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CF Parents Info Hub | An initiative from the Sydney Children's Hospital Randwick, Cystic Fibrosis Parents Advisory Council

An initiative from the Sydney Children's Hospital Randwick, Cystic Fibrosis Parents Advisory Council (by Jen)

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CF Parents Info Hub | An initiative from the Sydney Children's Hospital Randwick, Cystic Fibrosis Parents Advisory Council | cfparentsinfohub.com Reviews
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CF Parents Info Hub | An initiative from the Sydney Children's Hospital Randwick, Cystic Fibrosis Parents Advisory Council | cfparentsinfohub.com Reviews

https://cfparentsinfohub.com

An initiative from the Sydney Children's Hospital Randwick, Cystic Fibrosis Parents Advisory Council (by Jen)

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1

infant percussion – CF Parents Info Hub

http://cfparentsinfohub.com/just-been-diagnosed/infant-percussion

Active Cycle of Breathing. CF Parents Info Hub. A Sydney CF Parents Group initiative. Setting up your CF Folder. Setting up your CF folder. Creating a Sick Plan. Supplementary info for your folder. Mentors for newly diagnosed families. Getting your head around nutrition. Baby enzyme calculator tool. Infant Percussion / Physio. Get involved in your clinic. Routines for small people. Starting pre-school or school? Preschool-age children care guidelines. Pre / Primary school briefing paper. Perform two to t...

2

Peer support groups – CF Parents Info Hub

http://cfparentsinfohub.com/support-groups/peer-support-groups

Active Cycle of Breathing. CF Parents Info Hub. A Sydney CF Parents Group initiative. Setting up your CF Folder. Setting up your CF folder. Creating a Sick Plan. Supplementary info for your folder. Mentors for newly diagnosed families. Getting your head around nutrition. Baby enzyme calculator tool. Infant Percussion / Physio. Get involved in your clinic. Routines for small people. Starting pre-school or school? Preschool-age children care guidelines. Pre / Primary school briefing paper. What can I claim?

3

Need Support? – CF Parents Info Hub

http://cfparentsinfohub.com/support-groups

Active Cycle of Breathing. CF Parents Info Hub. A Sydney CF Parents Group initiative. Setting up your CF Folder. Setting up your CF folder. Creating a Sick Plan. Supplementary info for your folder. Mentors for newly diagnosed families. Getting your head around nutrition. Baby enzyme calculator tool. Infant Percussion / Physio. Get involved in your clinic. Routines for small people. Starting pre-school or school? Preschool-age children care guidelines. Pre / Primary school briefing paper. We’re in t...

4

Mentors for newly diagnosed families – CF Parents Info Hub

http://cfparentsinfohub.com/just-been-diagnosed/mentors-for-newly-diagnosed-families

Active Cycle of Breathing. CF Parents Info Hub. A Sydney CF Parents Group initiative. Setting up your CF Folder. Setting up your CF folder. Creating a Sick Plan. Supplementary info for your folder. Mentors for newly diagnosed families. Getting your head around nutrition. Baby enzyme calculator tool. Infant Percussion / Physio. Get involved in your clinic. Routines for small people. Starting pre-school or school? Preschool-age children care guidelines. Pre / Primary school briefing paper. We have a networ...

5

CAPAC Mentor group – CF Parents Info Hub

http://cfparentsinfohub.com/support-groups/capac-mentor-group

Active Cycle of Breathing. CF Parents Info Hub. A Sydney CF Parents Group initiative. Setting up your CF Folder. Setting up your CF folder. Creating a Sick Plan. Supplementary info for your folder. Mentors for newly diagnosed families. Getting your head around nutrition. Baby enzyme calculator tool. Infant Percussion / Physio. Get involved in your clinic. Routines for small people. Starting pre-school or school? Preschool-age children care guidelines. Pre / Primary school briefing paper. You are commenti...

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cfkitchen.wordpress.com cfkitchen.wordpress.com

Barbecue salmon and vegetables | CF Kitchen

https://cfkitchen.wordpress.com/2015/01/22/bbq-salmon-vegetables

Barbecue salmon and vegetables. January 22, 2015. The olive oil is added last, so you can vary how much goes on each plate (there’s really no such thing as ‘too much’ olive oil in this dish). If you want to increase the fat content further, top the vegetables with some feta. Yummy. 2 150g salmon fillets, skin on. 2 zucchini, cut in half lengthwise, and then into 5mm thick slices lengthwise. 6 spring onions, outermost layer removed. Good quality olive oil for drizzling. Juice of half a lemon. You are comm...

cfkitchen.wordpress.com cfkitchen.wordpress.com

Thai beef salad | CF Kitchen

https://cfkitchen.wordpress.com/2015/01/30/thai-beef-salad

January 30, 2015. The next timeI made it, I tried to add some extra fat into the recipe by mixing coconut milk powder into the dressing. It was so good I practically drank it. I’d also recommend the coconut milk version for anyone who doesn’t like too much chilli. 2 fresh red thai chillies, seeded and coarsely chopped. 1 stick lemongrass, coarsely chopped. 2/3 bunch fresh coriander. 1/3 cup lime juice. 1 tablespoon fish sauce. 1 tablespoon soy sauce. 2 tablespoons coconut milk powder. 400g been rump steak.

