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LISTED | My Journey with Cystic Fibrosis
https://cfjourney.wordpress.com/2012/03/06/listed
My Journey with Cystic Fibrosis. One day at a time . . . March 6, 2012. It’s official…. As of 3pm today, 3-6-12, I have been listed for double lung transplant. Started ivs yesterday. Just short of 2 weeks after finishing my last ivs. Thus is how it will be until the surgery. It’s wierd waiting for some innocent person that was generous enough to sign up as a donor, to pass on. That will be my first goal! Running… Seems so simple, but I haven’t been able to in many years…. Here we go again…. Please read M...
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Part IV | My Journey with Cystic Fibrosis
https://cfjourney.wordpress.com/part-iv
My Journey with Cystic Fibrosis. One day at a time . . . I need to first apologize to my followers… I know it seems like I dropped off the planet. I recently read some of my last posts and I’m so glad I wrote those. It makes me appreciate where I am today. I did not die! I am no longer suffering! I received my Double Lung Transplant on June 6, 2012! I was told I would not be able to leave the hospital until new lungs came in. Very scary! I was scheduled for surgery on June 6th at 2am. My leg muscles were...
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Feeling Awesome !!! | My Journey with Cystic Fibrosis
https://cfjourney.wordpress.com/2014/04/29/feeling-awesome
My Journey with Cystic Fibrosis. One day at a time . . . April 29, 2014. I can’t believe how I just abandoned this blog since transplant. The first year was a slow recovery and dealt with depression. Then I tried to activate the 2 step authorization on wordpress and it totally messed me up and I couldnt get in! I finally contacted support and got the whole thing deactivated. So, here I am, almost 2 years post transplant and I’m feeling amazing! I hope to keep up with my posts. We shall see. I added a Par...
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Just Reminiscing | My Journey with Cystic Fibrosis
https://cfjourney.wordpress.com/2013/05/25/just-reminiscing
My Journey with Cystic Fibrosis. One day at a time . . . May 25, 2013. I wish I could go and talk to myself pre transplant and tell myself that its going to be ok… you will breath like a normal person… you need the transplant or your life WILL end. I’m enjoying life… I have an 18 year old that drives me crazy. And it’s all good. My donor, Bernadette, saved my life and I am forever grateful. I added a Part IV above! Leave a Reply Cancel reply. Enter your comment here. Address never made public). Eva ̵...
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Because I Don’t Ever Want to Forget… | My Journey with Cystic Fibrosis
https://cfjourney.wordpress.com/2012/04/17/because-i-dont-ever-want-to-forget
My Journey with Cystic Fibrosis. One day at a time . . . Because I Don’t Ever Want to Forget…. April 17, 2012. As I wait for my call for transplant, it occurred to me that I will be entering a brand new world. I don’t ever want to forget where I came from. I fought to get to this point and in my “new” existence, I don’t ever want to give up either. By reminding myself of my struggles, it should help me fight…. So, here goes… Don’t ever forget…. The enormous amount of mucus I coughed up. The limit on my s...
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As time passes … | My Journey with Cystic Fibrosis
https://cfjourney.wordpress.com/2012/05/25/as-time-passes
My Journey with Cystic Fibrosis. One day at a time . . . As time passes …. May 25, 2012. I know it’s been a while since my last post. It’s been rough. I’ve been on and off IVs and am now on the worst one ever, the polymyxin. Started it Wednesday night after a little over a week on another IV med. When I got to the hospital I actually had to wait for a bed! Lungs can’t stay out of the body for very long! I thought – this must mean it’s a go! I was the primary for the lungs! I can’t wait to take a de...
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My Story-Part I | My Journey with Cystic Fibrosis
https://cfjourney.wordpress.com/my-story
My Journey with Cystic Fibrosis. One day at a time . . . Ok… So i’ll attempt to share my story the best I can…. I was born in 1967, a healthy baby girl. No medical problems, lived a normal childhood. When I was in 3rd grade, I had my first pneumonia, missed one month of school, and recovered. When I was in 6th grade, I had my 2nd pneumonia, and again recovered. When I was in 9th grade, my 3rd pneumonia, suspicion began. I felt much better after this and all was fine. Gave me a load of pills, but never ga...
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Part III | My Journey with Cystic Fibrosis
https://cfjourney.wordpress.com/part-iii
My Journey with Cystic Fibrosis. One day at a time . . . Well it was my daily life at the time. We need to identify ALL programs that would be effected and plan out the conversion process. Sounds simple Not really! Anyway, being a software development project manager was a stressful job, and having CF on top of that is really not a good combination. And my fev1 dropped to 31%. This was from 39% the week before, 42% the week before that, 43% 2 weeks before that and my baseline was 48%. I was put on triple...
