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Life with my son Jon and Duchenne

Life with my son Jon and Duchenne. Monday, June 20, 2016. Created a New Blog under Blogspot.com. I haven't posted on this blog for a few years. I found that my creativity was at a low. Hoping the new blog will help. The new post has a specific purpose and was created as a resource page to a presentation I created for the 2016 Parent Project Muscular Dystrophy Conference in Orlando FL. I just started a new blog under https:/ whatsnextduchenne.blogspot.com. Links to this post. Monday, August 13, 2012.

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Life with my son Jon and Duchenne | christinepia.blogspot.com Reviews

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Life with my son Jon and Duchenne. Monday, June 20, 2016. Created a New Blog under Blogspot.com. I haven't posted on this blog for a few years. I found that my creativity was at a low. Hoping the new blog will help. The new post has a specific purpose and was created as a resource page to a presentation I created for the 2016 Parent Project Muscular Dystrophy Conference in Orlando FL. I just started a new blog under https:/ whatsnextduchenne.blogspot.com. Links to this post. Monday, August 13, 2012.

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Life with my son Jon and Duchenne | christinepia.blogspot.com Reviews

https://christinepia.blogspot.com

Life with my son Jon and Duchenne. Monday, June 20, 2016. Created a New Blog under Blogspot.com. I haven't posted on this blog for a few years. I found that my creativity was at a low. Hoping the new blog will help. The new post has a specific purpose and was created as a resource page to a presentation I created for the 2016 Parent Project Muscular Dystrophy Conference in Orlando FL. I just started a new blog under https:/ whatsnextduchenne.blogspot.com. Links to this post. Monday, August 13, 2012.

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christinepia.blogspot.com

1

Life with my son Jon and Duchenne: July 2011

http://christinepia.blogspot.com/2011_07_01_archive.html

Life with my son Jon and Duchenne. Saturday, July 23, 2011. The below was posted on HerSelf First website. I think you may find this website helpful whether or not you have child with debilitating disease. I think as women, we all need to "Get Our Gayle". Monday, June 20, 2011. Take a minute right now and go over this checklist:. 2 How often do you talk or see each other? What types of things do you do or talk about and how does that make you feel? 4Can you name three other people you call on for support?

2

Life with my son Jon and Duchenne: A little discomfort and joy!

http://christinepia.blogspot.com/2012/03/little-discomfort-and-joy.html

Life with my son Jon and Duchenne. Sunday, March 18, 2012. A little discomfort and joy! Jon’s second semester at college has been rewarding and frustrating. While Jon is on campus, things are a little easier. Jon has a power chair that is stored on campus and he can navigate independently. Jon doesn’t have a power chair yet permanently. He can still walk and get in and out of a regular car, with a little help. It seems to take months and months to get anything approved. 8220;Mom, would you mind taking me?

3

Life with my son Jon and Duchenne: September 2011

http://christinepia.blogspot.com/2011_09_01_archive.html

Life with my son Jon and Duchenne. Monday, September 5, 2011. Human Spirits for the New York City ING Marathon! His answer was simple, "yes but I have to do it for Christine and her son". With your help we will: “Never underestimate the power of dreams and the influence of the human spirit. We are all the same in this notion: The potential for greatness lives within each of us.” Wilma Rudolph. Please make a donation:. Http:/ www.parentprojectmd.org/goto/Ludovic-Raymond. Links to this post.

4

Life with my son Jon and Duchenne: March 2012

http://christinepia.blogspot.com/2012_03_01_archive.html

Life with my son Jon and Duchenne. Sunday, March 18, 2012. A little discomfort and joy! Jon’s second semester at college has been rewarding and frustrating. While Jon is on campus, things are a little easier. Jon has a power chair that is stored on campus and he can navigate independently. Jon doesn’t have a power chair yet permanently. He can still walk and get in and out of a regular car, with a little help. It seems to take months and months to get anything approved. 8220;Mom, would you mind taking me?

5

Life with my son Jon and Duchenne: May 2011

http://christinepia.blogspot.com/2011_05_01_archive.html

Life with my son Jon and Duchenne. Tuesday, May 17, 2011. My knowledge and my ignorance were highlighted over the past couple of months. Looking back, would I change any of it? Like everyone, we wish Duchenne never came into our life. I would have liked to meet the new orthotist when Jon was younger. I think we would have made the same decision regarding the steriods. Jon as always said that he would much rather be short and still able to walk for as long as he possibly can. Links to this post.

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Life with my son Jon and Duchenne. Monday, June 20, 2016. Created a New Blog under Blogspot.com. I haven't posted on this blog for a few years. I found that my creativity was at a low. Hoping the new blog will help. The new post has a specific purpose and was created as a resource page to a presentation I created for the 2016 Parent Project Muscular Dystrophy Conference in Orlando FL. I just started a new blog under https:/ whatsnextduchenne.blogspot.com. Links to this post. Monday, August 13, 2012.

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