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Myasthenia Gravis: My story

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Myasthenia Gravis: My story | clairedenton.blogspot.com Reviews

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by Claire Denton

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Myasthenia Gravis: My story: September 2009

http://clairedenton.blogspot.com/2009_09_01_archive.html

Myasthenia Gravis: My story. Five Elements of Energy. Enter your email address:. The shopkeepers here are always smiling! Hiking at Castle in the Clouds. Thursday, September 24, 2009. It is amazing to me that I haven't written since May! The great news is that we stopped the IVIg too- and my liver functions went right back to normal! So that is a tremendous relief. There was also a concern about my bladder- the chemo can cause all kinds of bladder problems, including cancer. Isn't that wild?

2

Myasthenia Gravis: My story: February 2011

http://clairedenton.blogspot.com/2011_02_01_archive.html

Myasthenia Gravis: My story. Five Elements of Energy. Enter your email address:. The shopkeepers here are always smiling! Hiking at Castle in the Clouds. Wednesday, February 9, 2011. The thing about Myasthenia (and it kind of makes me mad that I capitalized that) is that our lives aren't our own. We are subject to huge swings of fate. All it takes is chopping onions. How am I doing? Do I really hide the symptoms that well? No Well, maybe. Am I better off than I was? Subscribe to: Posts (Atom).

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Myasthenia Gravis: My story: May 2009

http://clairedenton.blogspot.com/2009_05_01_archive.html

Myasthenia Gravis: My story. Five Elements of Energy. Enter your email address:. The shopkeepers here are always smiling! Hiking at Castle in the Clouds. What is up with Claire? Monday, May 18, 2009. What is up with Claire? I know the title of this blog is my story of LIVING with MG- sometimes it doesn't feel like living at all! Tomorrow (Tuesday) I go in for another dose of cytoxan. That combined with the steroid they will give me (decadron) should kick me back into gear. Thank you all for carin...

4

Myasthenia Gravis: My story: April 2009

http://clairedenton.blogspot.com/2009_04_01_archive.html

Myasthenia Gravis: My story. Five Elements of Energy. Enter your email address:. The shopkeepers here are always smiling! Hiking at Castle in the Clouds. Please and Thank You. Monday, April 13, 2009. Please and Thank You. I am terribly sorry that I haven't written in so long. Life has been awfully busy for the Denton family lately. I only have a minute and am writing to ask for your prayers and good thoughts for me tomorrow. I am going in for another cytoxan treatment (chemo). Subscribe to: Posts (Atom).

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Myasthenia Gravis: My story: September 2010

http://clairedenton.blogspot.com/2010_09_01_archive.html

Myasthenia Gravis: My story. Five Elements of Energy. Enter your email address:. The shopkeepers here are always smiling! Hiking at Castle in the Clouds. Wednesday, September 22, 2010. The kiddos with Nannie and GrandDad enjoying the summer in Wolfeboro. I can't believe how long it has been since I have updated. To all those who follow the blog, I apologize! Just sitting down today to write was a thrill to me! Regardless, the Rituxan has certainly improved things greatly, and I am thrilled with the resul...

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Ken and Congenital Myasthenic Syndrome: Am I still sick?

http://cmsken.blogspot.com/2008/09/am-i-still-sick.html

Ken and Congenital Myasthenic Syndrome. Friday, September 26, 2008. Am I still sick? I don't even know that I have CMS anymore. I don't have any symtoms. I've only been taking 1 60mg Mestinon tablet, and 1 2mg Albuterol tablet 3 times a day (with meals).and I don't feel ANY symptoms.none. Of course, my attitude is infinitely better. I also have a new permanent full-time job doing web and graphic design, which is very satisfying. The only thing missing is my wife. October 6, 2008 at 6:32 AM. Dr Steven P&#...

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Ken and Congenital Myasthenic Syndrome: West-ward vs. GPSI

http://cmsken.blogspot.com/2008/05/west-ward-vs-gpsi.html

Ken and Congenital Myasthenic Syndrome. Tuesday, May 6, 2008. West-ward vs. GPSI. In a state of total desperation, I called West-ward late last week and demanded to speak with the CEO, Nabil Rizk. I guess I couldn't believe it when his assistant, Karen, managed to get him on the phone this time (i've asked several times previously). I basically told him that my wife left, and that I didn't want to fall down the stairs or choke on my food and die alone. It looks like I'll be healthy again soon, I hope so.

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Ken and Congenital Myasthenic Syndrome: February 2010

http://cmsken.blogspot.com/2010_02_01_archive.html

Ken and Congenital Myasthenic Syndrome. Monday, February 8, 2010. Much has changed since my last update. Where to begin? I haven't had any Albuterol or Ephedrine in over a year. I have not smoked cigarettes in over 6 months and have not smoked marijuana in over a year and a half. It's is safe to say at this point that Albuterol and Ephedrine helped me the most as bronchial dilators in combating the negative effects of smoking (lack of oxygen). If you have CMS. Please, don't smoke. Colorado, United States.

