care4dystonia.org

diagnosisdystonia.com

Diagnosis Dystonia - Resources

http://www.diagnosisdystonia.com/resources

Click here to edit title. By Tom Seaman, BS, CPC. Dystonia Organizations and Support Groups. Action for Dystonia, Diagnosis, Education and Research (ADDER). Bensham, Gateshead, NE8 1YN United Kingdom. Email: info@actionfordystonia.co.uk. Website: www.actionfordystonia.co.uk. American Dystonia Society (ADS). Princeton Junction, NJ 08550. Website: www.dystonia.us. Bachmann-Strauss Dystonia and Parkinson Foundation. 551 Fifth Avenue at 45th Street, Suite 520. New York, NY 10176. The Bachmann-Strauss Dystoni...

torticollis.org

Helpful Links & Resources - National Spasmodic Torticollis Association - NSTA

http://www.torticollis.org/helpful-links-resources

National Spasmodic Torticollis Association – NSTA. NSTA has helped thousands of people in their search for relief from the pain and disability caused by Spasmodic Torticollis. About National Spasmodic Torticollis Association. What is Spasmodic Torticollis. Deep Brain Stimulation (DBS). Book & Video Package. Helpful Links & Resources. Latest News & Events. Helpful Links & Resources. Organizations that Provide Information and Support. Benign Essential Belpharospasm Research Foundation Inc. The organization...

neuronswithdystonia.blogspot.com

Quest of a dystonic buddhist neuroscientist: July 2007

http://neuronswithdystonia.blogspot.com/2007_07_01_archive.html

Quest of a dystonic buddhist neuroscientist. Thoughts of a graduate student living with mitochondrial disease, the dilemmas of disability, science and consciousness. Saturday, July 07, 2007. Back to the Big Horns. Our family cabin is near Antelope Butte in the Shell Canyon. Shell Creek and the mountains were as beautiful as I remember, but unfortunately many of the trees have died from the mountain pine beetle. And much of the mountain is being cut down due to the beetle. Posted by Synaptic Jen @ 2:15 PM.

disabled-musicians.org

Links – Coalition for Disabled Musicians, Inc.

http://www.disabled-musicians.org/links

Coalition for Disabled Musicians, Inc. PO Box 1002M Bay Shore, New York 11706 - (631) 586-0366 CDMNEWS@AOL.COM. Here are a few of our favorite bookmarks. For, by and about the disabled. Accomplishments and Achievements Home Page. Welcome to AnA Celebrating a new Era – Disability Culture. Awarded to CDM 1998. In a structured, compassionate environment, the children engage in a number of activities designed to broaden their horizons. The Christopher and Dana Reeve Paralysis Resource Center. Completely Diff...

socalmds.com

Dystonia - Useful, Education, & Supportive Websites

http://www.socalmds.com/dystonia.php

Movement Disorder Specialists -. Clinical Trials and Research. Apps, Books, Other Goods. At SoCal MDS, we currently treat generalized and focal dystonia. Symptoms vary according to the kind of dystonia involved. Dystonia tends to lead to abnormal posturing when still and moving. Many sufferers have continuous pain, cramping and constant muscle spasms due to involuntary muscle movements. Dystonia affects about 1% of the population, and women are more prone to it than men. Other types of dystonia. Is a typ...

spasmodicdysphonia.blogspot.com

Spasmodic Dysphonia: Belated news: Celebrating 2008’s World Voice Day in Cairns, Australia.

http://spasmodicdysphonia.blogspot.com/2009/03/belated-news-celebrating-2008s-world.html

A supportive voice for those of us who struggle with voice and the many other forms of dystonia. Tuesday, March 31, 2009. Belated news: Celebrating 2008’s World Voice Day in Cairns, Australia. And Australia’s branch of Ipsen Pty Ltd. Generously supported our Atherton. In hosting 2008’s World Voice Day. Celebration at the Colonial Club. A local musician with a delightful Irish brogue. Impressive presentations by Dr John O’Sullivan. And Dr Steven Dommann. Focusing on neurological movement disorders. Diagno...

spasmodicdysphonia.blogspot.com

Spasmodic Dysphonia: World Voice Day 16th April 2008 - 6 PM until the fat lady sings!

http://spasmodicdysphonia.blogspot.com/2008/03/world-voice-day-16th-april-2008-6-pm.html

A supportive voice for those of us who struggle with voice and the many other forms of dystonia. Sunday, March 9, 2008. World Voice Day 16th April 2008 - 6 PM until the fat lady sings! Members of Atherton Tableland and Cairns Dystonia Support Group planning a Neurological Movement Disorders Symposium in Cairns, Far North Queensland. Principal speaker, Dr John O'Sullivan MBBS, FRACP, PhD. Consultant Neurologist, Royal Brisbane and Women's Hospital. Brisbane, Queensland, Australia. This event is for you!

spasmodicdysphonia.blogspot.com

Spasmodic Dysphonia: Voice from oblivion.

http://spasmodicdysphonia.blogspot.com/2008/10/voice-from-oblivion.html

A supportive voice for those of us who struggle with voice and the many other forms of dystonia. Wednesday, October 1, 2008. With shaky, effortful, broken voice. And painfully twisted neck. It is good to be back! My excitement about our World Voice Day. Symposium five and a half months ago is as alive now as it was then. What an event it turned out to be! Prior to the Symposium here in Cairns. Maureen Slocum and I travelled from Cairns. To Salt Lake City. In the United States of America. Extreme domestic...

spasmodicdysphonia.blogspot.com

Spasmodic Dysphonia: Media release: Cairns World Voice Day Neurological Movement Disorders Symposium.

http://spasmodicdysphonia.blogspot.com/2008/04/media-release-cairns-world-voice-day.html

A supportive voice for those of us who struggle with voice and the many other forms of dystonia. Thursday, April 10, 2008. Media release: Cairns World Voice Day Neurological Movement Disorders Symposium. CELEBRATING WORLD VOICE DAY, 16TH April 2008. Ms Karen O’Maley, Clinical Nurse Consultant from Royal Brisbane and Women’s Hospital Department of Neurology and Ms Maree Brockie from the Multiple Sclerosis Society of Queensland are also travelling from Brisbane and presenting papers at the symp...This even...