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Cystic Fibrosis Unite | cfunite.org Reviews
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Cystic Fibrosis Unite | Events
http://cfunite.org/events
Connect, Share, Inform, Unite. Cystic Fibrosis Priority Setting Partnership. Many people with cystic fibrosis are susceptible to infections that are easily spread between people with CF. It’s not a great idea then to invite hundreds of people with CF to a stuffy community centre miles away to sit in a cramped room and share those bugs. That’s why CF Unite exists – to provide a way of getting together to discuss the most cutting edge CF research and inform the direction of future studies. My child has CF.
Cystic Fibrosis Unite | In the News – August 2013: Ivacaftor, lumacaftor, mannitol & nebulised amikacin
http://cfunite.org/news/in-the-news-august-2013-ivacaftor-lumacaftor-mannitol-nebulised-amikacin
Connect, Share, Inform, Unite. Cystic Fibrosis Priority Setting Partnership. In the News – August 2013: Ivacaftor, lumacaftor, mannitol & nebulised amikacin. 12 August 2013 / 19:33. CFTR Potentiator and Corrector Combinations. The combination of Ivacaftor and Lumacaftor in homozygous F508del cells restored CFTR function to 25% of the normal level but adding a second-generation corrector brought CFTR function up to 45% of the normal level equating to much milder CF. The same triple combination in cell...
Cystic Fibrosis Unite | Why ….. do we use intravenous antibiotics in the way we do?
http://cfunite.org/feature/why-do-we-use-intravenous-antibiotics-in-the-way-we-do-3
Connect, Share, Inform, Unite. Cystic Fibrosis Priority Setting Partnership. Why …. do we use intravenous antibiotics in the way we do? 30 August 2013 / 12:20. Professor Alan Smyth, University of Nottingham, UK. Many people with cystic fibrosis have chronic lung infection with the germ Pseudomonas aeruginosa. We became aware that our local children’s kidney dialysis unit had been referred a number of children with CF who had suffered temporary kidney failure – acute kidney injury – and we wer...As a resu...
Cystic Fibrosis Unite | Features
http://cfunite.org/features
Connect, Share, Inform, Unite. Cystic Fibrosis Priority Setting Partnership. Patterns of health in cystic fibrosis during the first two decades of life: what’s the score? Clinical research in CF – an example from Queens University Belfast. Research in CF is increasingly being carried out by large multidisciplinary teams. This video demonstrates the wide variety of research that is carried out at one CF research centre. Why …. do we use intravenous antibiotics in the way we do? The best clinical studies a...
Cystic Fibrosis Unite | About
http://cfunite.org/about
Connect, Share, Inform, Unite. Cystic Fibrosis Priority Setting Partnership. You can find out more about cystic fibrosis by visiting the UK CF Trust website www.cftrust.org.uk. And the US Cystic Fibrosis Foundation website www.cff.org. CF Unite is funded by a Wellcome. Have you been involved in a clinical study and want to know the results let us know! Can you inform the design of future clinical studies? The best clinical studies are designed with the help of the people who might take part. If you, ...
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Spit It Out! : January 2013
http://www.spititoutblogspot.com/2013_01_01_archive.html
A patient perspective on developments in the treatment and management of Cystic Fibrosis. I'm a 39 year old living and working with CF and CF-related diabetes. Double F508del. FEV1 is currently 25%. My motto: "If it works, do more of it. If it doesn't work, don't do it. If you're not sure, do some experiments." Twitter: @oli rayner. Wednesday, 2 January 2013. This is a controversial subject. I hope it makes people think without causing offence. These are just my personal views and, as ever, I am ...I do ...
Spit It Out! : Speech to CF Trust Scientific Conference 2013
http://www.spititoutblogspot.com/2013/04/speech-to-cf-trust-scientific.html
A patient perspective on developments in the treatment and management of Cystic Fibrosis. I'm a 39 year old living and working with CF and CF-related diabetes. Double F508del. FEV1 is currently 25%. My motto: "If it works, do more of it. If it doesn't work, don't do it. If you're not sure, do some experiments." Twitter: @oli rayner. Monday, 29 April 2013. Speech to CF Trust Scientific Conference 2013. 29 April 2013 at The Wellcome Trust, London. It’s essential that the CF Trust works in conjunction...
Spit It Out! : June 2014
http://www.spititoutblogspot.com/2014_06_01_archive.html
A patient perspective on developments in the treatment and management of Cystic Fibrosis. I'm a 39 year old living and working with CF and CF-related diabetes. Double F508del. FEV1 is currently 25%. My motto: "If it works, do more of it. If it doesn't work, don't do it. If you're not sure, do some experiments." Twitter: @oli rayner. Wednesday, 25 June 2014. Vertex results from TRAFFIC/TRANSPORT. For me, the most interesting points were:. Statistically significant increase in Body Mass Index (BMI). Vertex...
Spit It Out! : Vertex results from TRAFFIC/TRANSPORT
http://www.spititoutblogspot.com/2014/06/vertex-results-from-traffictransport.html
A patient perspective on developments in the treatment and management of Cystic Fibrosis. I'm a 39 year old living and working with CF and CF-related diabetes. Double F508del. FEV1 is currently 25%. My motto: "If it works, do more of it. If it doesn't work, don't do it. If you're not sure, do some experiments." Twitter: @oli rayner. Wednesday, 25 June 2014. Vertex results from TRAFFIC/TRANSPORT. For me, the most interesting points were:. Statistically significant increase in Body Mass Index (BMI). Vertex...
