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The Chris Carrino Foundation for FSHD | Dedicated To Finding A Cure For FSHD

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The Chris Carrino Foundation for FSHD | About Chris Carrino

http://chriscarrinofoundation.org/about-us/about-chris-carrino

News & Events. News & Events. The 2016-17 NBA season marks Chris Carrino’s 16th season as the radio play-by-play voice of Nets basketball, which can be heard on the team’s flagship station, Sports Radio 66 WFAN. Over the years, he has described some of the greatest moments in franchise history including both NBA Finals appearances in 2002 and 2003, as well as the Nets very first game in Brooklyn in 2012. Carrino made his Olympic debut in 2008, calling Men’s and Women’s basketball on TV as part of NBC’s c...

2

The Chris Carrino Foundation for FSHD | News & Events

http://chriscarrinofoundation.org/news-events

News & Events. News & Events. News & Events. State of NJ recognizes the Chris Carrino Foundation and World FSHD Awareness Day. FSHD NEWS: How CRISPR could lead to a cure for muscular dystrophy. Your donations have played a part in this important discovery for a potential treatment and cure for FSHD. The Chris Carrino Foundation for FSHD is acknowledged in the official paper for this research. Your continued support is crucial to advance these findings. Thanks to Dr. A heartfelt thanks to everyone who mad...

3

The Chris Carrino Foundation for FSHD | About FSHD

http://chriscarrinofoundation.org/about-fshd

News & Events. News & Events. Facioscapulohumeral Muscular Dystrophy (FSHD). Facioscapulohumeral muscular dystrophy (FSHD). Is the most prevalent form of muscular dystrophy affecting men, women and children. It is an autosominal dominant type of muscular dystrophy that causes progressive muscle wasting and weakness. The disease initially affects the muscles of the face (facio), shoulder (scapulo), and upper arms (humeral). The degeneration of muscle can also spread to the back, pelvis and legs. The Chris...

4

The Chris Carrino Foundation for FSHD | PHOTO GALLERY: The Chris Carrino Foundation 2015 Valentine's Disco Party

http://chriscarrinofoundation.org/2015/04/19/photo-gallery-the-chris-carrino-foundation-2015-valentines-disco-party

News & Events. News & Events. PHOTO GALLERY: The Chris Carrino Foundation 2015 Valentine's Disco Party. A heartfelt thanks to everyone who made our February Disco Party a success. With the help of our generous sponsors from Bay Ridge Toyota. As well as all of you party goers, we raised over $25,000 for FSHD research. 1188 Willis Avenue, #431. Albertson, NY 11507. Site by Michael Cabrera. Send to Email Address. Post was not sent - check your email addresses! Email check failed, please try again.

5

The Chris Carrino Foundation for FSHD | Donations

http://chriscarrinofoundation.org/donations

News & Events. News & Events. The Chris Carrino Foundation for FSHD relies on private donations and grants to help fund the vital scientific research needed to develop a treatment and cure for FSHD. We greatly appreciate all of your donations and support! If you do not wish to make a donation online, you can:. The Chris Carrino Foundation. Marlboro, NJ 07746, USA. Sign up today to receive our email newsletter which will keep you up to date on all that’s new in the field of FSHD. 1188 Willis Avenue, #431.

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fshd.nl fshd.nl

Home - FSHD Foundation

http://www.fshd.nl/index.php/en

Welcome to our FSHD website! The Dutch FSHD Foundation’s goal is to stimulate, facilitate and financially support solid scientific research into the causes of FSHD, in order to find treatments and develop solutions that help improve patients’ quality of life. Although the cause for FSHD has been discovered, no treatment for this disease has yet been found. That’s why further research remains so important! The FSHD Foundation stimulates, facilitates, and financially supports solid scientific research into...

fshd.nl fshd.nl

FSHD-actie van Rico Dijkstra in Aalsmeer - FSHD Stichting

http://www.fshd.nl/index.php/nl/489-fshd-actie-van-rico-dijkstra-in-aalsmeer

Doelstelling, waarden en geschiedenis. Onderzoeksstrategie uit het laatste beleidsplan. Projecten uit het verleden. Het Spierziektencongres komt er weer aan! FSHD-actie van Rico Dijkstra in Aalsmeer. Geschreven door Kees van der Graaf. Kees van der Graaf. De doelstelling was 5000 euro. Met rode oortjes zijn de klasgenoten vanmiddag na afloop waarschijnlijk gaan tellen. Ik denk dat zij heel ver gekomen zijn. Er werd mij ook verzekerd ,dat er de komende dagen nog meer geld binnen zou komen, wan...Deze acti...

fshd.nl fshd.nl

FSHD in Beeld - FSHD Stichting

http://www.fshd.nl/index.php/nl/492-fshd-in-beeld

Doelstelling, waarden en geschiedenis. Onderzoeksstrategie uit het laatste beleidsplan. Projecten uit het verleden. Het Spierziektencongres komt er weer aan! Geschreven door Kees van der Graaf. Kees van der Graaf. Ik hoop van harte dat wij snel heel veel van de boekjes kunnen wegzetten. Hoe meer hoe liever, want dan weten weer meer mensen iets over wat het is om met FSHD te moeten leven. De begrippen onmacht en veerkracht zijn echt karakteristiek voor FSHD. Het zou toch geweldig zijn als wij ...Iedereen ...

