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It's All in my Head | my life with Chiari malformation

my life with Chiari malformation

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It's All in my Head | my life with Chiari malformation | chiarisurgery.wordpress.com Reviews

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my life with Chiari malformation

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Skål! | It's All in my Head

https://chiarisurgery.wordpress.com/2012/03/02/skal

It's All in my Head. My life with Chiari malformation. This entry was posted on March 2, 2012. Bookmark the permalink. 8221;, then dug into the food, emerging several hours later rather over-sufficiently full. Here are the pictures we took on the night. Sorry there aren’t more, but wordpress isn’t allowing me to upload much today! Left to right: Jenny (sister), John (father), Jordan, Patrick, myself. Same as before, but with my Melody (my mother) on the right instead of me. One thought on “ Skål! You are...

2

Gory news, everyone! | It's All in my Head

https://chiarisurgery.wordpress.com/2012/03/11/gory-news-everyone

It's All in my Head. My life with Chiari malformation. Gory news, everyone! This entry was posted on March 11, 2012. Bookmark the permalink. It’s not really painful, just a little tender to touch and it itches like mad every now and then. Here’s hoping they don’t stitch me tomorrow. I’m a wimp, I don’t want stitches. Glue all the way! 2 thoughts on “ Gory news, everyone! March 11, 2012 at 8:08 pm. This made me cringe a little. I empathise too much with imaginable pain. March 12, 2012 at 4:16 am. Hi there...

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Chiari Malformation in Retrospect | It's All in my Head

https://chiarisurgery.wordpress.com/2012/04/11/chiari-malformation-in-retrospect

It's All in my Head. My life with Chiari malformation. Chiari Malformation in Retrospect. This entry was posted on April 11, 2012. Bookmark the permalink. So, thrilled to pieces, tired and very hungry, I got dressed again and they called my parents to come pick me up. Honestly, I was pretty over the moon. I’ll keep updating, of course. These were just things that I needed to say. One thought on “ Chiari Malformation in Retrospect. April 11, 2012 at 4:44 pm. Also…I realized last weekend that you com...

4

Under the Chiari | It's All in my Head

https://chiarisurgery.wordpress.com/2012/01/26/under-the-chiari

It's All in my Head. My life with Chiari malformation. This entry was posted on January 26, 2012 and tagged australian institute of music. So far, all I’ve done in this blog is rant about the story behind my illness and how it affects me, but believe it or not there is a person under all of this medical drama. I’d like to take the time to write a little bit about who I am, what I’ve done with my life so far and where I intend to take my life after my surgery. I probably give a little more money to charit...

5

February | 2012 | It's All in my Head

https://chiarisurgery.wordpress.com/2012/02

It's All in my Head. My life with Chiari malformation. Posted in February 2012. Here I am, five days after decompression surgery! I’m still in hospital and it’s been an interesting ride, but for the most part there have been no complications and I’ve handled the surgery very well. I’m hoping to be home the day after tomorrow, as tomorrow we are going to try me on some steroids … Continue reading →. So what’s it gonna be? Oh wow… 6 days…. 8230;this is really happening, isn’t it? My excited optimism has be...

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beckschiari.blogspot.com beckschiari.blogspot.com

Rebecca's Brain: Decompression (surgery) information

http://beckschiari.blogspot.com/p/decompression-surgery-information.html

A List of Chiari Specialists. If you're scheduled for surgery, or think it might be a possibility, then you might be wondering what goes on during the procedure. I took this off of my surgeon's website at: http:/ www.mayfieldchiaricenter.com/chiari surgery.php. Step 1: prepare the patient. Step 2: make a skin incision. Step 3: remove bone. Step 4: open the dura. Next, the surgeon opens the dura to view the tonsils and cisterna magna. Some surgeons perform a Doppler ultrasound study during surgery to ...

beckschiari.blogspot.com beckschiari.blogspot.com

Rebecca's Brain: A more unified entry

http://beckschiari.blogspot.com/2012/06/more-unified-entry.html

A List of Chiari Specialists. Friday, June 8, 2012. A more unified entry. I have created a page at the top called "My Surgery Story". You can find it here http:/ beckschiari.blogspot.com/p/my-surgery-story 08.html. This should help you follow along better instead of having to jump around to all my entries. The timeline goes something like this, though:. Day 1 (29th): Day of the surgery. 12:00PM- moved to recovery. 12-2:00PM- vomiting, walking around. 2:00PM- moved to room. No catheter after surgery.

beckschiari.blogspot.com beckschiari.blogspot.com

Rebecca's Brain: pseudo tumor cerebri

http://beckschiari.blogspot.com/2012/06/pseudo-tumor-cerebri.html

A List of Chiari Specialists. Monday, June 11, 2012. On Wednesday I will be going back to the neurosurgeon. At that time, we will discuss whether a pseudo tumor cerebri is causing my post-op problems. The pseudo tumor cerebri is common post-op when it comes to a Chiari decompression, although people can develop it beforehand, too. It's not limited to Chiari patients. So what is it? According to the Mayo Clinic's website, symptoms include:. Ringing in the ears that pulses in time with your heartbeat.

