A lifestyle and health blog aimed to spread awareness of a rare neurological condition called Arnold Chiari Malformation. We aim to encourage people to talk about their disabilities and to help people through positive posts, questions and answers and through our journeys. This includes diet, exercise and how to cope with daily pain.
http://chiarisisters.blogspot.com/
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Chiari Sisters | chiarisisters.blogspot.com Reviews
https://chiarisisters.blogspot.com
A lifestyle and health blog aimed to spread awareness of a rare neurological condition called Arnold Chiari Malformation. We aim to encourage people to talk about their disabilities and to help people through positive posts, questions and answers and through our journeys. This includes diet, exercise and how to cope with daily pain.
chiarisisters.blogspot.com
Chiari Sisters: Hattie's Arnold Chiari Malformation diagnosis story
http://chiarisisters.blogspot.com/2015/05/hatties-arnold-chiari-malformation.html
Tuesday, 26 May 2015. Hattie's Arnold Chiari Malformation diagnosis story. Hey everyone, I'm Harriet, the little sister. I was diagnosed with Arnold Chiari Malformation in 2010 and have already undergone the brain surgery my sister is yet to have. I have been so busy recently so haven't been able to post anything yet, although I think my beautiful big sis has done an amazing job so far! This is my first post all about the build up to being diagnosed with the brain condition. I knew it wasn't just hormones.
Chiari Sisters: Neurosurgeons are simply wonderful
http://chiarisisters.blogspot.com/2015/05/neurosurgeons-are-simply-wonderful.html
Friday, 15 May 2015. Neurosurgeons are simply wonderful. Hi everyone, apologies for my late post. I was supposed to write this two weeks ago but unfortunately I have not been well enough and have found it really difficult to concentrate (Chiari Malformation messes with my concentration a lot). Finally, here is my update on my experience with a neurosurgeon. And that I am clearly being effected by the condition. More news I was not expecting - ICP Monitoring. And so that was pretty much it! Cerebrospinal ...
Chiari Sisters: Georgia's diagnosis
http://chiarisisters.blogspot.com/2015/04/georgias-diagnosis.html
Monday, 27 April 2015. I hope you all had a splendid weekend. Following from our last post I thought this would be a great time to introduce ourselves properly and tell you all about our diagnosis experiences. As Hattie is at work I'll start with me, the big sister! My name is Georgia Wilson, I am 23 years old and I have Arnold Chiari Malformation and Syringomyelia. Last Christmas I was given news that would change my life forever. I do not feel good! Am I having a stroke? Welcome to Chiari Sisters. ...
Chiari Sisters: Having ICP Monitoring
http://chiarisisters.blogspot.com/2015/05/having-icp-monitoring.html
Tuesday, 19 May 2015. The ICP monitoring procedure sounds rather daunting. I have to admit that I was so anxious about it! What the procedure feels like. awake! Look at the floor until you are lying down. I very regrettably looked at a trolly that reminded me of something from a SAW film, really not a good move! Shortly after my lovely chat I was wheeled back to my ward and left to sleep for half an hour. Then my mum, sister and boyfriend came up which was the most delightful sight! Harriet, my sister, h...
Chiari Sisters: A letter to a healthier me
http://chiarisisters.blogspot.com/2016/04/a-letter-to-healthier-me.html
Monday, 25 April 2016. A letter to a healthier me. Free to live how you pleased. Free to be you. This is my letter to a healthier me. Don't take a day for granted. Run free and be outside as much as possible! You have no idea how much you miss running when you can no longer run. Avoid having too many 'duvet days' as one day all you will want to do is get out of bed. Remember to always look after yourself. Your health is absolutely your priority at all times. Have no regrets. None. Nada. Sing at the top o...
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jordantheheadcase.wordpress.com
What’s it really like to have ICP monitoring? (And…AND!! There’s a video!!) | jordantheheadcase
https://jordantheheadcase.wordpress.com/2014/05/30/whats-it-really-like-to-have-icp-monitoring-and-and-theres-a-video
Catching up with life and fulfilling my 'F-List' (like a Bucket List but more immediate). What’s it really like to have ICP monitoring? There’s a video! ICP probes and all that jazz. Me ‘n’ My Bolt. So, my friend the ICP bolt. Once it’s in, you’re quite literally plugged into the monitor itself, which looks like this:. An ICP monitor….during one of the rare times my pressures were reading as normal. Clipped and ready for snoozeville! Depending on how long your surgeon is planning to leave the bolt in wil...