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Welcome back (and a meal plan) | CF Kitchen

https://cfkitchen.wordpress.com/2015/01/18/welcome-back-and-a-meal-plan

Welcome back (and a meal plan). January 18, 2015. Hello everyone, it’s been a long time since I posted. I was busy with work, then busy with all the Christmas lead-up stuff, and then I went away. But now that life has settled down, I’m going to start blogging again. I’ve also decided to make a few changes to the blog. I’m going to move beyond just writing recipes to write some posts about life with CF (and life in general). Meal plan – Summer plan 1. Snacks – hummus and carrot sticks. Dinner – Out. Enter...

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12 things I learned from #12monthsofgoals | CF Kitchen

https://cfkitchen.wordpress.com/2015/01/24/12-things-i-learned-from-12monthsofgoals

12 things I learned from #12monthsofgoals. January 24, 2015. Last year, rather than setting any new year’s resolutions, I set my sights a bit smaller – January resolutions. And then at the end of the month, having knocked almost all of those goals over, I started again. Setting new goals every month was really valuable for me, and this is what I learnt:. 1) Concrete goals, flexible path. 2) Focus on forming habits. 3) Find the projects that will make life better. 4) Some things aren’t right for me. Addre...

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tessfarrelly | CF Kitchen

https://cfkitchen.wordpress.com/author/tessfarrelly

All posts by tessfarrelly. A back-to-work meal plan. January 8, 2016. Well, by now I have survived my first week back at work. And of course, because it’s the new year, I had grand plans to bring lunch, eat well, save money, all the rest of it. I also received a couple of recipe books for Christmas, so I wanted to try them out. If you’re following this meal plan, the main things you need to do on the weekend are make the quinoa salad (recipe to follow next week) and the zucchini bites. This was a recipe ...

cfkitchen.wordpress.com cfkitchen.wordpress.com

DIY instant soup pots | CF Kitchen

https://cfkitchen.wordpress.com/2015/01/20/diy-instant-soup-pots

DIY instant soup pots. January 20, 2015. I’ve seen a few different recipes for DIY instant noodles over the last couple of months, but never gotten around to trying them. Recently, I came across this recipe. On Pinterest and that inspired me to actually give it a go, and try to adapt it to a high-fat CF version, and a low-fat version for me. 1 container with a two-cup capacity. 1/2 a cup of bean sprouts. 2 tablespoons of chicken stock concentrate (if you don’t have this, a stock cube will do). To assembl...

cfkitchen.wordpress.com cfkitchen.wordpress.com

Meal planning when everything doesn’t go to plan | CF Kitchen

https://cfkitchen.wordpress.com/2015/02/01/meal-planning-when-everything-doesnt-go-to-plan

Meal planning when everything doesn’t go to plan. February 1, 2015. Last week was one of those weeks where we departed from our original meal plan quite a bit. Firstly we got to about 6:00 on Sunday without having done the shopping or having the energy to do it. At times like that, having a freezer full of leftovers is a life saver. The red curry below is one of my all time favourite freezer meal. By the time I did get to the shops (on Tuesday! Meal plan – Summer plan 2. Dinner – Red lentil curry. Lunch ...

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What is Cystic Fibrosis. Sunday, January 20, 2013. VCH Resort Stay 5 Recap. Gabrielle's 5th stay at the VCH Resort ended on Saturday. The antibiotics seem to have suppressed the bacteria in her lungs. Gabrielle looks better, has more energy, and no longer has a cough. We are now getting her back into her normal routine. Our prayer now is that the results from this hospitalization last as long as possible. Tuesday, January 15, 2013. VCH Resort Stay 5, Day 11. The antibiotics and/or change in tube feeding ...

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CF Parents Info Hub | An initiative from the Sydney Children's Hospital Randwick, Cystic Fibrosis Parents Advisory Council

CF Parents Info Hub. An initiative from the Sydney Children's Hospital Randwick, Cystic Fibrosis Parents Advisory Council. Mentors for newly diagnosed families. Routines for small people. New diagnosis mentor framework. Starting pre-school or school? Pre / Primary school briefing paper. A few notes from the latest CFRI conference in California. August 12, 2015. May 6, 2015. A reminder that hospital scripts are provided for the following medications:. September 9, 2014. Welcome to the CF Parents Info Hub.

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