trevorsheart.blogspot.com
Trevor's Heart Journey: Day 9...Post-Fontan!
http://trevorsheart.blogspot.com/2011/05/day-9post-fontan.html
Wednesday, May 25, 2011. A week ago yesterday, on May 17th, our little heart hero Trevor underwent his third open heart surgery for his complex single ventricle. The day we had been dreading for years, even though it was the day we wanted to get here asap. We just wanted to get this third and hopefully last surgery over with. It's a huge relief to be going down recovery road. One day in the Critical Intensive Care Unit and then moved to Intermediate Care. Amazing! What a big change a little gatorade can ...
trevorsheart.blogspot.com
Trevor's Heart Journey: May 2011
http://trevorsheart.blogspot.com/2011_05_01_archive.html
Friday, May 27, 2011. This Says It All. This afternoon Trevor was discharged from the hospital! Ten days after his Fontan Surgery.we are home! I'm A HEART Surgery SURVIVOR! Bye, Bye Hospital! Our Heart Warrior is HOME! Posted by Stacey - Heart Mom. Wednesday, May 25, 2011. It's a huge relief to be going down recovery road. One day in the Critical Intensive Care Unit and then moved to Intermediate Care. Amazing! Yesterday his last chest tube was removed, along with the pacing wires. He still has the I...
trevorsheart.blogspot.com
Trevor's Heart Journey: This Says It All...
http://trevorsheart.blogspot.com/2011/05/this-says-it-all.html
Friday, May 27, 2011. This Says It All. This afternoon Trevor was discharged from the hospital! Ten days after his Fontan Surgery.we are home! I'm A HEART Surgery SURVIVOR! Bye, Bye Hospital! Our Heart Warrior is HOME! Posted by Stacey - Heart Mom. June 6, 2011 at 12:22 PM. Your little boy is just SO ADORABLE! Heart hugs www.elladawn.blogspot.com. Subscribe to: Post Comments (Atom). Travis - Big Brother. Brandon - Big Brother. The Colbert Boys Brandon, Travis, and Trevor. Single Ventricle Heart Defects.
5rolledtacos.com
5 Rolled Tacos: How to Donate
http://www.5rolledtacos.com/p/how-to-donate.html
Help JR and Tom run for the big hearts of small children. As you can see from the image above, you do not need a PayPal account to use PayPal. The way the page is set up makes it difficult to see that. The area highlighted provides a link for you to click through to the payment screen without signing up for an account. This is JR's PayPal account that we will use to collect funds. We have integrated a donation tracker with Paypal that will update after each donation. The tracker is on the homepage.
trevorsheart.blogspot.com
Trevor's Heart Journey: Heart Poem
http://trevorsheart.blogspot.com/p/heart-mom.html
When I Became a Heart Mother. One day my world came crashing down,. I'll never be the same. They told me that my child was sick. I thought, am I to blame? I don't think I can handle this. I'm really not that strong. It seemed my heart was breaking. As, I'd loved her for so long. I will not give up on this child.despite your best "advice". I will give my child a chance.No matter what the price. And I will learn all that I need.to help my child to thrive. I'll even use that feeding tube. No matter how I try.
trevorsheart.blogspot.com
Trevor's Heart Journey: Trevor is Back!
http://trevorsheart.blogspot.com/2011/06/im-bit-overdue-in-giving-update-as-this.html
Wednesday, June 29, 2011. My little guy is so amazing and strong! I hold him close every day, so blessed to have him in our lives. With every appointment, things continue to improve. Praying this trend continues! We have cut down on the meds, he first came home with 8 different meds, some two to three times a day. Now he is down to 3 meds. At his last couple of Cardiology appointments, awesome news again. xrays look great! Can you believe this video was taken three weeks after open heart surgery? We had ...
5rolledtacos.com
5 Rolled Tacos: November 2010
http://www.5rolledtacos.com/2010_11_01_archive.html
Help JR and Tom run for the big hearts of small children. Wednesday, November 17, 2010. Posted by Tom the Fish. Wednesday, November 10, 2010. Thanks to Hal J. and The Naked Milner. A tribute video to my dad, his car, and the blog documenting their relationship. Thank you very much for the donation. Posted by JR Johnson. Monday, November 8, 2010. Thank You Rebecca M. It was nice of time to leave a message.it's clear he's very busy. But we're going to have to get him on video one of these days. An organiza...
trevorsheart.blogspot.com
Trevor's Heart Journey: CHD Facts
http://trevorsheart.blogspot.com/p/chd-facts.html
Congenital Heart Defects are the #1 birth defect. (American Heart Association). Congenital Heart Defects are the #1 cause of birth defect related deaths. (American Heart Association). Approximately 1 out of every 100 babies are born each year with some type of Congenital Heart Defect - approx. 40,000/year (Children’s Heart Foundation). This year approximatelly 4,000 babies will not live to see their first birthday because of Congenital Heart Defects. (Children's Heart Foundation). Travis - Big Brother.
chdquilt.org
Resources
http://www.chdquilt.org/links.html
Make A Wish Foundation. Ronald McDonald House Charities. Adult Congenital Heart Association. Brian Littrell Healthy Heart Club. Providing resources and assistance for Kawasaki's Disease. Heart Healthy fun for kids. Support for families in Missouri. Clinical trials and research, awareness, and treatment. Online Encyclopedia and coloring pages for kids. The Congenital Heart Information Network. Hearts Lost 2 CHD. Online support for families who have lost adult children to CHD. Kids With Heart, NACHD, inc.