostało zablokowanych przez Akismeta. Follow mukomama… on WordPress.com. Blogi, ktore czytam. Adres nie będzie widoczny).
Obejzyj i posluchaj…koniecznie „OneRepublic – I Lived” on YouTube | mukomama...
https://mukomama.wordpress.com/2014/09/26/watch-onerepublic-i-lived-on-youtube
Walczymy o kazdy oddech…fighting for every breath…. Stay updated via RSS. Luty 16th, 2014. I znowu musze nadgonic…. Obejzyj i posluchaj…koniecznie „OneRepublic – I Lived” on YouTube. What happens to the people in the countries that can’t afford Kalydeco? Kliknij tutaj i otrzymaj powiadomienia o nowym wpisie na Twojego maila. Dołącz do 193 obserwujących. 30 komentarzy będących spamem. Zostało zablokowanych przez Akismeta. Follow mukomama… on WordPress.com. Blogi, ktore czytam. Adres nie będzie widoczny).
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Capturing Carter...One day at a time
Saturday, November 27, 2010. Saturday, February 20, 2010. Friday, February 19, 2010. Day 50. giving back. Giving the Gift of Life. Thursday, February 18, 2010. Wednesday, February 17, 2010. Can I help you? Meet our new doorman! Tuesday, February 16, 2010. My child who doesn't eat. A side note: for those of you who may not know, high doses of steroids make you hungry and Carter gets most of his feeds through a G-tube in his stomach. He doesn't eat by mouth very often, but on steroids,. Plane ride to Boston.
capturingcaruthers.blogspot.com
Capturing Caruthers
EVERY FAMILY HAS A STORY.WELCOME TO OURS! Together we celebrate, together we laugh, together we cherish, together we grow, together we capture moments making our time stand still, together we invite our family and friends to be a part of our everyday adventure and journey of life. Saturday, July 4, 2015. Braylan and Sullivan got to be in the Dance Recital this summer! Braylan, who has done a recital before, was Hello Kitty this year! She did fabulous and looked perfect! Fun on The Ridge! We decided to ma...
The Lost Girl
Monday, 14 July 2014. I hope these photos have inspired you to take your own trip to this little house in Sussex, in my humble opinion, there is no nicer way to spend a Saturday afternoon than seeped in the world of Leonard and Virginia. Thank you, Mrs Woolf for your words the past few weeks, they have been my trusted companion and hope they stay for many years to follow. Have a lovely week. x. Read: 'The Diary of Virginia Woolf'. Listen to: 'Sunrise' - Norah Jones. Wear: tea dresses and sandals. Eat: Le...
capturingceciliascanon.wordpress.com
Capturing Cecilia's Canon | Where my Canon Rebel takes me.
Capturing Cecilia's Canon. Where my Canon Rebel takes me. JeSuisCharlie in Nice, France. January 30, 2015. Only ten days after the Charlie Hebdo shooting in Paris on January 7th, I found myself in the south of France seeing the aftermath of the horrific event very much still alive among the people. Here are a few signs and stickers I saw, but they were everywhere. JeSuisCharlie in Nice, France. JeSuisCharlie in Nice, France. JeSuisCharlie in Nice, France. JeSuisCharlie in Nice, France. Read more ». Add y...
capturing cf | Living with cystic fibrosis
Living with cystic fibrosis. Capturing CF is now on Facebook. Capturing CF now has a Facebook page. The content will differ between the blog and Facebook so check both out. Happy Facebooking! Living with Cystic fibrosis (CF) is a unique experience. Marrying a fellow person with CF makes our experience even more unusual. Join me as I share images, information and stories capturing the varied facets of living with CF x 2. My dad often asks me “What are you looking forward to? Ork… wait, what? Let’s say tha...
www.capturingcharisma.com
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home - Phyl Salerno
Welcome to beautiful Charlotte, North Carolina! With four distinct seasons and a growing economy, Charlotte and its surrounding area is an ideal place to settle down. If you’re looking to raise a family or settle into retirement, there is sure to be a neighborhood suited to your unique needs. Homes in Charlotte range from townhomes and condominiums to single-family residences in all sizes and price ranges. I want to help you make your real estate goals come true. Learn more about me. Real Estate Website ...
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Capturing Cherished Moments - Home
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capturingchiaroscuros.wordpress.com
Capturing Chiaroscuro | Just another WordPress.com weblog
Just another WordPress.com weblog. August 28, 2009. Category: black and white. Does she want a sibling? Blog at WordPress.com. Follow “Capturing Chiaroscuro”. Get every new post delivered to your Inbox. Build a website with WordPress.com.
Capturing Chicago
Live Breathe. Love. Chicago. Ldquo;We’re super stellar.”. Ldquo;So stoke.”. Ldquo;I am passionate about art. Being able to express my talent and share it with others means a ton. I started drawing when I was five. Sold my first drawing to a classmate in the sixth grade, and began painting when I was a freshman in high school. From then on, I have been drawing and painting frequently, and commissioning my work every now and then.”. Check the mural here! Https:/ www.facebook.com/LUC.SDMA. Almost any thing ...
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