beckschiari.blogspot.com beckschiari.blogspot.com

Rebecca's Brain: About Chiari

http://beckschiari.blogspot.com/p/about-chiari.html

A List of Chiari Specialists. Welcome to the world of Chiari Malformation! More than likely, you are here because you or someone close to you has been diagnosed with it. If you are like the rest of us, you had probably never heard of it until you received the news. In a nutshell, a Chiari malformation happens when your skull is just too small to hold your brain in adeqautely. As a result, your tonsils extend down into your spinal column and fluid flow is reduced and sometimes cut off altogether. Probably...

beckschiari.blogspot.com beckschiari.blogspot.com

Rebecca's Brain: Another setback

http://beckschiari.blogspot.com/2012/06/another-setback.html

A List of Chiari Specialists. Friday, June 22, 2012. Subscribe to: Post Comments (Atom). View my complete profile. Chiari and EDS Blogs. My Vault of Shame. Living with Ehlers Danlos Syndrome. Hockey is the Best Medicine. Responsibility in end-life times, domestic violence, forgiveness. Please Tape Me Back Together. The last post ever. Windwood Farm is out! Zipperheads: Living with Arnold Chiari Malformation. It's a New Year. Blessings in a Storm. Confessions of a Ninja Mom Week 1. It's All in my Head.

beckschiari.blogspot.com beckschiari.blogspot.com

Rebecca's Brain: Various Chiari Tests

http://beckschiari.blogspot.com/p/related-conditionsvarious-chiari-tests.html

A List of Chiari Specialists. There are many related disorders that can go hand-in-hand with Chiari. There are also questions that you will undoubtedly have when you visit the neurosurgeon. When you are diagnosed, these are things that you should expect to be discussed if you are seeing a true expert. You will want to discuss these to be sure they are confirmed or ruled out. 3 Spinal MRIs- The spinal MRI should be a full spinal one and include the cervical, thoracic, and lumbar spine. 7 Gag reflexes- In ...

beckschiari.blogspot.com beckschiari.blogspot.com

Rebecca's Brain: 2 Week Follow Up

http://beckschiari.blogspot.com/2012/06/2-week-follow-up.html

A List of Chiari Specialists. Wednesday, June 13, 2012. 2 Week Follow Up. Today we trekked back to the NS for my 2 week follow up appointment. It went better than expected, although traveling anywhere after brain surgery kind of takes the fun out of a car trip. The NS and his nurse seemed to be sympathetic about my pain, although the NS did remark to his nurse that he had "never seen anything like this with THIS kind of surgery." I WOULD have to be the anomaly. Subscribe to: Post Comments (Atom).

beckschiari.blogspot.com beckschiari.blogspot.com

Rebecca's Brain: My Surgery Story

http://beckschiari.blogspot.com/p/my-surgery-story_7.html

A List of Chiari Specialists. I would like to go ahead and post a proper update regarding my surgery while I am at least a little bit conscious. I thought about them on the whole drive up to Cincinnati. Pete slept while I drove so it was a lonely ride but the radio was good. Not being able to eat or drink after midnight made the driving harder but since I am awake at that time normally anyway it wasn’t so bad. I was able to pee for a few seconds but then it stopped. They asked me where I was and made...

beckschiari.blogspot.com beckschiari.blogspot.com

Rebecca's Brain: Day 12

http://beckschiari.blogspot.com/2012/06/day-12.html

A List of Chiari Specialists. Saturday, June 9, 2012. Today is Saturday, June 9th. Thanks to the pain meds my PCP prescribed, I can sort of function through the pain. I am able to shower and move around and not be blinded by the unbearable pressure and stabbing sensation in my head. The thrush is having difficulty clearing up since the steroids make it worse. I have about a day left of them. So far, I have lost 15 pounds in 12 days. That is not totally unwelcome. :-). More and more, I am becoming aware t...

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It's All in my Head | my life with Chiari malformation

It's All in my Head. My life with Chiari malformation. I said I’d be honest, didn’t I? My aim for this blog has been to give an honest account of not only the physical but the emotional experience of fighting a disability. So far I think I’ve done okay, but it’s starting to get more difficult as I experience some of the negative effects of coming out of a disability. It’s quite … Continue reading →. Chiari Malformation in Retrospect. Surgery Round 2: here we go! Gory news, everyone! Today we noticed that...

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The struggles of living with Chiari. Learn More About Chiari. I had a pretty normal childhood growing up. I loved to play outside, climb trees, make mud pies, and do normal kid activities. I knew there were certain things I wasn’t too good at, such as catching a softball or baseball because I had this overwhelming fear that I would miss the … Continue reading →. 8221; I mentioned that I thought I had cerebullar ptosis (slumping/sagging) … Continue reading →. Long time, no post. I am sooo happy to have he...

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Arnold-Chiari Syndrome | Chiari Syndrome Causes, Symptoms, Treatment & Prognosis

Causes of Arnold-Chiari Syndrome. The Different Types of Chiari Malformation. Getting the Right Diagnosis for Arnold-Chiari Syndrome. Associated Disorders of Arnold-Chiari Malformations. Complications Due to Arnold-Chiari Syndrome. Syringomyelia in Arnold-Chiari Syndrome. Living with the Symptoms of Arnold-Chiari Syndrome. Treatment for Arnold Chiari Syndrome. Exercises and Physiotherapy for Arnold-Chiari. Unsuccessful Chiari Surgeries Possible Reasons and Treatment Options. The treatment depends on the ...

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