fshd.nl fshd.nl

Onderzoek - FSHD Stichting

http://www.fshd.nl/index.php/nl/onderzoek

Doelstelling, waarden en geschiedenis. Onderzoeksstrategie uit het laatste beleidsplan. Projecten uit het verleden. Hier komt het archief. Hier komen de publicaties. Binnenkort meer informatie over de prioriteiten van de FSHD Stichting. Op de website 'Genetics Home Reference' wordt uitleg gegeven over SMCHD1. Klik hier om het artikel (engelstalig) te lezen. Nederlands succes in de strijd tegen FSHD! Projekten door de Stichting FSHD geheel of gedeeltelijk gefinancierd. Bijgwerkt tot 26 juni 2015. De FSHD ...

fshd.nl fshd.nl

Bookshop - FSHD Stichting

http://www.fshd.nl/index.php/nl/bookshop

Doelstelling, waarden en geschiedenis. Onderzoeksstrategie uit het laatste beleidsplan. Projecten uit het verleden. Dit boekje gaat over de onmacht en veerkracht bij mensen met FSHD. Er is zicht op therapie; hoelang dit nog duurt is onzeker. We zijn op weg; the sooner the better. Anke Lanser schreef verhalen over praktijkvoorbeelden van wat fshd-patienten dagelijks meemaken. Francisca Tollenaar heeft bij de verhalen prachtige gouaches gemaakt. Iedere donateur (vanaf 15,-) krijgt dit boekje toegezonden!

blog.fshfriends.org blog.fshfriends.org

Pacific Northwest Friends of FSH Research: March 2008

http://blog.fshfriends.org/2008_03_01_archive.html

Pacific Northwest Friends of FSH Research. Supporting research into Facioscapulohumeral Muscular Dystrophy. Friends of FSH Research Official Site. Wednesday, March 26, 2008. Deena Tannous Will Be Missed. Deena Tannous sitting with her friend Amanda. Age 26, passed away peacefully in. March 24, 2008. Dearly beloved daughter of Peter and Basma. Loving sister of Speero, Annie and William. She will be greatly missed by her numerous aunts and uncles, cousins, relatives from the. March 25, 2008. Was the Friend...

blog.fshfriends.org blog.fshfriends.org

Pacific Northwest Friends of FSH Research: Platform development for candidate drug screening for FSHD

http://blog.fshfriends.org/2012/07/platform-development-for-candidate-drug.html

Pacific Northwest Friends of FSH Research. Supporting research into Facioscapulohumeral Muscular Dystrophy. Friends of FSH Research Official Site. Thursday, July 26, 2012. Platform development for candidate drug screening for FSHD. Platform development for candidate drug screening for FSHD. Miller Lab News Story. Subscribe to: Post Comments (Atom). FiSHing for a Cure with HeART. There was an error in this gadget. Pacific Northwest Friends of FSH Research. Chris Carrino FSHD Foundation.

blog.fshfriends.org blog.fshfriends.org

Pacific Northwest Friends of FSH Research: April 2009

http://blog.fshfriends.org/2009_04_01_archive.html

Pacific Northwest Friends of FSH Research. Supporting research into Facioscapulohumeral Muscular Dystrophy. Friends of FSH Research Official Site. Thursday, April 23, 2009. Assumptions - Living with FSHD. My friend Anne has allowed me to share her story here on my blog. Please take a moment to learn more about living with Facioscapulohumeral Muscular Dystrophy. We all make assumptions about others based on our own life experiences. Sometimes assumptions are helpful. Many times they are not. April 9, 2009.

blog.fshfriends.org blog.fshfriends.org

Pacific Northwest Friends of FSH Research: New "DNA Combing" Test for FSHD

http://blog.fshfriends.org/2012/04/genomic-vision-launches-innovative-new.html

Pacific Northwest Friends of FSH Research. Supporting research into Facioscapulohumeral Muscular Dystrophy. Friends of FSH Research Official Site. Monday, April 16, 2012. New "DNA Combing" Test for FSHD. Biotech company Genomic Vision. Just announced the release to market of a new method of testing for FSHD. The test uses molecular combing technology that stretches DNA and affixes it to a treated glass surface. The DNA can then be analyzed using FSHD-specific software. Subscribe to: Post Comments (Atom).

philsjam.com philsjam.com

Write it, sing it, play it.: Life with FSHD...my story of hope.

http://www.philsjam.com/2015/03/life-with-fshdmystory-of-hope.html

Write it, sing it, play it. I'm Phil Bennett. My blog details my songwriting journey and introduces you to the amazing people I meet along my path to my ultimate dream. Saturday, March 7, 2015. Life with FSHD.my story of hope. It wasn’t until I was in my late twenties that I finally found a doctor in St. Louis that told me what I had. He said most likely I had Fascioscapulohumeral Dystrophy… FSHD. Who needs to run anyway? Who needs to shoot a bow and arrow anyway? You see I have fallen down so many times...

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News & Events. News & Events. A Voice for Facioscapulohumeral Muscular Dystrophy (FSHD). The Chris Carrino Foundation for FSHD is a 501(c)(3) non-profit organization. Working towards improving the lives of those affected by Facioscapulohumeral Muscular Dystrophy (FSHD). We are an independent, volunteer foundation providing funding to research scientists in the hope that stimulating scientific research in the field of FSHD will lead to an effective treatment and eventually a cure. 13 March, 2018. Michaela...

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