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CDLSAUS.ORG

CDLS

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA). Is a family support organisation which exists to ensure the early and accurate diagnosis of CdLS, promote research into the cause and manifestations of the syndrome, and help people with a diagnosis of CdLS, and other with similar characteristics, make informed decisions throughout their lifetime. Better Start for Children with Disability. From 1 January 2013, children who are aged under 6 years and have been diagnosed with Prader Will...

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CONTACTS AT CDLSAUS.ORG

Cornelia de Lange Syndrome Assoc

Rose Humphrey

7 Fo●●●●lose

Bri●●●ane , Qld, 4053

AU

61.0●●●●3470
ro●●●●●●●●●●●@optusnet.com.au

View this contact

Cornelia de Lange Syndrome Assoc

Rose Humphrey

7 Fo●●●●lose

Bri●●●ane , Qld, 4053

AU

61.0●●●●3470
ro●●●●●●●●●●●@optusnet.com.au

View this contact

Cornelia de Lange Syndrome Assoc

Rose Humphrey

7 Fo●●●●lose

Bri●●●ane , Qld, 4053

AU

61.0●●●●3470
ro●●●●●●●●●●●@optusnet.com.au

View this contact

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CDLS | cdlsaus.org Reviews
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The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA). Is a family support organisation which exists to ensure the early and accurate diagnosis of CdLS, promote research into the cause and manifestations of the syndrome, and help people with a diagnosis of CdLS, and other with similar characteristics, make informed decisions throughout their lifetime. Better Start for Children with Disability. From 1 January 2013, children who are aged under 6 years and have been diagnosed with Prader Will...
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1 what is cdls
2 medical/professional
3 links
4 newsletters
5 gallery
6 events
7 national
8 queensland
9 new south wales
10 victoria
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what is cdls,medical/professional,links,newsletters,gallery,events,national,queensland,new south wales,victoria,tasmania,south australia,western australia,northern territory,international,resources,welcome,cdlsa,patrons,go to top,disclaimer,oznz cdls
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CDLS | cdlsaus.org Reviews

https://cdlsaus.org

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA). Is a family support organisation which exists to ensure the early and accurate diagnosis of CdLS, promote research into the cause and manifestations of the syndrome, and help people with a diagnosis of CdLS, and other with similar characteristics, make informed decisions throughout their lifetime. Better Start for Children with Disability. From 1 January 2013, children who are aged under 6 years and have been diagnosed with Prader Will...

INTERNAL PAGES

cdlsaus.org cdlsaus.org
1

CDLS

http://www.cdlsaus.org/links.php?a=nat

Australian Human Rights Commission. The National Carers Coalition. National Disability Insurance Scheme. Australians Mad as Hell. Website by Accent Web Design. Click icon to chat with other Australian and NZ families. Click icon for contact information of all countries. All donations over $2 are tax deductible.

2

CDLS

http://www.cdlsaus.org/medical.php

PSYCHOMOTOR DEVELOPMENT IN CdLS CHILDREN - Birth to 12 years. GROWTH CHARTS - FEMALES GROWTH CHARTS - MALES. Height - Birth-36 months. Height - Birth-36 months. Height - 2-18 years. Height - 2-18 years. Weight - Birth-36 months. Weight - Birth-36 months. Weight - 2-18 years. Weight - 2-18 years. MEDICAL/PROFESSIONAL ON LINE - TREATMENT PROTOCOLS. Whether, you are seeking assurance that your child is developing normally or you need guidance on how to deal with a particular problem, simply CLICK HERE.

3

CDLS

http://www.cdlsaus.org/newsletters.php

KIT (Keeping In Touch). The Lastest Version - January 2013. NDIS and Better Start. KIT - July 2012. 2012 National Conference Registration Papers. KIT - December 2011. NSW Clinic Days for 2012. Studies of Behaviour in CdLS. KIT - October 2011. Denmark 2011 International Conference. KIT - June 2011. KIT - December 2010. KIT - July 2010. Treatment Protocols - Growth and Development. National Disability Insurance Scheme. KIT - September 2009 Part 1. UK 2009 International Conference. KIT - February 2009.