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Chiari Pillow.com
Welcome to Chiari Pillow.com. The Home of the Official Chiari Pillow. Chip Vierow from WACMA ( www.wacma.com. Came up with the concept of The Chiari Pillow. The secret of the Chiari Pillow. Is in the cooperative partnership that includes Dr B, a world class, dedicated, Chiari expert. And Chiari Pillow designer extraordinaire) and approximately 140 WACMA members (World Arnold Chiari Malformation Association). Our ace testers who gave their extremely valuable feedback). See the Contact Us.
Isabel's Chiari Journey
Friday, April 16, 2010. Isabel New Year's Eve. That is just sparkling apple juice). Well I am a slacker what can I say. I have been very busy and have not been blogging. Isabel is doing well, but I thought I would post an update. Since the last post she had another x-ray of her spine and her scoliosis has not changed. Which is good and bad, I guess. She will get another x-ray this fall to continue to monitor it. Posted by Heather C. Saturday, May 9, 2009. GOOD NEWS: BETTER LATE THAN NEVER. Her curve went...
Chiari Runners
Chiari Malformation is a defect. The persons skull is too small for the brain, and the pressure on the brain stem causes ridiculous amounts of pain, balance problems, and other debilitating effects. So far, there is no cure. There is decompression surgery. But, for virtually all cases it is not a permanent fix. We run because we can. And by running, we carry the hopes and dreams of chiari sufferers worldwide by disseminating the need for research. Visit www.conquerchiari.org to learn more.
Associazione Culturale Chiarisegni Onlus
Un linguaggio coerente di parole buone, di immagini importanti, di profondi significati, CHIARISEGNI di una lotta contro il disagio reale. Venerdì 18 luglio 2014. Immagini per cellulari (foto 2). Lunedì 30 giugno 2014. Mercoledì 14 maggio 2014. L’Associazione Culturale Chiarisegni Onlus. È inserita negli elenchi. Credo sia chiaro a tutti quanti che le nostre attività. E i nostri progetti. Slegata dalle logiche del mercato e del profitto. Sia un elemento forse ancora più importante. Domenica 20 aprile 2014.
Chiari Servizi | Al servizio del cittadino per la tutela dell'ambiente
Raccolta porta a porta. Sportello servizio affissioni – icp – cosap. Sportello informazioni IMU – TASI. Tassa sui rifiuti (TARI). La torre dell’acqua. Raccolte a ferragosto regolari. INFOPOINT e distribuzione contenitori per porta a porta. Nuovo servizio: FINANZA AGEVOLATA. Festa “addio al cassonetto”. Distribuzione contenitori per la raccolta differenziata. Incontri pubblici illustrazione progetto raccolta differenziata – sistema porta a porta. Giornata del verde pulito. Raccolta porta a porta. I reside...
Chiari Sisters
Thursday, 28 April 2016. No more surgery was the best and worst news. The truth is, this condition is forever and it has never really hit me like it did on that day. All of the times before I have been looking forward to the next step. First it was diagnosis, then it was testing, then surgery, then drug prescriptions - but what now? I am free to get on with my life but how does one do so when everything has changed and you are not you anymore? Monday, 25 April 2016. A letter to a healthier me. Avoid havi...
Chiari Spirit Fighters | Fighting Together As A Family
Waiver and Release of Liability. Kalez Kidz Holiday and School Supply Drive. Disability permit applications online. Giving money to the Chiari Spirit Fighters is simple, and 100% of our profits go directly to your local Chiari community! Tucson, AZ Chiari Spirit Fighters Walk. November 19, 2016. Location: Brandi Fenton Memorial Park (Meet @ Hay Barn Ramada), 3482 East River Road, Tucson, AZ 85718. Raise money for Chiari research, awar. Fight on your feet with a Chiari walk! Profits from sales of all Zipp...
Chiari srl - innovation in loss adjusting