Spit It Out! : April 2013
http://www.spititoutblogspot.com/2013_04_01_archive.html
A patient perspective on developments in the treatment and management of Cystic Fibrosis. I'm a 39 year old living and working with CF and CF-related diabetes. Double F508del. FEV1 is currently 25%. My motto: "If it works, do more of it. If it doesn't work, don't do it. If you're not sure, do some experiments." Twitter: @oli rayner. Monday, 29 April 2013. Speech to CF Trust Scientific Conference 2013. 29 April 2013 at The Wellcome Trust, London. It’s essential that the CF Trust works in conjunction...
Spit It Out! : Which CFTR mutations actually cause CF?
http://www.spititoutblogspot.com/2013/08/which-cftr-mutations-actually-cause-cf.html
A patient perspective on developments in the treatment and management of Cystic Fibrosis. I'm a 39 year old living and working with CF and CF-related diabetes. Double F508del. FEV1 is currently 25%. My motto: "If it works, do more of it. If it doesn't work, don't do it. If you're not sure, do some experiments." Twitter: @oli rayner. Monday, 26 August 2013. Which CFTR mutations actually cause CF? How did you do this study? What is the relevance of the results? This information will be used by scientists s...
siblingsofcysticfibrosis.wordpress.com
networked, global and learning | A journey into a networked reality… | Page 2
https://siblingsofcysticfibrosis.wordpress.com/page/2
Networked, global and learning. A journey into a networked reality…. Newer posts →. October 3, 2014. I’m chewing through some ideas around my research question. So in terms of my research question, here are some possibilities;. 1 How can NGL be used in the design and implementation of a ERP learning strategy to imbed and support knowledge transfer to end users? 2 How can NGL be used to support technology rollouts? 3 How can NGL be used to support the development of Communities of Practice in ERP rollouts?
Links | Cochrane Cystic Fibrosis and Genetic Disorders
http://cfgd.cochrane.org/links
The Group has selected and organised links to resources available via the Internet. The links detailed here may be of interest to members of the public, consumers, new reviewers as well as long-standing collaborators. Some URLs may be used more than once on this page. If you have any suggestions for links that should be added here, please email your recommendations to Tracey Remmington. General information on genetic disorders. The Globin Gene Server. The Association of Genetic Support of Australasia.
Spit It Out! : Statistics and a Big Pinch of Salt
http://www.spititoutblogspot.com/2012/11/statistics-and-big-pinch-of-salt.html
A patient perspective on developments in the treatment and management of Cystic Fibrosis. I'm a 39 year old living and working with CF and CF-related diabetes. Double F508del. FEV1 is currently 25%. My motto: "If it works, do more of it. If it doesn't work, don't do it. If you're not sure, do some experiments." Twitter: @oli rayner. Wednesday, 21 November 2012. Statistics and a Big Pinch of Salt. What exactly is “media predicted survival”? Median predicted survival is the age beyond which half of the peo...
Spit It Out! : Kalydecogate (Part I)
http://www.spititoutblogspot.com/2012/12/kalydecogate.html
A patient perspective on developments in the treatment and management of Cystic Fibrosis. I'm a 39 year old living and working with CF and CF-related diabetes. Double F508del. FEV1 is currently 25%. My motto: "If it works, do more of it. If it doesn't work, don't do it. If you're not sure, do some experiments." Twitter: @oli rayner. Saturday, 1 December 2012. The Cystic Fibrosis Foundation in the US has provided $75m to back the “small molecule” drug development programme which produced Kalyd...Discussio...
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Christian Fellowship Union :: Home
The mission of Christian Fellowship Union is to proclaim Jesus Christ, make disciples, establish churches, and equip believers in Mexico, South Texas, Spain, and North Africa for worldwide ministry. Greetings and welcome to the Christian Fellowship Union web site! We hope that as you peruse these links, God will spark an excitement in your heart about what He is doing in the world, and, more specifically, what He is doing through CFU to reach the world. Partnering with you to reach the world for Christ,.
C.F. Unión Breñas | Web Oficial
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Cystic Fibrosis Unite
Connect, Share, Inform, Unite. Cystic Fibrosis Priority Setting Partnership. See the Top Ten priorities for CF research. Physio review - vest physio, non-invasive ventilation, DNase and more. The evidence behind the treatment. See the Top Ten priorities for CF research. Physio review - vest physio, non-invasive ventilation, DNase and more. The evidence behind the treatment. Have your say on the latest cystic fibrosis research. Editorial pieces focusing on the latest in CF research. From Twitter for iPad.
CFUnited: A ColdFusion, Flex & AIR Conference
State of the CF Union survey 2016. State of the CF Union survey 2015 - partial results. State of the CF Union survey 2015. Getting Into The Box. State of the CF Union survey 2014 - partial results. State of the CF Union survey 2014. Follow us on Twitter. Thanks for supporting CFUnited! Thanks for supporting CFUnited! Follow us on twitter. Stellr , 2010. 405 E Gude Dr Ste 207, Rockville MD 20850 301.424.3903 Fax 301.762.8185.
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