nzord.org.nz
NZORD - Rare disease support group directory
http://www.nzord.org.nz/support-groups
Skip to Primary Navigation. Skip to Secondary Navigation. Skip to Main Content. Skip to Utility Menu. Find a support group. Explore the NZORD site. How we can help. Living with a rare disease. What is a rare disease? Other New Zealanders’ stories. Stories from around the world. Press releases and submissions. Send us your story. Rare disease support group directory. Rare disease support group directory. NZORD has compiled a list of rare disease support groups. Can’t find your group? Phone: 07 896 7452.
ebldisabilityservices.org.au
Links & Resources
http://ebldisabilityservices.org.au/other-resources
Vision, Mission & Values. Links & Resources. News & Publications. Forms & Documentation. Links & Resources. To assist you in finding the services offered to you by disability support groups and government organisations we have provided a list of the common services people ask us about. If you have other services that you think should be on our list please click on Tell Us What You Think. And let us know. NDIS Complaints and Feedback. Aboriginal people with disabilities. The Department for Communities and...
the-life-and-times-of-jess.blogspot.com
Life and Times of Jess: Cornelia De Lange Sydrome
http://the-life-and-times-of-jess.blogspot.com/p/cornelia-de-lange-sydrome.html
Prayer and support requests. Who this Jess person is. Cornelia De Lange Sydrome. Cornelia De Lange Sydrome. Features of this syndrome which Kaylee exhibit include:. Low birth weight (Kaylee was 2.3kg or 5pound 4ounces, many babies with CDLS are less than 5pound). Delayed growth and small stature (She is in the 50. Percentile on CDLS growth charts but hardly registers on the "normal" charts.). Thin, downturned lips. Excessive body hair (she has the cutest little fuzzy patches on her thighs! We will be get...
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