4

CDLS

http://www.cdlsaus.org/events.php

Events - New and Old. Cornelia de Lange Syndrome (CdLS) Clinic Day. Saturday, 27 August 2016. 2016 Professional Registration Form. 2016 Family Registration Form. Cornelia de Lange Syndrome (CdLS) Clinic Day. Saturday, 14 November 2015. 2015 Professional Registration Form. 2015 Family Registration Form. Cornelia de Lange Syndrome Cash Draw Raffle Results. Raffle Drawn 29/9/2012 in Sydney. Prize: $1,000.00 won by ticket #359 Athol Barker ACT. Won by ticket #409 David Crossin ACT. ARCHIVES - THE EARLY YEARS.

5

CDLS

http://www.cdlsaus.org/gallery.php

Website by Accent Web Design. Click icon to chat with other Australian and NZ families. Click icon for contact information of all countries. All donations over $2 are tax deductible.

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LINKS TO THIS WEBSITE

nzord.org.nz nzord.org.nz

NZORD - Rare disease support group directory

http://www.nzord.org.nz/support-groups

Skip to Primary Navigation. Skip to Secondary Navigation. Skip to Main Content. Skip to Utility Menu. Find a support group. Explore the NZORD site. How we can help. Living with a rare disease. What is a rare disease? Other New Zealanders’ stories. Stories from around the world. Press releases and submissions. Send us your story. Rare disease support group directory. Rare disease support group directory. NZORD has compiled a list of rare disease support groups. Can’t find your group? Phone: 07 896 7452.

ebldisabilityservices.org.au ebldisabilityservices.org.au

Links & Resources

http://ebldisabilityservices.org.au/other-resources

Vision, Mission & Values. Links & Resources. News & Publications. Forms & Documentation. Links & Resources. To assist you in finding the services offered to you by disability support groups and government organisations we have provided a list of the common services people ask us about. If you have other services that you think should be on our list please click on Tell Us What You Think. And let us know. NDIS Complaints and Feedback. Aboriginal people with disabilities. The Department for Communities and...

the-life-and-times-of-jess.blogspot.com the-life-and-times-of-jess.blogspot.com

Life and Times of Jess: Cornelia De Lange Sydrome

http://the-life-and-times-of-jess.blogspot.com/p/cornelia-de-lange-sydrome.html

Prayer and support requests. Who this Jess person is. Cornelia De Lange Sydrome. Cornelia De Lange Sydrome. Features of this syndrome which Kaylee exhibit include:. Low birth weight (Kaylee was 2.3kg or 5pound 4ounces, many babies with CDLS are less than 5pound). Delayed growth and small stature (She is in the 50. Percentile on CDLS growth charts but hardly registers on the "normal" charts.). Thin, downturned lips. Excessive body hair (she has the cutest little fuzzy patches on her thighs! We will be get...

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cdlsaus.org cdlsaus.org

CDLS

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA). Is a family support organisation which exists to ensure the early and accurate diagnosis of CdLS, promote research into the cause and manifestations of the syndrome, and help people with a diagnosis of CdLS, and other with similar characteristics, make informed decisions throughout their lifetime. Better Start for Children with Disability. From 1 January 2013, children who are aged under 6 years and have been diagnosed with Prader Will...

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cdlsawareness.org cdlsawareness.org

CdLS Awareness and Support- Home

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cdlsbrasil.org cdlsbrasil.org

CdLS BRASIL - Home

Associação Brasileira Síndrome Cornélia de Lange. O que é a CdLS? O que é a CdLS? O que é a CdLS? Associação Brasileira Síndrome Cornélia de Lange. Fundada em 24 de novembro de 2014, com sede na cidade de São Paulo, é uma organização não governamental sem fins lucrativos, de âmbito nacional que visa promover os direitos constitucionais das pessoas portadoras dessa síndrome e que se encontram em situação de vulnerabilidade social. Sindrome Cornélia de Lange. Desenvolvido por Canuto Soluções.