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ChrisHadMS.com - a detailed account of a High-Dose Cytoxan/Cyclophosphamide (HiCy) patient.No description found
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ChrisHadMS.com - a detailed account of a High-Dose Cytoxan/Cyclophosphamide (HiCy) patient. | chrishasms.com Reviews
https://chrishasms.com
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chrishasms.com
ChrisHadMS.com - a detailed account of a High-Dose Cytoxan/Cyclophosphamide (HiCy) patient.
http://www.chrishasms.com/blog.html
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In search of a treatment for Myositis: April 2010
http://rebootingjenny.blogspot.com/2010_04_01_archive.html
In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Friday, April 9, 2010. I went down-hill skiing in March! I cannot express with words how wonderful it was to go fast at something, anything.going fast is something this thrill-seeker stuck in first gear has surely missed. I was a little awkward walking in the boots, but then after a few runs, muscles loosened up and I was doing the blue trails! Subscribe to: Posts (Atom).
In search of a treatment for Myositis: Finally
http://rebootingjenny.blogspot.com/2010/01/finally.html
In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Thursday, January 14, 2010. CK is down a bit more and I am officially in the normal range at 224. I have not seen a lab printout without an H for High next to CK in 3 1/2 years. Subscribe to: Post Comments (Atom). Johns Hopkins Myositis Center.
In search of a treatment for Myositis: Waterskiing
http://rebootingjenny.blogspot.com/2010/08/waterskiing.html
In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Saturday, August 7, 2010. After many failed attemps, I finally discovered a system of holding on with one hand and pushing off one thigh to tuck and get vertical. I was yelling and laughing so hard I fell soon after. Subscribe to: Post Comments (Atom). Johns Hopkins Myositis Center.
In search of a treatment for Myositis: December 2009
http://rebootingjenny.blogspot.com/2009_12_01_archive.html
In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Tuesday, December 1, 2009. One Year Later - Strength Comparison. Subscribe to: Posts (Atom). Johns Hopkins Myositis Center. One Year Later - Strength Comparison.
In search of a treatment for Myositis: November 2009
http://rebootingjenny.blogspot.com/2009_11_01_archive.html
In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Wednesday, November 25, 2009. CK is 252 (38-234 is normal). 2 Years ago it was around 8,000. Now we can start tapering the 10mg Prednisone and hopefully get off it altogether. Wednesday, November 4, 2009. Thank you to the family, friends, and strangers who helped me through. All is not perfect, but little by little we are getting there. When you lose so much, gaining anyt...
In search of a treatment for Myositis: One Year Later - Strength Comparison
http://rebootingjenny.blogspot.com/2009/12/one-year-later-strength-comparison.html
In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Tuesday, December 1, 2009. One Year Later - Strength Comparison. Subscribe to: Post Comments (Atom). Johns Hopkins Myositis Center. One Year Later - Strength Comparison.
In search of a treatment for Myositis: September 2009
http://rebootingjenny.blogspot.com/2009_09_01_archive.html
In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Friday, September 11, 2009. Closer to normal once again. CK is down again to 306! Still noticing small changes in strength. Bending from the waist to touch the floor and up without pushing off legs. Pulling Graham in the bike trailer, carrying baby and groceries up the stairs."yes we can". Subscribe to: Posts (Atom). Johns Hopkins Myositis Center.
In search of a treatment for Myositis: May 2009
http://rebootingjenny.blogspot.com/2009_05_01_archive.html
In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Monday, May 11, 2009. Something clicked this month and I am able to do so many new things. . I can bend over and back up with legs straight. I don't have to do the funky tuck thing with my legs bent. I can lift my head from lying position! This has always been my most challenging thing. I can extend my leg out when on all fours. Subscribe to: Posts (Atom).
In search of a treatment for Myositis: January 2011
http://rebootingjenny.blogspot.com/2011_01_01_archive.html
In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Wednesday, January 12, 2011. I can officially report that I am off Prednisone and am still in remission since my HiCy treatment 2 years ago. I have recovered a remarkable amount of muscle strength and continue to target the areas where the most damage occurred- hamstrings and glutes. Subscribe to: Posts (Atom). Johns Hopkins Myositis Center.
In search of a treatment for Myositis: January 2010
http://rebootingjenny.blogspot.com/2010_01_01_archive.html
In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Thursday, January 14, 2010. CK is down a bit more and I am officially in the normal range at 224. I have not seen a lab printout without an H for High next to CK in 3 1/2 years. Subscribe to: Posts (Atom). Johns Hopkins Myositis Center.
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ChrisHadMS.com - a detailed account of a High-Dose Cytoxan/Cyclophosphamide (HiCy) patient.
ChrisHadMS.com - a detailed account of a High-Dose Cytoxan/Cyclophosphamide (HiCy) patient.
Chris Hassa's Blog
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