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Ken and Congenital Myasthenic Syndrome: June 2008

http://cmsken.blogspot.com/2008_06_01_archive.html

Ken and Congenital Myasthenic Syndrome. Friday, June 27, 2008. Ephedrine vs. Stress. I've been back on the Ephedrine for about a month now, and i'm definitely getting my strength and energy back. I'm taking care of the yard again, playing more with my kids, and taking on more consulting work. I'm also able to chew my food better, which means I'm eating more. That's good! Things are getting better. Subscribe to: Posts (Atom). Colorado, United States. View my complete profile. Ephedrine vs. Stress.

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Ken and Congenital Myasthenic Syndrome: I have Congenital Myasthenic Syndrome (CMS)

http://cmsken.blogspot.com/2008/02/intro.html

Ken and Congenital Myasthenic Syndrome. Sunday, February 3, 2008. I have Congenital Myasthenic Syndrome (CMS). Life was pretty much normal for me after that- although I grew up a little bit skinny and weak- I could still mountain bike, snowboard, jog, weight train and tons of other activities. Why isn't this Mestinon stuff working anymore? I had my doubts about the new drug combination working, but it does work! I am again able to do many of the daily activities I once enjoyed. Let's hope it lasts! Hi Ke...

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Ken and Congenital Myasthenic Syndrome: As good as it gets....

http://cmsken.blogspot.com/2008/12/as-good-as-it-gets.html

Ken and Congenital Myasthenic Syndrome. Monday, December 1, 2008. As good as it gets. I stopped taking Albuterol 2 weeks ago, just to see what happens. Guess what happened? I'm *still* not feeling any CMS symptoms. I definitely have my health back. I'm feeling great. I also have an awesome new job in Boulder as an IT/Ecommerce Manager. With health and wealth back in my life.there's only one thing missing! I'm heading to Mayo clinic this summer, so hopefully they can do something my doctor here can't do.

cmsken.blogspot.com cmsken.blogspot.com

Ken and Congenital Myasthenic Syndrome: The Silver Bullet - Albuterol

http://cmsken.blogspot.com/2008/09/silver-bullet-albuterol.html

Ken and Congenital Myasthenic Syndrome. Tuesday, September 2, 2008. The Silver Bullet - Albuterol. I had recently noticed in my comments that some of you CMS patients are having success with Albuterol (thanks Marika and Denise! I had a follow up appointment scheduled with my neurologist, Dr. Ringel almost 2 weeks ago so I thought- why not ask him If I can try it? It's been 10 days since i've been taking Albuterol, I take a single 2mg tablet each time I take a 60mg Mestinon (3 or 4 times a day). I have be...

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Ken and Congenital Myasthenic Syndrome: February 2008

http://cmsken.blogspot.com/2008_02_01_archive.html

Ken and Congenital Myasthenic Syndrome. Thursday, February 7, 2008. I need help finding Ephedrine. Ever since my normal dosage of Mestinon decided to just stop working.i've been panicked that I'd be suffering with the CMS effects the rest of my life. I feel lucky in that the Mestinon has seemed to work very well for me the past 35 years. Ephedrine has really made a difference in my ability to do all those things I was doing.but i'm having trouble getting it. Sunday, February 3, 2008. Over the past couple...

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Ken and Congenital Myasthenic Syndrome: Mestinon, Ephedrine, 3,4 DAP, EN101

http://cmsken.blogspot.com/2008/03/mestinon-ephedrine-34-dap-en101.html

Ken and Congenital Myasthenic Syndrome. Tuesday, March 18, 2008. Mestinon, Ephedrine, 3,4 DAP, EN101. If you have CMS, these are pretty much your treatment options right now. Well, really.Mestinon is your only option unless you don't mind jumping through a bunch of hoops. Is derived from Ephedra which comes from the Ma Huang. Plant- largely used in traditional Chinese medicine for the past 5000 years. It's used primarily as a decongestant and to treat low blood pressure. Has it for $45.25 per gram. April...

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Ken and Congenital Myasthenic Syndrome: Ephedrine vs. Stress

http://cmsken.blogspot.com/2008/06/ephedrine-vs-stress.html

Ken and Congenital Myasthenic Syndrome. Friday, June 27, 2008. Ephedrine vs. Stress. I've been back on the Ephedrine for about a month now, and i'm definitely getting my strength and energy back. I'm taking care of the yard again, playing more with my kids, and taking on more consulting work. I'm also able to chew my food better, which means I'm eating more. That's good! Things are getting better. June 28, 2008 at 4:19 AM. I was curious if you have tried the Albuterol? August 13, 2008 at 11:49 AM. Mestin...

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Myasthenia Gravis: My story

Myasthenia Gravis: My story. Five Elements of Energy. Enter your email address:. The shopkeepers here are always smiling! Hiking at Castle in the Clouds. How Do You Do It? Getting My Groove Back. Wednesday, April 27, 2011. How Do You Do It? I have been having a hard time. mostly because of the craziness of oral prednisone. I just need to hang in there until the New Deal starts! How Do You Do It? Subscribe to: Posts (Atom).

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