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Navigating Through Life

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Navigating Through Life | cathjayasuriya.blogspot.com Reviews

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Navigating Through Life: Meeting President Barack Obama

http://cathjayasuriya.blogspot.com/2011/07/meeting-president-barack-obama.html

Meeting President Barack Obama. My son with President Barack Obama in the Oval Office. Three years ago, the Make-A-Wish foundation, an organization that grants wishes for terminally ill children, came to our home to ask our then 15 year-old son who has Duchenne muscular dystrophy, what his most special wish was. It was just after the exciting campaign and election of President Barack Obama. The timing was perfect. My son’s health was stable. After selecting gifts and items we wanted signed by the preside...

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Navigating Through Life: August 2011

http://cathjayasuriya.blogspot.com/2011_08_01_archive.html

Climbing Mt Kinabalu, Summit of Borneo. Http:/ www.active.com/donate/duchenneexpedition. Climbing for a Cure. Welcome to Expedition Mt Kinabalu! On September 9th, I will be part of a team of 30 international climbers who will scale Mt Kinabalu, summit of Borneo, to raise global awareness and funding for Duchenne muscular dystrophy. All money raised will go directly to funding promising research that will extend lives and find a cure for Duchenne. Http:/ www.active.com/donate/duchenneexpedition.

3

Navigating Through Life: Expedition Mt Kinabalu

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Climbing Mt Kinabalu, Summit of Borneo. Http:/ www.active.com/donate/duchenneexpedition. Climbing for a Cure. Welcome to Expedition Mt Kinabalu! On September 9th, I will be part of a team of 30 international climbers who will scale Mt Kinabalu, summit of Borneo, to raise global awareness and funding for Duchenne muscular dystrophy. All money raised will go directly to funding promising research that will extend lives and find a cure for Duchenne. Http:/ www.active.com/donate/duchenneexpedition.

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Navigating Through Life: August 2010

http://cathjayasuriya.blogspot.com/2010_08_01_archive.html

Underneath all your thinking there is the stillness of being. I love Paris.  I have only been there a handful of times, and a few weeks ago, I took the Eurostar from London to Paris for a short stay.  The weather was perfect, a cool breeze softened the summer heat, and I once again fell in love with Paris, with its history, its architecture, and the pure ambience of just being there. Century French sculptor, Auguste Rodin. There were only a few people ahead of me as I reached the main entrance and I real...

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Navigating Through Life: What's up with GERD?

http://cathjayasuriya.blogspot.com/2011/12/whats-up-with-gerd.html

What's up with GERD? American Idol winner Lee Dewyze. Visiting Dusty in intensive care. What’s up with GERD? Hydrochloric acid. That’s what’s up. What makes GERD so nauseating is the hydrochloric acid that leaks up from the stomach and into the esophagus, due to a problem with the upper stomach sphincter muscle. What makes it worse is the accompanying nauseating mucus that is produced in the esophagus as it protects its own surface against the stomach’s acids. That’s when I heard about GERD. Part of the ...

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coalitionduchenne.org coalitionduchenne.org

Coalition Duchenne

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Javascript DHTML Drop Down Menu Powered by dhtml-menu-builder.com. The most precious gift we can offer others is our presence. When mindfulness embraces those we love, they will bloom like flowers. 100% of your donation will go toward research that will find a cure for Duchenne. Join our mailing list, and receive updates on our events and latest news. Liike us on FB. Pay it forward and help us spread awareness and get the word out about Duchenne.

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Coalition Duchenne

http://www.coalitionduchenne.org/html/mtKinabalu.html

Javascript DHTML Drop Down Menu Powered by dhtml-menu-builder.com. August 5-7th, 2016. Come and join us! Be part of an adventurous, upbeat team for Expedition Mt Kinabalu August 5-7th, 2016! If you are unable to join us, please support us here:. Http:/ www.active.com/donate/duchenneexpedition15. The World's Greatest Living Explorer. Expedition Mt Kinabalu 2014. First Historic Wingsuit Flight. 626 reviews of Mount Kinabalu. Story Behind The Expedition.

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Coalition Duchenne

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Javascript DHTML Drop Down Menu Powered by dhtml-menu-builder.com. When we feel love and kindness toward others, it not only makes others feel loved and cared for but it helps us also to develop inner peace and happiness. We work closely with our scientific advisors (world leaders in their field) and apply our unique experience of living with Duchenne for over 15 years to select the most promising research initiatives. To make a donation by mail, please send a check to:. 1300 Quail St, Suite 100.

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Coalition Duchenne

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Javascript DHTML Drop Down Menu Powered by dhtml-menu-builder.com. Remembering and honoring some of our courageous boys and men, and the many others who are not mentioned here, who have lost their lives to Duchenne. May they rest in peace. Joshua O. Cunliffe.

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Coalition Duchenne

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Javascript DHTML Drop Down Menu Powered by dhtml-menu-builder.com. Scientific and Medical Advisors. Lee Sweeney, Ph.D. Steve Wilton, Ph.D. Stanley Nelson, Ph.D. Eric Hoffman, Ph.D. Thomas Collet, Ph.D. Anthony Chang, MD. Ronald Victor, MD. Brenda Wong, MD. John Jefferies, MD. Subha Raman, MD. Eduardo Marban, MD, Ph.D. We are making a difference for boys and young men with Duchenne. Please continue to support us.

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Coalition Duchenne

http://www.coalitionduchenne.org/html/whatIsDuchenne.html

Javascript DHTML Drop Down Menu Powered by dhtml-menu-builder.com. While we try to teach our children all about life, our children teach us what life is all about. Some of the common signs and early symptoms of Duchenne are difficulty in walking, running and climbing. By the age of 6 -7 boys start to fall often and fatigue quickly. Their calf muscles appear large because they become fibrotic. Muscle weakness occurs in the lower extremities first. Life expectancy varies due to complications of the heart a...

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Coalition Duchenne

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Coalition Duchenne

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Javascript DHTML Drop Down Menu Powered by dhtml-menu-builder.com. Content on this page requires a newer version of Adobe Flash Player. Coalition Duchenne brings together organizations from around the world, in a quest to raise global awareness and to find a cure for Duchenne muscular dystrophy. The world’s Duchenne organizations have been created by parents and families who’s lives have been deeply touched by the diagnosis of our sons with Duchenne. To raise global awareness.

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Navigating Through Life

Thoughts on the FDA Advisory Committee Meeting to Consider Eteplirsen. Founder and Executive Director. Monday, April 25th's Advisory Committee meeting felt more like a cross examination in a criminal case than a fair discussion about the efficacy of a promising treatment for Duchenne. As the clinical data on eteplirsen was scrutinized, minor details became exaggerated, such as. There is a strong need to break away from herd mentality of bureaucracy and business as usual. Dusty Brandom, age 23. My 23-year...

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sea.ess.em.jay – notes from underneath the table

Notes from underneath the table. March 25, 2017. March 25, 2017. Continue reading →. March 6, 2017. March 6, 2017. The Blume of Blooms. Continue reading →. January 12, 2017. January 12, 2017. Self Loathing And Other Stories. Continue reading →. November 28, 2016. November 28, 2016. It Was Less Than Ideal, But Then We Found Something New. Continue reading →. November 12, 2016. Continue reading →. November 11, 2016. November 11, 2016. Nature is like that. Continue reading →. September 3, 2016. July 23, 2016.

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