rarelungmom.blogspot.com
life with a rare lung diseased child: shopping with a lung disease...yuck
http://rarelungmom.blogspot.com/2008/07/shopping-with-lung-diseaseyuck.html
Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Tuesday, July 29, 2008. Shopping with a lung disease.yuck. By noon we were hungry. After lunch Julia just became so tired out. I felt bad because I had thought of bringing the oxygen but decided against it. She has been doing so well this summer and well it is a pain in the arse to haul around, even though we have one of the battery portable oxygen concentrators (Inogen One .it rocks! Babette and Robert Gierke.
rarelungmom.blogspot.com
life with a rare lung diseased child: August 2008
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Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Wednesday, August 13, 2008. Well I think we set a record for how many days we can go without. Missing school. Only not the kind you would hope for. Julia made. It the first full day. BUT.apparently she fell back in her chair. And hit a desk that is behind her. She did not tell the teacher nor. Did she go to the nurse. Yet at around 5pm on Monday she keeps. All kinds of questions, did she fall? Did she get hit?
rarelungmom.blogspot.com
life with a rare lung diseased child: Hike for Lung Health 2008
http://rarelungmom.blogspot.com/2008/10/hike-for-lung-health-2008.html
Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Sunday, October 12, 2008. Hike for Lung Health 2008. Julia did an amazing job with the help from friends, family, and even people we have never even met. She was able to raise over $2,000. The Children's Interstitial Lung Disease Foundation came in 3rd place with over all funds raised. This is great news. We are so lucky to have people care about Julia the way they do. God Bless each of you. And so here we are.
rarelungmom.blogspot.com
life with a rare lung diseased child: NEHI: A Rare Diagnosis after Misdiagnosis
http://rarelungmom.blogspot.com/2008/10/nehi-rare-diagnosis-after-misdiagnosis.html
Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Sunday, October 12, 2008. NEHI: A Rare Diagnosis after Misdiagnosis. Below is a link to an article a friend of mine (whose son has the same lung disease as Julia) wrote. It is quite informative. Http:/ www.articles.complexchild.com/Oct2008/00078.html. Subscribe to: Post Comments (Atom). Help find a cure.let me breathe! Visit the chILD Foundation's website. View my complete profile. She's not contagious.really.
rarelungmom.blogspot.com
life with a rare lung diseased child: October 2008
http://rarelungmom.blogspot.com/2008_10_01_archive.html
Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Sunday, October 12, 2008. NEHI: A Rare Diagnosis after Misdiagnosis. Below is a link to an article a friend of mine (whose son has the same lung disease as Julia) wrote. It is quite informative. Http:/ www.articles.complexchild.com/Oct2008/00078.html. Julia is looking forward to Halloween. She still hasn't made up her mind on her costume. She is either going as Cinderella again or going as a Lion. Grant Hall fro...
rarelungmom.blogspot.com
life with a rare lung diseased child: Julia's health update
http://rarelungmom.blogspot.com/2008/10/julias-health-update.html
Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Sunday, October 12, 2008. At Julia's teacher's request we have added a mid-morning snack. She has been doing much better eating every 3 hrs or so. She has breakfast at 7am, then snack at 10am. Lunch is at 12 and after school snack is at 3:30. Dinner is at 6pm and night time snack is at 8:30pm. She is maintaining her weight(even gained a pound), and has grown in height. So that is all good. And so here we are.
rarelungmom.blogspot.com
life with a rare lung diseased child: July 2008
http://rarelungmom.blogspot.com/2008_07_01_archive.html
Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Tuesday, July 29, 2008. Shopping with a lung disease.yuck. By noon we were hungry. After lunch Julia just became so tired out. I felt bad because I had thought of bringing the oxygen but decided against it. She has been doing so well this summer and well it is a pain in the arse to haul around, even though we have one of the battery portable oxygen concentrators (Inogen One .it rocks! Wednesday, July 23, 2008.
rarelungmom.blogspot.com
life with a rare lung diseased child: December 2008
http://rarelungmom.blogspot.com/2008_12_01_archive.html
Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Wednesday, December 17, 2008. She is still taking her allergy meds and the Zithromax and Vemma as well. Those last two really do make a difference as when she doesn't take it after about 3 days she starts having breathing problems or comes down with a cold. I heard reports for other parents at her school that 2 kids have scarlet fever and that there are 5 cases of RSV in the 4yr old program. OH MY! Bronchiolitis...
rarelungmom.blogspot.com
life with a rare lung diseased child: Homecoming
http://rarelungmom.blogspot.com/2008/07/homecoming.html
Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Wednesday, July 23, 2008. Hike For Lung Health. Jennifer Goodnight-Roberso(Mom to Julia age 7yrs with chILDren's Interstitial Lung Disease0. Subscribe to: Post Comments (Atom). Help find a cure.let me breathe! Visit the chILD Foundation's website. I am mom to a 7yr old daughter who sufferes from the rare lung disorder named Children's Interstitital Lung Disease. View my complete profile. And so here we are.
