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Southern Maine CF Family Advisory Board - Home

There would not be a a website here if it were not for a group of caring people who have been touched by CF in a way that compelled them to try to make a difference. This website is our...

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Southern Maine CF Family Advisory Board - Home | cffamilyadvisoryboard-maine.com Reviews

https://cffamilyadvisoryboard-maine.com

There would not be a a website here if it were not for a group of caring people who have been touched by CF in a way that compelled them to try to make a difference. This website is our...

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1

Informational Links - Southern Maine CF Family Advisory Board

http://www.cffamilyadvisoryboard-maine.com/informational-links.html

Southern Maine CF Family Advisory Board. NEW - Inspiring Articles from Maine Sunday Telegram November 2014! Http:/ www.pressherald.com/2014/11/15/falmouth-teen-with-cystic-fibrosis-making-strides-on-college-cross-country-team/. Http:/ www.pressherald.com/2014/11/15/youngsters-find-cure-of-sorts-in-rigor-of-sports/. Make a Wish Foundation. Northern New England Cystic Fibrosis Consortium. Digestive Care Inc. Educational Site. Axcan Scandipharm Educational Site. Patient Assistance Foundation, LLC.

2

Getting Involved - Southern Maine CF Family Advisory Board

http://www.cffamilyadvisoryboard-maine.com/getting-involved.html

Southern Maine CF Family Advisory Board. What is going on with the board? Starting a mentoring program for the various stages of CF. First diagnosis and developing a support structure. Pediatric advice and support. Dealing with school issues and rights. Transition from pediatric care to adult care. Here are some ways you can get involved. Be a CF Advocate! Lean more here. http:/ www.cff.org/GetInvolved/Advocate/. Senators: Senator Susan Collins http:/ collins.senate.gov/public/.

3

Have Questions? - Southern Maine CF Family Advisory Board

http://www.cffamilyadvisoryboard-maine.com/have-questions.html

Southern Maine CF Family Advisory Board. Q: We are suspecting our 3 year old daughter (with CF) possibly has allergies. We have a dog and want to purify the air of as much as possible. What is the best option for air purifiers? What is recommended by the CF clinic? Q: “Hi, I will be traveling via air to Florida on vacation with the vest for the first time. Do you have any tips for me? Ask Your Questions Here!

4

Southern Maine CF Family Advisory Board - Home

http://www.cffamilyadvisoryboard-maine.com/index.html

Southern Maine CF Family Advisory Board. There would not be a a website here if it were not for a group of caring people who have been touched by CF in a way that compelled them to try to make a difference. This website is our opportunity to reach out to others in the Maine CF community, share our stories, help educate, and lend a helping hand when possible. If you are interested in joining please send an email. To accelerate the rate of improvement in CF care.

5

Educational Videos - Southern Maine CF Family Advisory Board

http://www.cffamilyadvisoryboard-maine.com/educational-videos.html

Southern Maine CF Family Advisory Board. 2016 Family Education Day. 2015 Family Education Day. Was held this year at the Augusta Country Club Manchester Maine on May 7, 2015 from 8:30 AM to 2:30 PM. Topics for discussion included:. New Research in Cystic Fibrosis. JP Clancy M.D. Cincinnati Children's Hospital,. CF Adult who started organization, OutRUN 38. New adult CF clinic. Transition to adult clinic. Clinical Transformation Program at BBCH. Integrative Medicine and CF. Click Here To See More Videos.

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Web Development - Beardsley Media

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We're on Face Book and YouTube. Southern Maine Cystic Fibrosis Family Advisory Board. There would not be a a website here if it were not for a group of caring people who have been touched by CF in a way that compelled them to try to make a difference. This website is our opportunity to reach out to others in the Maine CF community, share our stories, help educate, and lend a helping hand when possible. If you are interested in joining please send and email. How we helped: Web site design and development.

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